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heather New Poster Offline Posts: 16 halifax, Canada, usa, 550, 49, NS, Nova_Scotia Gender:	my babygirl Aug 20^th, 2009 at 10:45am i have not been here in ages but always found the board helpful... my daughter emily age 19 had moymoya .. she previously had had 4 stroke ..3 requiring EDAS surgury ..on august the 13 th she suffer a massive brain hemmorage .. and passed away on sat Aug 15 th...thanks forthe support and info the past few years
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Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: my babygirl Reply #1 - Aug 20^th, 2009 at 12:48pm Heather, My sencer condonances to you and your family in this hard time. I am glad to hear that this board has helpful. God must have a good reason for needing Emily by His side. With all my heart, Becky
Back to top	What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic IP Logged

Entesar S. MM.com Benefactor Offline My nieces Joad has MM Posts: 53 UK Gender:	Re: my babygirl Reply #2 - Aug 20^th, 2009 at 1:31pm Dear Heather My deepest condolences, I am so sorry to hear about Emily. We are all here for you, please be strong. Entesar
Back to top	Surgeries done at Stanford Doing Fantastic Needs physical therapy IP Logged

gotchlorine Old-Time Poster Offline Our daughter, Tara, lives with MM Posts: 776 San Jose, USA, usa, 24, 158, CA, California Gender:	Re: my babygirl Reply #3 - Aug 20^th, 2009 at 2:48pm Dear Heather, Despite your sad news, I'm glad you came here to share it. My hope is that you are able to gain strength from those here on the site as you grieve. My deepest condolences, as well. Sending you a "mom" hug from California. Jill
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Lmom Junior Poster Offline I Love MM.com! Posts: 53	Re: my babygirl Reply #4 - Aug 20^th, 2009 at 4:02pm Heather, That is such sad news. I am so sorry for your loss. Jody
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cass/kate Experienced Poster Offline Daughter Kate has moyamoya. Posts: 247 Dallas, USA, usa, 270, 251, TX, Texas Gender:	Re: my babygirl Reply #5 - Aug 20^th, 2009 at 4:27pm Heather - I am so very sorry to hear about your losing Emily. The Lord must have needed her for something special. Know we are all here for you and your family. You are on my heart. Cass in Dallas
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Judy O New Poster Offline I Love MM.com! Posts: 11	Re: my babygirl Reply #6 - Aug 20^th, 2009 at 4:41pm Dear Heather, I am so sorry to hear about your daughter. My condolences to you and your family. Judy
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Mar Ex Member	Re: my babygirl Reply #7 - Aug 20^th, 2009 at 4:52pm Heather~ I can’t begin to know how you feel; God love ya, but I just wanted you to know how very sorry I am for your loss. I’ll keep you and your family close in my heart, thinking of you during this difficult time. Those we love are with us always. Mar
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Patty New Poster Offline I Love MM.com! Posts: 8 Hillsboro Ohio Gender:	Re: my babygirl Reply #8 - Aug 20^th, 2009 at 5:26pm Dear Heather, I am so sorry for the loss of you daughter. I will pray for you and your family. God Bless Patty
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Twyla New Poster Offline I Love MM.com! Posts: 19	Re: my babygirl Reply #9 - Aug 20^th, 2009 at 7:19pm I am brand new to the board. Your words though sad are uplifting. I just addmitted that I cannot get through this alone. She left you with a testimony that is helping others. You are blessed among many.
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LA Senior Poster Offline Moyamoya survivor since 1999! Posts: 334 Kneeland, USA, 15, 113, C Gender:	Re: my babygirl Reply #10 - Aug 20^th, 2009 at 11:05pm Heather~ Thinking of you during this incredibly difficult time. We send Love and support to you and your family. Linda and Jack
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Danielle Junior Poster Offline 3 year old daughter with Moyamoya disease Posts: 71 Michigan Gender:	Re: my babygirl Reply #11 - Aug 21^st, 2009 at 12:16am So sorry to hear about Emily. Be strong. I can't even begin to feel your pain. Your in our thoughts and prayers. Mike & Danielle
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Michele Experienced Poster Offline I love YaBB 1G - SP1! Posts: 169 Yankton, USA, SD, South_Dakota Gender:	Re: my babygirl Reply #12 - Aug 21^st, 2009 at 1:11am So now you walk, but not alone, For Christ is with you as you go. Look up because the gift's not gone She's waiting in the Father's arms. Author Mary Kay Glunt May the Lord be with you and your family at this most difficult time. Michele
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Little Luca

Senior Poster

Offline

Whatever it takes

Posts: 346
Somerset West, South Africa
Gender: female

Re: my babygirl
Reply #13 - Aug 21^st, 2009 at 2:48am

Dear Heather

There are no words to convey what I'm feeling for you and your family. My sister was only 19 when she was taken from us in a car accident. There is no greater tragedy than a parent having to bury their child. Thank you very much for taking the time to let us know. Your moyamoya.com family join you in mourning the passing on of one of our own.

