I really wasn't worried until I read new post in the Guest Book. "Rachel" was a young girl who posted her story. The first sign of her moyamoya was numbness in two fingers. It really hit me because just a couple of weeks ago my oldest daughter(she's 23) showed me her pinky and ring finger, they were both white and numb they had been numb for a while and it's not the first time. In the past she had complained about her toes getting numb when she was exercising.(we've blamed it on her sneakers)  I know it's very rare to see MM in  2 people in the family so I'm not sure if I should  just watch her or should I be worried. I don't want to get her nervouse for no reason. She's in her first year of law school right now and very stressed. I haven't seen any other things that would point to MM at all, no headaches.  Does anyone else remember their first signs being  this vague? If so how did it progress? Kathleen's first signs were more severe and easily seen as a problem.KWIM?
Mary Grace

Numbness and/or paralysis after hyperventilation is a specific symptom of MM. My daughter and I both experienced this. We both have MM. Ours was not so "vague" however. She could not stand on one leg and I would go completely limp on the left side but it happened for the both of us after hyperventilating. eg. playing the clarinet or blowing up a balloon. Hope this helps and I wish you the best.
Russ