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International Moyamoya Symposium June 2009 (Read 3399 times)
Little Luca
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Whatever it takes

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Somerset West, South Africa
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International Moyamoya Symposium June 2009
Jul 1st, 2009 at 6:08am
 
I'm looking for the link to the video. Kim's posted a link to the website, but I'm not seeing the video link.

Help?

Here's the link to the website:

http://neurosurgery.stanford.edu/m_program.html

Mark (Luca's Dad)
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« Last Edit: Jul 1st, 2009 at 6:10am by Little Luca »  

1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!
 
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Mar
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Re: International Moyamoya Symposium June 2009
Reply #1 - Jul 1st, 2009 at 7:45am
 
Michelle posted the Link in the news section
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Little Luca
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Re: International Moyamoya Symposium June 2009
Reply #2 - Jul 1st, 2009 at 9:37am
 
The link is here:

http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1246058737
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1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!
 
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Entesar S.
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Re: International Moyamoya Symposium June 2009
Reply #3 - Jul 3rd, 2009 at 9:51am
 
Thank you Mark Smiley
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Surgeries done at Stanford
Doing Fantastic
Needs physical therapy
 
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LA
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Moyamoya survivor since
1999!

Posts: 334
Kneeland, USA, 15, 113, C
Gender: female
Re: International Moyamoya Symposium June 2009
Reply #4 - Jul 3rd, 2009 at 11:41am
 
Hello~

The symposium was incredible.


Just a note on the  Stanford reunion and the Moyamoya symposium.  I posted this in another section but feel it pertains here as well. I am filled with appreciation  for everyone who's involved with mm.

Stanford reunion---Being with people who share life with mm, have experienced the search for answers and help, the knowledge of being in such a small 'club', the notion of helping others now, was such a gift. Dr. Steinberg, Nadia, Teresa, Jill and many of the Stanford folks were there. Was a tremendous feeling of camaraderie for Jack and I.

We were able to attend the afternoon sessions of the symposium. Nadia played a large part in making it happen ~ along with Dr. Steinberg.  Hearing the world experts discuss the various aspects of this relatively knew and unknown disease from management to research, surgical methods to patient care and awareness was beyond incredible. Having lived with mm for the past ten years, seeing these committed efforts being made was heart (and brain!) warming.


Just want  to toss in my appreciation, support, and care for people who live with mm, help others with mm with our personal knowledge, and for the world wide efforts being made on our behalf.


Linda (LA)
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Linda (LA)
 
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Little Luca
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Re: International Moyamoya Symposium June 2009
Reply #5 - Jul 6th, 2009 at 5:24am
 
LA wrote on Jul 3rd, 2009 at 11:41am:
Being with people who share life with mm, have experienced the search for answers and help, the knowledge of being in such a small 'club', the notion of helping others now, was such a gift.


LA wrote on Jul 3rd, 2009 at 11:41am:
Just want  to toss in my appreciation, support, and care for people who live with mm, help others with mm with our personal knowledge, and for the world wide efforts being made on our behalf.


I second that, well said Linda

Mark (Luca's Dad)
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1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!
 
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