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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › RE-Check's

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RE-Check's (Read 2865 times)

cheri New Poster Offline I Am the Captain of my ship, The Master of my soul Posts: 25 Rock, USA, usa, 365, 69, MI, Michigan Gender:	RE-Check's Aug 2^nd, 2011 at 6:59pm I had my STA-MCA Bypass at Stanford with Dr Stienberg. I had a three year re-check. What is "standard" after that? Thanks!
Back to top	« Last Edit: Aug 2^nd, 2011 at 7:00pm by cheri » When the world says "Give Up", HOPE whispers....."Try One More Time"! IP Logged

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LA Senior Poster Offline Moyamoya survivor since 1999! Posts: 334 Kneeland, USA, 15, 113, C Gender:	Re: RE-Check's Reply #1 - Aug 3^rd, 2011 at 12:19pm Cheri ~ 'Standard' is different for everyone. Best to call or e-mail that question to Dr. Steinbergs staff ~ Teresa Bell-Stephens, RN. Good going and congratulations !!!
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cheri

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I Am the Captain of my
ship, The Master of my
soul

Posts: 25
Rock, USA, usa, 365, 69, MI, Michigan
Gender: female

Re: RE-Check's
Reply #2 - Aug 4^th, 2011 at 3:52pm

Thanks for your info....my by-pass surgeries were the 1st and 8th of Feb 2006. I have doing great and my 3 year follow up showed Great images as before surgery I had no Middle cerebral arteries in my brain. From the circle of willis it was as though they never exisited! What are the stat's of the STA-MCA bypass procedures? When was the first one done? I don't want to bother Dr Steinberg as I know he is a very busy Doctor. Just want to know what to expect.

When the world says "Give Up", HOPE whispers....."Try One More Time"!

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STrantas

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MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: RE-Check's
Reply #3 - Aug 4^th, 2011 at 4:15pm

cheri -

We always stress on this website that everyone's cases are different - regardless of which doctor they go to. Even people seeing the same doctor have different plans for follow-ups. I think this is something you really need to discuss with Dr. Steinberg. We can certainly share our experiences, but again, each person is different.

I had my surgeries with Dr. Scott. I think all of his patients at least have a standard 6-week post-op checkup and then again after one year. After that - depends on the patient and how they respond to surgery. I was told I didn't need to go back unless I become symptomatic. Other patients of Dr. Scott's are seen on a yearly basis.

So you can see everyone's experiences are different. I think the better question to ask is - what is your experience with follow up?

Did Dr. Steinberg tell you any specifics after your last appointment? I believe you can also email him - or as Linda said, contact Teresa Bell-Stephens.

Just my opinion...

-Shari
-Shari

A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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DARCI

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salina ks
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Re: RE-Check's
Reply #4 - Aug 8^th, 2011 at 8:56am

I had my surgery with Dr Steinberg as well May 13th 2009 i went back after 6mths in Novemeber and was told i have to have a yearly ct scan at home and then go back to Stanford every 3 years to have all the test done again I just assumed this would go on forever which is ok with me to make sure everything keeps functioning as it should hope this helps a little bit but sending a quick email wouldnt hurt either
Darci

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Becky

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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
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Re: RE-Check's
Reply #5 - Aug 8^th, 2011 at 12:29pm

cheri,
It is true that everyone is different. My nurologest had a one month, six month, year, then 2 year, now it is every 5 years. He still keeps tabs on me through my "as needed" migraine perscription and he calls me if i refill the medication too fast. He has me keep a journnal of my symptoms but if the symptions seem in any way strokish then I need to call him for an appointment. But I am very stable after the surgery so he just wants to keep a eye out for the progression (if any).

I would bother Dr.Stineberg's team with those kind questions. You need to know what you specific MM treatment is.
just my opinion,
Becky

What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

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