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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › 1 yr after surgery ans still having probs any help

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1 yr after surgery ans still having probs any help (Read 3037 times)

bt313131

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I Love MM.com!

Posts: 21
anchorage alaska
Gender: female

1 yr after surgery ans still having probs any help
Jun 15^th, 2011 at 2:27pm

well i have post on here before but my daughter has had the edas surgery and now she is having problems passing out alott and being out for 30 min or more i think they look like tias is there any thing you can do for tias and now her leg get all stuck and stiff for like 3 hr s at time and the er says there is nothing you cna do and wont have the nuro come cause he is the only peds one in alaska
just at the end of my knoleage any help will be blessed and welcomed

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Becky

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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
Gender: female

Re: 1 yr after surgery ans still having probs any help
Reply #1 - Jun 17^th, 2011 at 1:29pm

Welcome to the family. You cane to the right place to ask questions.

I am sorry to hear you daughter is not doing well. Those issues look like the EDAS may not have been enough to give her the blood supply she needs, but I am not a doctor or a MM specialised nurologest.

I have a few questions for you:
Did she see a Moyamoya expert nurologest before the surgery?
Did they do a test that tells them how well the blood was flowing?
Has she had a 3 month post surgery Angio?

I will add her to my prayers. I hope she feels better soon. keep her well hydrated and well rested.

Please keep us posted.
Becky

What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

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2x2709 New Poster Offline I Love MM.com! Posts: 7	Re: 1 yr after surgery ans still having probs any help Reply #2 - Jun 19^th, 2011 at 11:28pm I hope your child feels better soon. I dont post much but where are you located? Was EDAS the only option as opposed to the bypass? Perhaps you can send your medical file to Stanford.
Back to top	« Last Edit: Jun 19^th, 2011 at 11:29pm by 2x2709 » IP Logged

lotsofkids MM.com Benefactor Offline Moyamoya...Oh boya boya! Posts: 333 Akron, USA, usa, 421, 123, OH, Ohio Gender:	Re: 1 yr after surgery ans still having probs any help Reply #3 - Jun 22^nd, 2011 at 1:03am I am so sorry to hear your story. Do seek professional help with the Neurosurgeon that did your child's surgery. (as well as a second opinion!) It is concerning and certainly frightening to lose consciousness. I will keep you in my prayers.....keep us posted Diane
Back to top	Hmmm....seems I'm kinda "special" LOL IP Logged

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