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Moya Moya in Denver, Colorado (Read 4560 times)
LWelch010309
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I Love MM.com!

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Moya Moya in Denver, Colorado
Jul 1st, 2009 at 6:32pm
 
I had my STA-MCA bypass in April 2008 and will be going back in next month for what it looks like might be more surgeries. I wanted to see if there are others living with Moya Moya in Denver to form some kind of support group.
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KTiller
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Freeland, USA, usa, 51, 28, WA, Washington
Gender: female
Re: Moya Moya in Denver, Colorado
Reply #1 - Jul 2nd, 2009 at 3:46pm
 
Hi,
My friend, Anita, lives in Denver. She's interested in a support group and would like to learn what local neurologists people in the area are seeing as she has yet to find one who has any experience with Moyamoya. She's on vacation in Hawaii for the next week or two. If you'd like I can send her your email address. I don't think she reads this website very often. Anita and I had surgeries at Stanford together in Fall 2007.
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kristil-leo
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Re: Moya Moya in Denver, Colorado
Reply #2 - Aug 5th, 2009 at 9:21pm
 
my son lives in northglenn. i know we need others here as well. he just finished his surgery. he had EDAS on both sides. he is only 13 but we as a family would love the support
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Rob
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Re: Moya Moya in Denver, Colorado
Reply #3 - Mar 10th, 2013 at 6:10pm
 
We live in Grand Junction, but all of my Daughter's surgeries have been done at Children's in Aurora.
We'd love to meet other people going through this journey!
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MAB
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Loveland, CO
Re: Moya Moya in Denver, Colorado
Reply #4 - Sep 29th, 2015 at 5:10pm
 
Hello,

My daughter, who is 17, was diagnosed in March of this year and had surgery in April.  We live in Loveland, CO, and were wondering if a support group was ever formed for the Denver area?
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