Hello,

I'm curious to know if anyone has experienced arm pain or leg pain associated with Moyamoya disease.  I know that leg and/or arm weakness is common but I'm not sure about pain in the limb.

Thanks

Corinne

I had leg pain in both legs and had tests done. I fould that I have PAD. It has nothing to do with mm but the heart and blood flow to the legs. Had a stent put in left leg and feel great. No more pain.

Sharon

Thanks to everyone for posting a note on this.  My son has left shoulder pain and leg pains but has not been diagnosed with Moyamoya yet.  We have an appointment with the neurologist on Tuesday to talk about all his symptoms which are similar to my daughter's who had surgery for MMD in March.  His shoulder pain and periodic leg pain comes and goes without reason.  He has Down Syndrome and doesn't talk very much so it is very difficult to get the whole story.

Thanks for taking the time to post.

Corinne