Cheryl,  I can't stress strongly enough...send your MRI results to Dr. Steinberg in CA or Dr. Scott in Boston.  ASAP!  And talk to a neurologist.  You need to talk to someone who is an expert in Moyamoya and there aren't very many of those around.  they can advise you better.

Best of luck to you and keep us posted.
Donna

Last month after my MRI results the neuro opthamologist told me he thought I had moyamoya.  Last week I had an appointment with an interventional radiologist. (I'm still not sure what that means... is he a radiologist, neurologist??).  Anyway, he said he did not think it was moyamoya, but just a carvernous brain lesion or possible brain tumor that has been there a long time.  It's funny to feel relieved to have a possible brain tumor, but I'm thankful that there is not immediate surgery.  I see a neurosurgeon in January and have a second MRI in 4-6 months.

I did want to mention that I saw a story this past weekend on our local news station about a little girl with moyamoya in northern Maine.  The town is raising money for the family and she is having surgery at Boston Childrens.  I wish I know how to attach the story to share...

I wish you all luck and feel a definite place in my heart for all of you and your families.  Thank you for your support!!