We are very excited to announce that the 2012 Moyamoya.com Gathering will be held June 21-24, 2012 at the Great Wolf Lodge located in Kansas City, KS.
Great Wolf Lodge is located on the Kansas side of Kansas City. It is one of the premier water park resorts in the country with locations in 11 cities around the country and a fantastic place to have a family get-away. You can view more at the Great Wolf website (http://www.greatwolf.com/kansascity/waterpark) and view a .pdf brochure by Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

. All of the Great Wolf rooms are suites and sleep at least six (6) people. You can view a .pdf of the floor plans by Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

.
We will be offering a full breakfast buffet Saturday morning and a Kansas City BBQ buffet for our main Gathering function Saturday evening. Both menu's are listed later in this post.
Room rates will be $129 Thurs-Fri, $149 Sat and $129 Sun. Five (5) water park passes are complimentary with the price of the room. Additional rooms Tue-Wed (pre-event) and Mon-Tues (post-event) will be available at the group rate of $129.
Gathering registration is offered for both adults (ages 12 & up) and kids (ages 4 to 11) in two different categories: "full registration" and "meal only". Full registration includes an official 2012 Moyamoya.com Gathering t-shirt and a souvenir goodie bag with Moyamoya.com and other items ($75 adults/$50 kids). Meal only registrations include the Saturday buffets only ($55 adults/$30 kids). Alcohol will be available via a cash bar for the Saturday evening buffet.
Note:
You
MUST register for the event (with or without meals) to be part of our weekend. We will be handing out tickets which will need to be turned in at the door of the meeting area for food and for Dr. Mileciwz's presentation.
Room reservations and Gatheirng registration must be made separately.
Room reservations: Room reservations can now be made by calling the Great Wolf Lodge at 1-800-608-9653. You must identify our Moyamoya group by giving the reservation specialist our group code:
1206moya.
Gathering registration: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

must be made through the Moyamoya.com store Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

. Choose the age specific and type of registration and add to your shopping cart. Registrations can be made using any major credit card or your PayPal account.
Great Wolf Lodge is located in a growing area of the city with many exciting attractions. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

, Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

, Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

, Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

, Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

baseball stadium, Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

soccer stadium, Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

and countless restaurants including the exclusive Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

are all located within ONE mile of the Lodge.
BREAKFAST BUFFET MENU
- Seasonal Sliced Fresh Fruit Display
- Fluffy Scrambled Eggs
- Hickory Smoked Bacon
- Sausage Links
- Breakfast Potatoes
- Assorted Breakfast Pastries and Muffins
- Assorted Chilled Juices
- Regular and Decaffeinated Coffee, Tea and Milk
DINNER BUFFET MENU
- Fresh Green Salad with Toppings and Dressings
- Potato Salad and Coleslaw
- House Smoked Brisket
- House Smoked Chicken
- Barbecue Pork Ribs
- Baked Potato Bar with Cheddar Cheese, Sour Cream, Bacon Bits and Scallions
- Corn on the Cob or Seasonal Vegetable
- Kansas City Style Baked Beans
- Fresh Sliced Watermelon
- Apple Cobbler
We hope you will be able to join us in 2012 for our most exciting Gathering yet!
Register here: http://www.moyamoya.com/khxc/index.php?app=ccp0&ns=catshow&ref=registrations
Jan 5, 2012 - I am VERY excited to announce that Dr. Dianna Milewicz and her team will be joining us again this year in Kansas City! You may remember that her and her team visited with us in San Antonio in 2007 when they had just started their research.
Dr. Milewicz and her team have made some very important discoveries recently including information about possible medical therapies to prevent or reverse the disease! That's HUGE!! Here is a quick highlight of this exciting news:
"Moyamoya disease can occur in more than one member in a family, suggesting that alterations in genes causing Moyamoya disease may be passed through families. Dr. Dianna Milewicz, Director of the Division of Medical Genetics at the University of Texas Health Science Center at Houston, will discuss the genetic predisposition to Moyamoya disease and talk about the three genes that have been identified to cause this condition. She will address what genetic testing should be done in patients with Moyamoya disease and what the results of this testing means for other family members and their risk to develop Moyamoya disease. Finally, one recently identified gene is beginning to provide information as to the cause of Moyamoya disease and provide information about possible medical therapies to prevent or reverse the disease."Please make plans to join us June 21-24, 2012 in Kansas City for this year's Moyamoya.com Gathering and share in this incredibly exciting information!
Register here: http://www.moyamoya.com/khxc/index.php?app=ccp0&ns=catshow&ref=registrations
See you there!!
DJ