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Chantale New Poster Offline I Love MM.com! Posts: 4	Son's Surgery Dec 30^th, 2010 at 4:39pm My 10 year old son is scheduled for surgery on Jan. 10th. I am terrified! Plans are for pial synangiosis on both sides. Praying for success!
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yunnanababy

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My daughter had her surgeries
in October 2009

Posts: 137
Indianapolis, IN USA
Gender: female

Re: Son's Surgery
Reply #1 - Dec 31^st, 2010 at 3:52am

Hi Chantale,

I am so sorry that your son is dealing with MM, but am glad that you found mm.com. If you have any questions, just ask. Someone here is sure to have the answers. Where will your son have his surgery?

I will keep you both in my prayers, and will look forward to reading a post from you after your son's surgery, letting us know how well he is doing.

Peace,

Jennifer
www.caringbridge.org/visit/rubymaejingli

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Mom to an 9.5 y/o ballerina/guitar player with MMD & an 11.5 y/o gymnast/cross country runner/swimmer!
www.caringbridge.org/visit/rubymaejingli

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mg12061

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Posts: 946
Albany, USA, usa, 492, 84, NY, New_York
Gender: female

Re: Son's Surgery
Reply #2 - Jan 2^nd, 2011 at 1:25pm

I will keep your family in my prayers. Where is your son having surgery? My daughter had surgery almost 9 yrs ago(she was 5) in Boston. She has had no strokes since the surgery. I know the waiting is unbearable at titmes but hopefully you'll have the worst behind you soon. I'll be praying for an uncomplicated surgery and quick and full recovery.
Mary Grace

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Chantale New Poster Offline I Love MM.com! Posts: 4	Re: Son's Surgery Reply #3 - Jan 6^th, 2011 at 6:26pm Thank you for the prayers. I know that they help. He will be having surgery in Boston with Dr Scott. It is a long way from home in Utah, but he came highly recommended. Can anyone give me an idea of how much pain he will experience and how large the incisions will be?
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yunnanababy

Experienced Poster

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My daughter had her surgeries
in October 2009

Posts: 137
Indianapolis, IN USA
Gender: female

Re: Son's Surgery
Reply #4 - Jan 7^th, 2011 at 4:01pm

Hi Chantale,

Your son will be in the best of hands with Dr. Scott.

If you have a chance to look at my daughter's Caring Bridge site there are a couple of photos posted there which show the incision from her right side surgery. The scars are fairly long, but because her surgeon shaved the least amount of hair possible, with her longer hair style they have not really been noticeable since they healed (pretty quickly) and some of the hair near the incision grew back. It looks more like a long thin bald spot than a scar.

Best,

Jenn

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Mom to an 9.5 y/o ballerina/guitar player with MMD & an 11.5 y/o gymnast/cross country runner/swimmer!
www.caringbridge.org/visit/rubymaejingli

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Chantale New Poster Offline I Love MM.com! Posts: 4	Re: Son's Surgery Reply #5 - Jan 17^th, 2011 at 2:50pm The surgery went well and my son is doing excellent! Recovery has been much easier than we anticipated. Thank you to Dr Scott and Dr Smith and all of the wonderful staff at Boston Childrens Hospital.
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yunnanababy Experienced Poster Offline My daughter had her surgeries in October 2009 Posts: 137 Indianapolis, IN USA Gender:	Re: Son's Surgery Reply #6 - Jan 17^th, 2011 at 3:47pm That's great news Chantale! Best wishes for your son's continued speedy recovery. Jenn
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Little Luca Senior Poster Offline Whatever it takes Posts: 346 Somerset West, South Africa Gender:	Re: Son's Surgery Reply #7 - Jan 18^th, 2011 at 5:53am Great news, thanks for the update. The swelling can be a bit frightening, but will subside soon enough. Wishing your son goes from strength to strength. Mark (Luca's Dad)
Back to top	1st stroke in September 2008, age 10 months Bi-lateral mm diagnosis 2nd stroke in November 2008, age 1 year old Left side surgery in December 2008 13 years on now Doing just great! IP Logged

brittany D New Poster Offline I Love MM.com! Posts: 3	Re: Son's Surgery Reply #8 - Apr 2^nd, 2011 at 6:22am Hi, I'm Brittany...I'm 13 and i was diagnosed about a month and a half ago. My operation is going to be may 17, 2011...4 days before my 14th birthday...
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bt313131 New Poster Offline I Love MM.com! Posts: 21 anchorage alaska Gender:	Re: Son's Surgery Reply #9 - Apr 4^th, 2011 at 4:07am what kind of opperation ? maybe you could talk to bryanna my 12 yr old she has moyamoya also it has been hard for her may be you can help each other
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hillary Senior Poster Offline My daughter Holly has MM Posts: 340 new braunfels, USA, usa, 279, 285, TX, Texas Gender:	Re: Son's Surgery Reply #10 - Apr 5^th, 2011 at 12:03am Hang in there Brittany, you can do it. I know it doesn't seem like it now but it will be a wonderful birthday for you and many more after that. My daughter is 16 and has MM since she was 9 when she had her surgeries. Where are you having them done at? Hillary
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brittany D New Poster Offline I Love MM.com! Posts: 3	Re: Son's Surgery Reply #11 - Apr 9^th, 2011 at 3:56am yeah im having the operation in syracuse Ny
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brittany D New Poster Offline I Love MM.com! Posts: 3	Re: Son's Surgery Reply #12 - Apr 9^th, 2011 at 3:59am Thanks alot...i wouldnt be able to live with with this disease if i was little...expecially the headaches that i have.
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mg12061

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Posts: 946
Albany, USA, usa, 492, 84, NY, New_York
Gender: female

Re: Son's Surgery
Reply #13 - Apr 9^th, 2011 at 9:09am

Brittany, I agree this birthday will be one a many more healthy happy Birthdays. Stay strong and we will keep you in our prayers for a successful surgery and uncomplicated recovery. We live in NY also. My daughter was 5 when she was diagnosed and had surgery in Boston. She's just turned 14 and has had no new strokes. We celebrate every birthday thankful that she the year has been stroke free.
Mary Grace

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