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hello im knew i hope it is still active. (Read 3736 times)

litisia

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I Love MM.com!

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hello im knew i hope it is still active.
Jul 22^nd, 2009 at 4:40pm

hello

my name is Litisia and im from Israel, i had 2 surgeries at Stanford 8 month ago.
Im 33 years old and married with 3 little girls.
I hoped to find here people like me with mmd.
Here in Israel there are only 4 patients and no one had that kind of surgery.
The Doctors in Israel don’t know what mmd is.
I can't send Teressa email when I have a ? because im too shy so I hoped to find
people who had the surgery and know all the feeling & pains.
Im sorry in advance for my English.
Thank u

Litisia

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Little Luca

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Posts: 346
Somerset West, South Africa
Gender: female

Re: hello im knew i hope it is still active.
Reply #1 - Jul 23^rd, 2009 at 3:55am

Hi Litisia

Welcome to moyamoya.com; if you're looking for people to share your experiences with, you are at the right place.

In South Africa I have only heard of two other people diagnosed with moyamoya and this website has been a wealth of knowledge.

Don't apologise for your english, it's so much better than my Hebrew Wink

Are you experiencing something specific that's worrying you?

Mark (Luca's Dad)

1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!

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Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: hello im knew i hope it is still active. Reply #2 - Jul 24^th, 2009 at 12:48pm Welcome back Litisia! You have come to the right place. Was there a specific question you need advise with? I am more then happy to help. Becky PS: English is my first language and Istruggel with it too.
Back to top	What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic IP Logged

litisia

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Re: hello im new i hope it is still active.
Reply #3 - Jul 25^th, 2009 at 2:43pm

Thank u so much for making me so welcome here.
So as I said I had the surgeries 8 month ago …
I am having lots of headache in the surgery place.
I still can't sleep on my side.
When I'm reading I can't stand the pain.
I have had some test spect ct and it show that I still don’t have enough blood
I was told that in 6 moth I have to do it again and if it won't change I will have
To do another surgery (is someone had 3 surgeries?)
I hope I haven't ask to much
Thank u very much
Litisia

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Audge Experienced Poster Offline Daughter Emily has MM Posts: 107 Armada, USA, usa, MI, Michigan Gender:	Re: hello im knew i hope it is still active. Reply #4 - Jul 25^th, 2009 at 9:04pm Hi Litisia, my daughter had her surgeries at Stanford a year ago and I email Teresa with all of my questions. Don't be afraid to ask questions of them because they will have the most accurate answers for you!!! -Audrey
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Little Luca

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Somerset West, South Africa
Gender: female

Re: hello im knew i hope it is still active.
Reply #5 - Jul 27^th, 2009 at 2:48am

Litisia

I agree with Audrey, Stanford really needs to hear about your pain. I wouldn't be thinking about the third surgery, you still need to have a second one which might be your last. I'm sure it's not entirely unusual to go for a second procedure on the same side; there would never be a guarantee with any of these procedure that the blood flow would improve.

Please direct your question to Stanford and keep us updated.
Mark (Luca's Dad)

1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!

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Bev New Poster Offline I Love MM.com! Posts: 25 Gender:	Re: hello im knew i hope it is still active. Reply #6 - Jul 27^th, 2009 at 7:45am Don't be too shy to contact Teresa. I did and she was very helpful to me. I'm in the UK and there is not a lot known here about MM. She will be able to talk about your situation with you.
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