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DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	Moyamoya sufferers meet! Apr 27^th, 2011 at 6:48pm Join us in Phildelphia for the 2011 Moyamoya.com Gathering. Check out the details here: http://sharisspace.webs.com
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momkaren

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I Love MM.com!

Posts: 126

Re: Moyamoya sufferers meet!
Reply #1 - Apr 28^th, 2011 at 2:25pm

I just tried to register for the gathering and the system will not let me. I went to adult reg, typed in my name and hit add to cart, but nothing happened! Can I register and pay the day of the gathering? Or, Is there somewhere I can send my payment? I live in South Philadelphia, very close to the Crowne Plaza.

Thanks
Karen Sferra

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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Moyamoya sufferers meet! Reply #2 - Apr 28^th, 2011 at 6:27pm Hey Karen! I got your other message from the event website. Just wanted to let you know I'm looking in to it and I'll let you know. (By the way - I live just outside Philly!!) -Shari
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Moyamoya sufferers meet! Reply #3 - Apr 28^th, 2011 at 6:33pm Karen - I just tested it and had no problems. I just sent you a private message. But first thing I would try is deleting your temporary internet files. Then log back in and try again. I don't know how how familar you are with computers, so if you need instructions please let me know. Thanks! -Shari
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KTiller

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Posts: 355
Freeland, USA, usa, 51, 28, WA, Washington
Gender: female

Re: Moyamoya sufferers meet!
Reply #4 - Apr 30^th, 2011 at 9:58pm

Hi Shari,
I can't book an airline ticket from Seattle to Pittsburg using my many saved airline points - didn't realize that these non-paid seats were so limited. I've already paid the registration fee. Can my registration be given to another? If so, it's available to any who can use it. Sorry I won't be able to be there. It's sure to be a spectacular event.
Kim

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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Moyamoya sufferers meet! Reply #5 - May 1^st, 2011 at 10:42am Hey Kim - I sent you a private message...are you looking for flights to Pittsburgh or Philly? You definitely want to fly in to Philly (PHL) - Pittsburgh is a 5 hour drive from Philly! -Shari
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DJ

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Been there, done that...

Posts: 721
Wichita, KS
Gender: male

Re: Moyamoya sufferers meet!
Reply #6 - May 4^th, 2011 at 8:00am

The deadline for registering for our 5th annual Moyamoya.com gathering is fast approaching. Room reservations for the Crowne Plaza must be made by May 17th, and Gathering registration must be completed by June 1st, 2011 so please don’t delay.

If you have ever considered meeting another person with Moyamoya disease, THIS would be the perfect opportunity to get it done. PLEASE consider joining us to share that common bond that only a rare malady such as Moyamoya can offer. As one of our family, Shane once said, “What an amazing trip our MM gathering was. I can’t begin to tell you all how many great memories I have of this past week, meeting new MM friends, seeing old MM friends. I think one of the greatest things is honestly seeing just how far and what great strides each one of us has had with this disease. To see how well each one of us is doing is such a blessing.”

More information about the Gathering, to include hotel reservation and Gathering registration can be found here: http://sharisspace.webs.com

More information about the experts that will be joining us can be found here: http://www.moyamoya.com/MoyamoyaPressRelease.doc

Don’t forget, room reservations must be completed by May 17, 2011 and registration must be completed by June 1st! Don’t let this incredible opportunity to share with other Moyamoya patients pass you by!

Hope to see you there,

DJ and the Moyamoya.com team

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Adversity does not build character... it reveals it... I help my neighbor and my neighbor helps someone else. Life is a wonderful circle!

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mg12061

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Posts: 946
Albany, USA, usa, 492, 84, NY, New_York
Gender: female

Re: Moyamoya sufferers meet!
Reply #7 - May 4^th, 2011 at 10:04am

I'm so hoping to make it this year since it's so close to us.(NY) Just trying to figure out the finances. We may not be able to stay the night but may be able to get there for Saturday morning for the day. I'm soooo excited to meet osme of the MM family!! And ofr you all to meet Kathleen! Just wondering,is the registration fee still the same no matter how many days your there? We will be 3 adults kathleen myself and my husband.
Mary Grace

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hrsridermom Senior Poster Offline mother of 19 yr old daughter with MMD Posts: 292 Tampa, USA, FL, Florida Gender:	Re: Moyamoya sufferers meet! Reply #8 - May 4^th, 2011 at 12:37pm I just tried to register too...no luck. It also won't let me upload a photo. Oh well...I'll try again later. Donna
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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Moyamoya sufferers meet! Reply #9 - May 4^th, 2011 at 5:56pm Donna - What happened when you tried to register? Same thing that happened to Karen? Mary Grace - Yes, it is the same price no matter how many days. -Shari
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