Within in 2 hrs that we sent the faxes to CA and MA we got calls from both offices.  In Dr. Steinberg's case, his nurse called and explained their procedure and what would happen and to please send CD's of her images.  As far as Dr. Scott goes, his partner Dr. Smith called my sister directly and spoke with her.  He explained about the disease, the procedure they use and how it differs from Dr. Steinberg's and gave the stats on how many they do there.  He said they would be happy to take her case pending seeing her images (which we overnighted today).  My niece is all for the opinions and if we can get the insurance on board I believe we will be going to Boston for the surg. 

I read on here that, and i am sorry i am not recalling the names of the members yet, someone's daughter was being operated on yesterday in Boston, when the dr was on the phone with my sister he mentioned he had just gotten out of surg on another case, I wonder if it was the one here on the board.

THANK YOU THANK YOU THANK YOU for this board DJ.  Thanks to all the wonder people who responded to me.  I doubt my sister would have gone past the original opinion if I did not push the research, i am a researcher, i would do it full-time if i could, must be the historian in me.  I so appreciate this forum and bless each of you and yours with health for years to come. 

I will post the final decision when it is made.

My daughter, Abby, was in surgery with Dr. Scott and Dr. Smith for 9 hours on Friday 7/24.  I just posted a topic about it in this same forum titled "Abby - Pial Synangiosis IS DONE!!!!"  I don't know about going to see Dr. Steinberg, but I do know that the Children's Hospital here in Boston is "IT" as far as I am concerned.  Especially when you are talking about a pediatric case as my daughter, who is 10, would fall under.  We are still here in Boston healing as you might have guessed so my time on the site is hit or miss, but please feel free to ask any questions and I will do my best to answer them.

Thanks,

Demian

(Abby's Dad)

Mac,
MY daughter is 6 years old and her surgery was done a week after Abby's by Dr. Smith at BCH..both sides done at the same time ..surgery lasted about 8 hours...she is doing great...Demian is right BCH is  '' IT ''..
Good LUCK!!!