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uncontrolable ticks (Read 3029 times)
Nanstev
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uncontrolable ticks
Dec 29th, 2011 at 10:32am
 
Hi, does anybody know what these uncontrolable ticks in my hand, arm are and why I sometimes falle through my left leg? Is that because the blood doesn't reach my brain at that time or is it epileptic?

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mg12061
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Re: uncontrolable ticks
Reply #1 - Jan 4th, 2012 at 9:26am
 
  I just saw that you hadn't gotten a reply so I thought I'd add my 2 cents. I don't really ahve experience with this symptom. I think it would be a good idea to run it past your Dr. It can be  seizuer activity or TIA. Kathleen did have a very "jumpy" leg before one of her strokes so she was put on a seizuer medication for a while. One way the nurses told me you could test if it's seizuer activity is if you can "hold it still" it's probably not. I have no clue how reliable this is. Even if this isn't helpful at least it will bump up your post in case someone missed it.
Mary Grace
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rgrace5  
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Nanstev
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Re: uncontrolable ticks
Reply #2 - Jan 4th, 2012 at 10:12am
 
Thanks for your reply! I have a phone consultation with my doctor in a few, and I will ask him. Am curious about my spect scan with diamox and i will be asking about surgery, because here in Belgium that hasn't been done a lot before. So curious wether they can do that here or wether I'll have to go to anoher country to have these done.
Thank you!
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mg12061
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Re: uncontrolable ticks
Reply #3 - Jan 4th, 2012 at 10:36am
 
   I'm glad you will be talking with the doc. If your Dr. is not a MM specialist, you may want to consult with one of the specialists listed on this site. I'ts pretty easy to get a consult by sending your test results and emailing. I didn't realise that you hand not had surgery yet. What have been your symptoms have you had any strokes or TIA's?
Mary Grace
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rgrace5  
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Nanstev
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Re: uncontrolable ticks
Reply #4 - Jan 4th, 2012 at 1:50pm
 
I was diagnosed a month ago. It started with numbness in my fingers and hand and it got really worse when one night I woke up and felt something under my body. Thought I was laying on a cat of mine so I held up the blanket, expecting the cat to crawl up - I felt on my body somethin was moving up - only to find my hand come from underneath the covers. cared myself because 'that was not my hand' sSo I cold move it, but I didn't realize I had. Went to the DR. but he put it off as stress, but it got worse...to one point i couldn't remember how to tie my shoelaces. Went to see another Dr. and he immediatly knew something was wrong. Sent me to a neurologist and after the first scan, he decided to have a complete check-up during a hospital stay. Then they found the MMD. Had a spect scan taken a month ago and one with diamox last monday the following is the result plus info from the specialist in the Academic Hospital and what I founf out today:
I just wanted to let you know I have the results from the spect scan taken with diamox from monday. It is clear that the right side of my brain doesn’t get enough oxygen. The left side is better and nothing should be done there for now.
Now here in the Academic hospital they have like 2 MMpatients every Month or year (I forgot already, blame it on the MM  ) But it’s certain that they have done those bypasssurgeries before. not   only for MMpatients  but people with other disorders in the brain. Now wether or not to do the surgery depends on how things are going to evolve. They have a patient that had the same complaints as me and who’s been stable for ten years now and they have patienst where the disease progresses really fast. So I just have to see how my body is going to be. do I have lots of complaints? Do they come more ften? Do they last loner or not?  I guess I ‘d better make kind of a diary to write these things down. Now if it doesn’t progress too fast, they will do another spect scan in a few months to see how that right half is doing, is it stable or not. THEN they and I will decide what to do next. Now if it gets too worse in a short amount of time, I’ll hva to go see them faster. For now, I have an appointment with the neuro surgeon on februari 10th, just to talk things over. And because they don'’t do these surgeries in an overnight deciesion, then at least I will have seen the surgeon and he will know about my case.

That’s about it, in short.
I asked him if he saw me working with this. Then he asked me if I saw me working. I told him I did my work at home too, so he told me I can try but ONLY part time! And if my body says stop, STOP!!!! No need to make things worse.

I will be glad if I can get back to work, do normal stuff that normal people do. Yeah, like I’m normal 

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Nanstev
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Re: uncontrolable ticks
Reply #5 - Jan 4th, 2012 at 1:53pm
 
Oh and those tics are a result from the blood not being able to reach some parts of the brain which causes a defect in the area that doesn't get oxygen which is the part that controls my hand and somtimes leg.
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