Some of you may have read my previous thread regarding my wife's MMD battle. We arrived last week to Stanford Hospital for her pre-op testing. She just had her first surgery today (right side) and is doing well. Dr. Steinberg is recommending a second surgery while we are here.

Her blood flow/perfusion has increased 30X after surgery. The nurses, technicians and doctors here are great. After dealing with Johns Hopkins for 2 months I am glad we are where we are. We have been looking for an answer for her involuntary movements which Hopkins could not explain. Dr. Steinberg and his nurse, Teresa, told us they have treat some MMD patients with these symptoms. They are hemibalistic and would go away after surgery.

Dr. Steinberg and his team really live up their reputation. They are true Moyamoya experts and are much more compassionate to their patients. I wished U.S. News would agree because I do not believe Johns Hopkins deserves first in neurology/neurosurgery.

GREAT to hear things are going well Brian!  All the best to you and your wife.  Tell "Gary" I said hello!  LOL

Hang in there...

Thank you all again for all of the encouragement and informative contribution to this board. We just checked in this morning for her second surgery. My wife is even more nervous this time around. I am hopefull she'll pull through like the last. Hopefully, less nausea from the anesthesia and meds.

John, sorry I did not see your post sooner. I am glad to hear your wife is doing well. You are the third MMD patient that I know of that traveled from the east coast for treatment by D. Stienberg this past couple of weeks. We are also in the H.O.M.E apts. I wish you and your wife a speedy recovery and safe trip back home.

She did great for 3 days and had a seizure on the 4th day. The episode lasted about a minute and then she became unconscious. It scared the crap out of me, but I was told that some patients in Dr. Steinberg's series have issues post op on the left.

She was re-admitted to the hospital and stayed 2 nights. 1 night in Clinical Decision and 1 night in G1. They discharged her this afternoon. She had severe pain, headache, and nausea. She's doing much better now, but is showing signs of difficulty with speech and processing thoughts. We were told it's temporary, so I hope she bounces back soon. It's depressing and she's not on anti-seizure medication, Keppra, for two months. The doctors do not believe she will have a seizure again, and that the fluid build-up post surgery may have triggered the seizure. Thanks for asking.