kalise
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my son lives with moyamoya.
Posts: 36
westernaustralia, Australia, australia, 21, 203, WA, Western_Australia
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Hi Doug, thanks for the message. No, my husband nor myself have moyamoya, mitchell is the only one in the family to ever have any kind of neuro problems. I agree with Strantas, from research i've done there are very few cases of more than one person with moyamoya in the family, and where there is, more often than not it's siblings. I'm not sure how accurate this is, but our neurologist says the chance of a sibling having the disease too, is about one in one hundred thousand. I have only heard one case where a mum and daughter both had it. I understand your concerns about having kids, even when my Daughter gets sick with a headache, it's always in the back of my mind, oh no they're going to tell me she's got it too. It's like living in fear i guess. But doug, PLEASE DON'T let moyamoya stop you from havin kids, they are truely a prcious gift, and you sound like you would make a FANTASTIC Dad. Take Care and stay in touch......Kalise
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