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JoshuaFather

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Tamarac, FL
Gender: male

Update with Joshua's MMD
Sep 7^th, 2010 at 3:23pm

Hello everyone, I just want to update with Joshua's MMD journey. After we spoke with DR. Sandberg at Miami Children's Hospital we decide to have a surgery done in Miami. He was very confident and not many experience as DR. Scott in Boston but he did has MMD experience and so far he didn't have any complications. At first we weren't sure about DR. Sandberg but after having conversation with him we felt very comfortable. Anyway my son Jousha just had a surgery on his left side today and he is doing great! Thank you guys for wonderful informations about this MMD and your prayers. I will keep update with Joshua's MMD journey.

P.S. DR. Sandberg is a wonderful doctor!

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Little Luca Senior Poster Offline Whatever it takes Posts: 346 Somerset West, South Africa Gender:	Re: Update with Joshua's MMD Reply #1 - Sep 9^th, 2010 at 7:25am Good man Josh! And well done to the doctors involved. Just don't be too frightened by the swelling, it will go down. Keep us updated and stay strong. Mark (Luca's Dad)
Back to top	1st stroke in September 2008, age 10 months Bi-lateral mm diagnosis 2nd stroke in November 2008, age 1 year old Left side surgery in December 2008 13 years on now Doing just great! IP Logged

Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: Update with Joshua's MMD Reply #2 - Sep 9^th, 2010 at 7:57am Way to go Josh! I will pray for a speedy recovery. Stay strong, Becky
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JoshuaFather

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Tamarac, FL
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Re: Update with Joshua's MMD
Reply #3 - Sep 9^th, 2010 at 6:25pm

Thank you for your kind replys! Joshua is going home tomorrow. He's been here for 4 days and we are very thankful that God has listened to our prayer also Josh is doing so well! Josh needs to have one more surgery on his right side as soon as he gets recover from this but I have a faith that God will take care of my son. I will keep in post! Thank you guys!

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Danielle

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3 year old daughter with
Moyamoya disease

Posts: 71
Michigan
Gender: female

Re: Update with Joshua's MMD
Reply #4 - Sep 10^th, 2010 at 9:53pm

What a great update. I bet Josh is glad 2 be going home. He can rest much better there. My daughter had her surgery done by a non MM Dr. & we have no regrets. If u ever had a question his Dr. Can't answer you can always email 1 of the specialists. That what we have 2 do & it has been helpful. We will pray for Joshua and your family. Keep us posted. Also wondered how old he is? Danielle

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Positive thinking is key!

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JoshuaFather

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Tamarac, FL
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Re: Update with Joshua's MMD
Reply #5 - Sep 10^th, 2010 at 10:51pm

Josh came home this morning at 11am and so far he is doing great except he is complaining about his right side of knee. I'm not sure if it is hurt because he was so excited that he was running around the house or because we didn't give him a pain medicine. We stop give him pain medicine since last night because he didn't complin any pain but I just start give him at 4:30pm. I hope this is nothing. It is so hard to control a 5 year old boy that tell him don't running around and drink a lots of water. Once again thank you for your kind reply and I will keep update.

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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: Update with Joshua's MMD Reply #6 - Sep 11^th, 2010 at 7:11am It must be great to be home for him! I hope he continues to improve. Thanks for the update! Mary G.
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JoshuaFather

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Tamarac, FL
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Re: Update with Joshua's MMD
Reply #7 - Oct 22^nd, 2010 at 1:14am

Hello group!

It is 1 AM right now at Miami children's hospital. Joshua is here for his 2nd surgery... I am very thankful to God that Josh is doing so great but I just can't sleep right now... My family and I are praying really hard that through God's grace, Josh can over come with this MMD and the surgery that he will get in the morning. (10/22/10) Please pray for Joshua, we will be very thankful. Thanks again and I will keep update with Joshua's MMD journey.

Joshua's father.

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LeonieC New Poster Offline I Love MM.com! Posts: 24	Re: Update with Joshua's MMD Reply #8 - Oct 22^nd, 2010 at 6:15am God will surely look after little Joshua. Listen to your heart.Joshua will be fine. My thoughts and prayers will go with Joshua. Helen
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Update with Joshua's MMD Reply #9 - Oct 22^nd, 2010 at 9:37am Good luck, Joshua - you and your entire family are in our thoughts and prayers!! -Shari
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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: Update with Joshua's MMD Reply #10 - Oct 22^nd, 2010 at 2:19pm Many many praerys that today's surgery broght a good outcome and that Joshua will have a quick and uneventful recovery. Please keep us posted. Mary Grace
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JoshuaFather New Poster Offline I Love MM.com! Posts: 16 Tamarac, FL Gender:	Re: Update with Joshua's MMD Reply #11 - Oct 22^nd, 2010 at 3:39pm Hi group! Thank you so much for your kind replies! It took him longer than 1st surgery (6hrs and 30 min.) but everything went well and Joshua is doing great! Once again thank you for your prayers and God bless you all! I pray that this will be the last surgery of rest of his life Joshua's father
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doudingding New Poster Offline I Love MM.com! Posts: 10 MM	Re: Update with Joshua's MMD Reply #12 - Oct 22^nd, 2010 at 7:09pm I will pray for him and myself the same time. I have moyamoya too and will have to take surgery (don't know if I need one or two so far). I am 35 and I am still so scared about it. God bless us.
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JoshuaFather

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Tamarac, FL
Gender: male

Re: Update with Joshua's MMD
Reply #13 - May 11^th, 2011 at 1:46am

Hello group!
It has been more than 6 months after Joshua's surgery. Joshua had a MRI for 6 months check up and thank God, the surgery went really well and he is doing great! My wife and I are wondering if we can give him an aspirin once every two days... Even though doctor told us to give him everyday, we are concerned that taking aspirin everyday would not be good for his health other than thinning blood. Does anyone here taking an aspirin every two days, skip sometimes or even not taking it at all??

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Becky

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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
Gender: female

Re: Update with Joshua's MMD
Reply #14 - May 11^th, 2011 at 11:45am

JoshuaFather,
I was told to take the 81mg of aspirin a day, but I have forgotten to take it allot, so I brought this up to my neurologist. He told me that I should be taking my aspirin but hinted there are foods like garlic, cyane (SP?) pepper that are natural blood thinners, and I should make meals that contain those items to help if I forget. He reminded me the 81mg aspirin works better then the diet.

Disclaimer: I am not a doctor. Everyone MM is different and the MM specialist neurologist should be advised on all blood thinning criterias.

I hope this helped,
Becky

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What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

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hrsridermom Senior Poster Offline mother of 19 yr old daughter with MMD Posts: 292 Tampa, USA, FL, Florida Gender:	Re: Update with Joshua's MMD Reply #15 - May 11^th, 2011 at 12:22pm We were told to take children's coated aspirin so it doesn't hurt the stomach lining.
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