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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › MoyaMoya in CT

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MoyaMoya in CT (Read 2871 times)

alice_moya New Poster Offline I love YaBB 1G - SP1! Posts: 23 west hartford, USA, CT, Connecticut Gender:	MoyaMoya in CT Apr 21^st, 2004 at 4:52pm Hello everyone Just out of curiousity-is there anyone out there who is from the Southern New England area? Particularly, CT? Alice
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donna

New Poster

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jareds mom

Posts: 17
brooklyn, USA, usa, 492, 144, NY, New_York
Gender: female

Re: MoyaMoya in CT
Reply #1 - Apr 21^st, 2004 at 7:39pm

DEAR ALICE
WE ARE NOT FROM CT WE ARE FROM NY BROOKLYN ACTUALLY SO WE ARE NOT TO FAR OFF DO YOU HAVE A GOOD DR IN CT OR DO YOU GO SOMEWHERE ELS MY SON JARED IS A 23 YR OLD DOWN SYNDROME YOUNG MAN THAT NOW ALSO HAS MOYA MOYA HE WILL BE GETING HS FIRST SURGERY ON APRIL 30TH AT COLUMBIA HOSPIAL IN MANHATTAN AS YOU CAN IMAGINE I AM VERY NERVOUS THIS IS LIKE A NIGHTMARE THAT I HAVENT YET WOKE UP FROM I HOPE THAT YOU ARE DOING WELL DID YOU HAVE SURGERY IN AUGUST THERE IS SUPPOSED TO BE A GET TOGETHER IN NJ MAYBE YOU CAN MAKE IT YOU ARE NOT SO FAR STAY WELL AND GOD BLESS
DONNA

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tomg

Experienced Poster

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West and wewaxsation at
wast. What I crave.

Posts: 216
HowellNJ, USA, usa, 499, 119, NJ, New_Jersey
Gender: male

Re: MoyaMoya in CT
Reply #2 - Apr 22^nd, 2004 at 8:22am

8)Hi Donna and alice I just wanted to say to Donna,
CALM DOWN!! Iknow this is a serious situation but Dr. Sander Connolly is the best. Pat M. just came through hers fine and I'm sure that eventually I'll need surgery and Dr. Connolly is my neurosurgeon. Call me any time, 732-938-3038 and give jared a hug, he'll be fine. Don't forget saint Philomena. I know how she helped me.

God bless you both Tom G. Alice I'm in NJ. pretty close. Cheesy

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joeblack357 New Poster Offline I love YaBB 1G - SP1! Posts: 24 Groton, USA, CT, Connecticut Gender:	Re: MoyaMoya in CT Reply #3 - May 6^th, 2004 at 9:00pm Alice My wife has moya moya, and we live in Groton till July at least. Currently she is seeing Dr. Gorhman at Yale in New Haven. A great neurologist who has been very open and willing to answer any questions that we have had. We are not sure if she is a candidate for surgery yet or not, as we just started testing today. Joe
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