Kathleen saw the physiatrist today to check her leg braces. She wears a KAFO on her left and an AFO on her right cince the strokes. We talked about her increased tone in her left ankle.(this is from the strokes)It's been progressively getting so tight I have a hard time stretching it and getting it into her brace. We're now faced with doing Botox injections. I'm not crazy about the idea but the alternative isn't so great either. If we don't do this it will get worse and eventually the only "fix" would be heel cord lengthening surgery. The injections will be done under anesthesia in the hospital. They will need to first get clearance from her neurosurgeon in Boston for the specific concerns with anesthesia and moyamoya. The injections should last about 4 months and then we do it again. How about the concerns with anesthesia and moyamoya? Any input is appreciated.Has anyone done these injections for spasticity from their strokes? Gosh it's always something.....
Mary Grace

Thank you so much for your input. It helps to ehar that this helped. Did you daughter have anesthesia and did they have particular conceners about the anesthesia and moyamoya? How often did your daughter have these injections?