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Tutor for Moyamoya sufferer (Read 3477 times)
Moyamoya tutor
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Tutor for Moyamoya sufferer
Nov 27th, 2010 at 10:34pm
 
I am volunteering as a tutor for a young lady suffering from moyamoya. My conversation with her was on an adult level, but the previous tutor has the student reading on a second grade level. This situation is incongruous to me.

Can anyone give me some advice on how to work with this student?
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Little Luca
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Re: Tutor for Moyamoya sufferer
Reply #1 - Nov 29th, 2010 at 5:51am
 
Hi Tutor

It's very encouraging to have you on here looking for advice  like this; you obviously take the well being of your student very seriously.

My understanding would be that the mental capacity of your student would only be affected by any strokes that she might have suffered. The moyamoya itself wouldn't diminish the persons mental capacity, but depending on the stroke, it's possible to have some issues. You'll have to assess your student as an individual and not try to apply any rules because each person is affected differently.

Take care
Mark (Luca's Dad)
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« Last Edit: Nov 29th, 2010 at 5:52am by Little Luca »  

1st stroke in September 2008, age 10 months
Bi-lateral mm diagnosis
2nd stroke in November 2008, age 1 year old
Left side surgery in December 2008
13 years on now
Doing just great!
 
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dmm
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Re: Tutor for Moyamoya sufferer
Reply #2 - Nov 29th, 2010 at 6:41am
 
My daughter had a neuropsych assessment done after surgery to give them a better idea of what, if any areas had been affected. The information gained showed her strengths and weaknesses and gave suggestions on how best support her in her schooling.
The assessment was done as part of her rehab along with physio, occupational therapy and counselling.
Maybe you could ask her if she has had any rehab or testing. If yes they may be able to offer you some help.
As Luca said everyone is affected differently by moyamoya.
Good luck.
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mg12061
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Re: Tutor for Moyamoya sufferer
Reply #3 - Nov 29th, 2010 at 9:38am
 
Welcome! I admire the dedication you have to your student. As a parent of a young lady(she's 13) with some significant dissabilities I know that not everyone  shares your dedication.
  My daughter was born with Down syndrome and was also diagnosed with moyamoya. She started life  with some mental and physical delays. She suffered several strokes. The strokes are what we feel has caused her most significant delays physically and accademically. She has an IEP (individualised education plan) at school and a 1-1 teaching assistant. Her IEP has her physical and academic goals, her personal needs, and what modifications she needs to be successful. Does the young lady your working with attend school? Is she diagnosed with specific delays? ie. speech,memory, attention difficulties or other physcial dissabilities. How old is the young lady? Does she attend school? If so you could check her IEP. If you have some more specific questions I may be able to offer more help. Feel free to e-mail me personally if you'de rather.
Mary Grace
mgrace5@nycap.rr.com
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hrsridermom
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Re: Tutor for Moyamoya sufferer
Reply #4 - Nov 29th, 2010 at 6:35pm
 
I also had my daughter tested after her surgery.  She never had a stroke but after the surgery and lack of blood supply on the right (we don't know for how long) she does show some damage to the right frontal lobe.  she made straight A's this year but she does have to read some things several times.  she has a 504 plan at school.  Her IQ hasn't been affected but the way she learns has. Maybe that is why your student is reading at a lower level...maybe her previous teacher just didn't understand.
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