There might be thousands of miles between us but we're only a few keyboard strokes away.

Mark (Luca's very sad Dad)

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1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!

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heather New Poster Offline Posts: 16 halifax, Canada, usa, 550, 49, NS, Nova_Scotia Gender:	Re: my babygirl Reply #14 - Aug 21^st, 2009 at 6:23am thank you all
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heather

New Poster

Offline

Posts: 16
halifax, Canada, usa, 550, 49, NS, Nova_Scotia
Gender: female

Re: my babygirl
Reply #15 - Aug 21^st, 2009 at 6:24am

You can shed tears that she is gone or you can smile because she has lived.
You can close your eyes and pray that she'll come back or you can open your eyes and see all she's left Your heart can be empty because you can't see her or you can be full of the love you shared.You can turn your back on tomorrow and live yesterday or you can be happy for tomorrow because of yesterday.You can remember her and only that she's gone or you can cherish her memory and let it live on.You can cry and close your mind, be empty and turn your back or you can do what she'd want: smile, open your eyes, love and go on.

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Lore MM.com Benefactor Offline My brother Kevin (Cubbie) has Moyamoya Posts: 819 Delaware, USA, usa, 419, 133, OH, Ohio Gender:	Re: my babygirl Reply #16 - Aug 21^st, 2009 at 8:03am Heather, Please accept my sincere sympathy to you and your family in the loss of Emily. Your most recent post is beautiful and Emily will always hold a special place in your heart. I will keep you and your family in my thoughts and prayers during this difficult time. Lore
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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: my babygirl Reply #17 - Aug 21^st, 2009 at 8:42am I'm so sorry to hear of your tragic loss.Many many prayers for your family.What beautiful word you wrote....Your angel would be so proud.... Mary Grace
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Reagan Junior Poster Offline Posts: 75 Lee's summit, USA, usa, 302, 159, MO, Missouri Gender:	Re: my babygirl Reply #18 - Aug 22^nd, 2009 at 12:06pm Heather, My heart goes out to you. I am so sorry for you and your family's loss. You and your family are in my thoughts and prayers. Reagan
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Audge Experienced Poster Offline Daughter Emily has MM Posts: 107 Armada, USA, usa, MI, Michigan Gender:	Re: my babygirl Reply #19 - Aug 22^nd, 2009 at 10:01pm Heather, I'm so sorry you lost your daughter. My prayers are with you and your family. -Audrey
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KTiller Senior Poster Offline Posts: 355 Freeland, USA, usa, 51, 28, WA, Washington Gender:	Re: my babygirl Reply #20 - Aug 22^nd, 2009 at 10:04pm Dear Heather, I am so sorry for the loss of your daughter, Emily. My thoughts and prayers are with you and your family. Kim
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PaulaMart Junior Poster Offline I Love MM.com! Posts: 84 Spain Gender:	Re: my babygirl Reply #21 - Aug 24^th, 2009 at 3:42am Dear Heather, I have no words, I don't know what to say, I'm so sorry ... I read the message on Friday, this Saturday my two children made their first communion, and I thought of you and Emily that day, I have had you the whole weekend in my thoughts. God Bless.
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nopi98

New Poster

Offline

With God....all things
are possible.

Posts: 33
Pickens, USA, usa, 431, 202, SC, South_Carolina
Gender: male

Re: my babygirl
Reply #22 - Aug 24^th, 2009 at 8:59am

heather wrote on Aug 21^st, 2009 at 6:24am:

You can shed tears that she is gone or you can smile because she has lived.
You can close your eyes and pray that she'll come back or you can open your eyes and see all she's left Your heart can be empty because you can't see her or you can be full of the love you shared.You can turn your back on tomorrow and live yesterday or you can be happy for tomorrow because of yesterday.You can remember her and only that she's gone or you can cherish her memory and let it live on.You can cry and close your mind, be empty and turn your back or you can do what she'd want: smile, open your eyes, love and go on.

That is one of the most beautiful things I've ever seen someone say about the loss that you have had to endure. My prayers are with you and your family. I want nothing more than to to tell you how sorry I am...along with everyone else here. But its like you said, we can shed tears that she's gone, or we can smile because she lived.

God loves us all Heather, never forget that. Even when He chooses to take someone we love so much away. This is your testimony. Share it proudly.

God bless you

Under His authority,

Fred

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He died for us...the least we can do is live for Him.

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