I have been on Topamax but the past 6 months or so. I was pretty scared by the tingling for the first few months but it did go away. I was especially scared because the tingling could be signs of stroke as well. I was on another headache medication when my nuero put me on Topamax because the previous headache medication was not doing the trick. I was still having horrible headaches - could not work, walk, eat, talk - anything without horrible pain. Topamax has cut out about 90 percent of my headaches. I have had a little bit of trouble remembering small things but no long term or big memory loss. What side effects have you been told about or are you worried about?

So far she has only had a noticible problem with the tingling in her face and hands.  She hasn't complained about memory problems yet.  she was actually having some issues before the Topamax with concentration and forgetting things like the word she wanted to use when talking to friends. It's still too early to know how it will affect the number of migraines she'll have.

Thanks for all the great feed back.  I really hope this works for her.  I hate to see her have to deal with the headaches so often.

Destin takes an asprin every day but the Topamax is because she is still having migraines.  Her doctor wanted to try it to see if it helped keep them at bay.

Our five year old had a BAD reaction to Topomax, extreme psychotic experience for about three hours.  Never again.

My son (16) tried Topamax last Nov. for migraine prevention & everyday headaches (that he has EVERY DAY!).  He stopped taking it after 1 month bc it hadn't any effect on his headaches and the side effects were negatively affecting him: loss of appetite (lost 6-8 lb those 4 wks and he is in the 40th %tile for weight as it is); very lethargic; difficulty w/ verbal expression.  Unfortunately, he hit his peak dosage/side effects the week of semester exams.  it was not pretty.
He has now been on Depakote for 2 1/2 mo's and no ill side effects, no migraine for 2 months and the everyday headaches are a tiny bit better.  The neurologist's next approach to relieve the everyday h/a's is to add physical therapy since she noticed he has musculo-skeletal imbalances most likely from the stroke-weakened side.  She thinks it is causing pressure/pinching of the occipital nerve area. Interesting - will post results when if get any.
BTW - I watched most of the video from the Stanford MM Symposium (last June) and most of the Dr's said they keep their MM pts on aspirin for life - this is not for pain relief, but stroke prevention/good blood flow. Kyle only takes 1/2 baby aspirin/day.   Check w/ your neurologist.