I am sorry I havent posted in a very long time, to say we have been busy would be an understatement  .
Brief background
Brielle aged 4 at the time had her first stroke on the 10th of Sep 09
Second stroke 6 weeks later  .
First op was done on the 13th of Nov 09 unfortunately she had a stoke during that surgery. Direct bypass was performed on the right side of the brain.
Second op 27th of Nov, indirect bypass performed.

We have just been back for the follow up SPECTs it looks like stroke that happened on the 13th of Nov has affected the quality of the bypass and the blood flow is compromised  in the new artery  .
To say we are gutted is an understatement.  I am also terrified as the third artery is also affected and we are looking at surgery in the next few months for that.
Does anyone know if they are likely to want to operate on the right side again.  The left side of her body is so weak already from 3 strokes in the 3 mths.  She walks but cant use her arm at all and her mouth has been severly affected 
I will be making an appointment to see Prof Stoodley (we are in Australia) ASAP but thought I would see if anyone knows the outcomes on here.
Prof Stoodley had already told us that because she is so young he would be very surprised if she made it through childhood without more strokes regardless of the fact that she has had surgery.
Man this disease is nasty, I often wish I could wave a magic wand and make it go away 

My daughter also had a stroke during surgery and another 1 week later. She was at Stanford for almost 2 months. She is an adult age 36 and now lives in a Nursing Home for brain injuries. I am raising her children. I hate this disease! She has had a total of 8 strokes but only 1 after both the surgeries. Blood flow is successful but she is living with the devastation of the strokes! How sad!

Briellemum, 
I am sorry to hear that Brielle is haveing complecations. She is luck to have you as a mom/mum. Please stay strong and she will feed of your strength. We are all here you help in any way we can.I will pray for Brielle and your family.
hugs,
Becky

Hey Briellesmum

Keep your faith with Brielle, kids are tougher than we think and she will be looking to you for strength and reassurance, as I'm sure you're giving her.

I know every case is different, but not one of the Prof's/Dr's/surgeons on Luca's case (and there have been a few) has ever indicated to us that, because she is so young, she will continue to have strokes after successful surgery.

It might be worth getting a copy of her latest scans to one of the moyamoya specialists listed here for an opinion.

I can't relay in words how I'm feeling for Little Brielle right now, but she will remain in my thoughts.

Stay strong and we are all waiting for good news
Mark (Luca's Dad)