LA
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Moyamoya survivor since 1999!
Posts: 334
Kneeland, USA, 15, 113, C
Gender:
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Hello~
The symposium was incredible.
Just a note on the Stanford reunion and the Moyamoya symposium. I posted this in another section but feel it pertains here as well. I am filled with appreciation for everyone who's involved with mm.
Stanford reunion---Being with people who share life with mm, have experienced the search for answers and help, the knowledge of being in such a small 'club', the notion of helping others now, was such a gift. Dr. Steinberg, Nadia, Teresa, Jill and many of the Stanford folks were there. Was a tremendous feeling of camaraderie for Jack and I.
We were able to attend the afternoon sessions of the symposium. Nadia played a large part in making it happen ~ along with Dr. Steinberg. Hearing the world experts discuss the various aspects of this relatively knew and unknown disease from management to research, surgical methods to patient care and awareness was beyond incredible. Having lived with mm for the past ten years, seeing these committed efforts being made was heart (and brain!) warming.
Just want to toss in my appreciation, support, and care for people who live with mm, help others with mm with our personal knowledge, and for the world wide efforts being made on our behalf.
Linda (LA)
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