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Moyamoya.com Forum › Meetings and Gatherings › Local Meetings and Gatherings › Indiana

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Indiana (Read 6018 times)

Meg New Poster Offline Posts: 6 Indianapolis, IN Gender:	Indiana Oct 1^st, 2010 at 12:55am Hey! Just wondering if there is anyone in Indiana from the northern part of the state, or the central part/Indy area? I'm curious about other Hoosier's experiences with MM. Also, I was wondering who you guys have as your neurosurgeon? My neurosurgeon was Dr. Terry Horner (he worked at Methodist Hospital), but he retired in 2009.
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yunnanababy

Experienced Poster

Offline

My daughter had her surgeries
in October 2009

Posts: 137
Indianapolis, IN USA
Gender: female

Re: Indiana
Reply #1 - Oct 15^th, 2010 at 1:25pm

Hi Meg,

We live in Indy. My 7 y/o daughter had her surgeries in Oct 2009 with Dr. Jodi Smith at Riley Hospital for Children. She just had her one-year follow up angio at Methodist last week, and I used to work at Methodist (finance, not clinical) but Dr. Horner's name does not ring a bell. We love Dr. Smith - she is the best. We spent about an hour with her in clinic on Tuesday this week, to receive the official result of the angio. I can't say enough wonderful things about her.

Best regards,

Jennifer

Mom to an 9.5 y/o ballerina/guitar player with MMD & an 11.5 y/o gymnast/cross country runner/swimmer!
www.caringbridge.org/visit/rubymaejingli

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abbe

New Poster

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My son has MM

Posts: 7
Merrillville, USA, usa, 373, 129, IN, Indiana
Gender: female

Re: Indiana
Reply #2 - Oct 24^th, 2010 at 2:36pm

Hi Meg.
My son is 4 and was diagnosed when he was 7 months old. We were living in NW Indiana when everything happened. He was treated at Univ. Of Chicago Comers Childrens hospital by Dr. David Frim. He is doing well. We have moved to Indy since and have been down here for a year and a half now. We still do our follow up with Dr. Frim, but have found a new neurologist down here. I would love to get in contact with you. My e-mail is abbeharpp@yahoo.com
Take care,
Abbe Harpp

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William2010

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I Love MM.com!

Posts: 1

Re: Indiana
Reply #3 - Jul 28^th, 2011 at 9:29pm

We live in Fishers, IN, suburb of Indianapolis. My son was 2 with his first stroke, and barely 3 with the second set of strokes. We were first treated at Riley, unfortunately they misdiagnosed us. We had sought the help of Children's Hospital Boston as they are the #1 ranked hospital for pediatric neurology. Dr. Scott diagnosed William and within two weeks we were in Boston having bilateral Pial synangiosis. He is fabulous. We see Dr. Lisa McGuire at St. Vincent's Children's Hospital. She is amazing. She sees several Moyamoya patients.

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abbe New Poster Offline My son has MM Posts: 7 Merrillville, USA, usa, 373, 129, IN, Indiana Gender:	Re: Indiana Reply #4 - Jul 30^th, 2011 at 10:59pm Would anyone from Indiana would like to have a get together maybe sometime after the new year? I was thinking maybe Caribbean Cove. I would see about getting a group rate if I could get a number ASAP. E-mail me at abbeharpp@yahoo.com Abbe
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