Hello friends, I just got some good news. Adriana has been seizure free almost 20 months. Her neurologist wants to start weaning her slowly off of Keppra. She has had an in direct bypass done on both sides off her brain and has had no strokes since. She has had 4 strokes and only had seizures during her strokes. She has never just had a seizure. Has anyone dealt with this yourself or with a family member with MM? I thought it was great news just because I know that the seizure meds can hinder there development and behavior. She does have brain damage and even damage can cause seizures or seizure like activity. This may sound silly but is everyone with MM on seizure meds? Is it something they should always take like the aspirin? Any advice would be greatly appreciated. Danielle

Becky, Adriana takes a half of low dose aspirin a day. I think the aspirin regiment is good. Sorry, I did not know that some MMers don't take aspirin. That is very interesting to me. I'm still learning. I was also surprised that you took a seizure med to help with migraines. Now that we are weaning her off I am going to call the neurologist and ask about that. So she may need something else if she is having migraines. Thank you so much for the advice.


If any one has any children with MM and has weaned them off seizure meds I would love to hear how it went. Did they have any seizures after no more medication? Also did they have migraines after weaning? I know that every case is different, just wanted to hear other story's. I have looked up weaning off seizure meds in children with epilepsy but found nothing on people with MM. Thanks, Danielle