kelly,
Welcome to the family. I am sorry you have to be here but this is the best place for community knolage and to ask questions.

My Nurologest said Stenting is very bad for MM. MM is where your blood vessels walls are very thin. Stents use the walls of the vessels to latch onto so it is not free floating around your body. Since MMers have very thin walls there is not much for the stent to grab a hold of so it may become disloged and free float. The free floating piece of metal  may get loged in something that may be more harmful.

I am very happy you sent your infromation to Stanford. I think there is a MM specialest in Philly. I highly recomend seeing a MM specialest becasue they will be able to determine the right kind of surgery you will need to have to get your bolld flowing properly agian. Yes I said surgery, but don't be scared. Most of everyone on this sight has had one of the revasularzation surgerys themselves or a child or someone they know.

I hope this helps,
Please keep is posted with your progress.
Becky

Welcome,
I to came here looking for answers and hope. I have since had my first STA-MCA bypass at Swedish Hospital with Dr Newell just six weeks ago. I will be having my second in December. Moya moya is a scary diagnosis but, with the right doctor and treatment you can get thru it. This site is a great resource for support and info. I will help in any way I can.
Kim