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scotland (Read 3090 times)
jac.scot
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I Love MM.com!

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scotland
Gender: female
scotland
Aug 24th, 2010 at 5:43pm
 
Hello, My 7 year old daughter has been diagnosed with moyamoya and we have been refered to a specialist in Great Ormand Street Hospital in London. Has anyone any info/experience with surgeons there? We are from Scotland and also wondered if there was anyone else from here on this brilliant site?
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hrsridermom
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mother of 19 yr old daughter
with MMD

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Tampa, USA, FL, Florida
Gender: female
Re: scotland
Reply #1 - Aug 24th, 2010 at 6:01pm
 
Hi Jackie.  I see you figured out the message board!  You'll find lots of great people and information here.

Donna
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Destin's mom
 
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hrsridermom
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mother of 19 yr old daughter
with MMD

Posts: 292
Tampa, USA, FL, Florida
Gender: female
Re: scotland
Reply #2 - Aug 24th, 2010 at 6:13pm
 
Jackie,

I saw where at least two posters have been to GOSH and have good things to say about it.  On the message board look under the tab for doctors/surgeons and you'll find them.  Then you can click on their names and send them a message.  Hope this helps I know you are anxious to get as much information as you can.
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Destin's mom
 
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Little Luca
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Whatever it takes

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Somerset West, South Africa
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Re: scotland
Reply #3 - Sep 3rd, 2010 at 4:44pm
 
Hi Jacquie

My 1 year old daughter was operated on in Newcastle, which is a lot closer for you. Dr Mendelow and his team were fantastic. Here are the details:

http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1230657196

Good luck
Mark (Luca's Dad)
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1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!
 
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db
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Re: scotland
Reply #4 - Sep 6th, 2010 at 7:23pm
 
JD,
apparently Children's Hospital episode 11 had a wee lass with mm last night.
am trying to find it for you x
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