Click this link to read a post I like on the moyamoya.com message board...

Dec 8^th, 2025 at 2:47pm

	Welcome, Guest. Please Login or Register
	NEW search box below... Search Moyamoya.com with Google!

Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Re: having a bad day

(Moderators: MrsDeej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

Re: having a bad day (Read 2280 times)

mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: having a bad day Sep 10^th, 2009 at 1:41pm Gosh I don't have any advice but please know your in my prayers.I'm so sorry your having a tough time.Surgeryis scary and the wait can really be stressfull.As soon as our daughter was diagnosed the wait for us was just unbearable at times.((((HUGS))))) and prayers. Mary Grace
Back to top	IP Logged

Click Here to visit the Moyamoya.com Facebook page!

Mayhem MM.com Sponsor Offline diagnosed 1996 Posts: 92 Rochester, USA, NY, New_York Gender:	Re: having a bad day Reply #1 - Sep 10^th, 2009 at 5:14pm I had my surgery four years after I was diagnosed, with no ill effect. Patience is tough, especially if you feel that you have a ticking time bomb in your head. Try not to stress.
Back to top	IP Logged

KTiller

Senior Poster

Offline

Posts: 355
Freeland, USA, usa, 51, 28, WA, Washington
Gender: female

Re: having a bad day
Reply #2 - Sep 11^th, 2009 at 9:12pm

Hang in there. The neuropsych testing isn't absolutely essential, but it does give your doctor a baseline of your mental abilities. They'll ask you do it again six months after surgery to see if the added oxygen has improved your mental processing. Don't freak out during the test. Approach it as a challenging game and you'll get through just fine. Remember, no one is grading you.
Kim

IP Logged

yunnanababy

Experienced Poster

Offline

My daughter had her surgeries
in October 2009

Posts: 137
Indianapolis, IN USA
Gender: female

Re: having a bad day
Reply #3 - Sep 12^th, 2009 at 8:10pm

I understand how difficult the waiting is. Since I first read about MM in January I've been waiting...we waited until May before my daughter's ped neuro decided to take me seriously and run the diagnostic testing for MM, then we waited several more weeks before insurance issues were ironed out so that we could have a surgeon experienced in pial synangiosis perform the surgeries, and now the countdown to surgeries on 10/5 & 10/5. I will add you to my prayer list. Stay strong!

Jennifer
Mommy to a 6 y/o with MM
www.caringbridge.org/visit/rubymaejingli

Mom to an 9.5 y/o ballerina/guitar player with MMD & an 11.5 y/o gymnast/cross country runner/swimmer!
www.caringbridge.org/visit/rubymaejingli

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

There are user(s) in the live chat room. Go there now...

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. moyamoya.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!

Moyamoya.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.

©2003-2018 Web Vision Enterprises LLC All Rights Reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.

You may view our privacy policy and financial disclosure statement here