Tammy---I am with you on this one, honey.  If it weren' for Dr. Sacco, the neurologist, who properly diagnosed me with mm, and Dr. Connolly, the amazing neurosurgeon who is still in the process of saving my life (2nd EDAS surgery on June 4th), I know that I would not be alive today.....due to the misdiagnosis, if more strokes didn't kill me, the psychosis created by the steroids would have made me kill myself.  I was absolutely unable to bear the thought that I had murdered by 3 beautiful girls and I wanted to die myself......and my pastor can verify this.......Iwill tell anyone my story who wants to hear it.....and, it is all documented by my medical records.....I can no longer obtain life insurance......and, if my husband didn't have medical insurance through his job with the Bergen County Prosecutor's Office, I would have no health insurance coverage......it is a disgrace that there is no system of national health care in this country..the wealthiest country in the civilized world.......So, just let me know who to talk to and when......I look forward to the opportunity to educate the world.......I am totally convinced that there is more mm out there than we are aware of at this time.  HOw many more children have to die before neurologists who don't know about moyamoya will educate themselves?  Be well.  Pat

Tammy i am behind you all the way if you would like to use my story please feel free to contact me{ i still have some copies of medical records sayng i was an incompitant parent} i still look at them  sometimes and remember the time we went through trying to find out what was wrong. i dont know if it is of any importance but when we seen dr. scott he told me i was the first family to come to his office with more than one child to have mmso they are doing a series of test to see if it is genetic cause they didnt think it was till i come along.hope i can be of help god bless.

I would like very much to "overwhelm" (for lack of a better word) the people asking about MM so they get a good idea that it is not so rare (look at all of us on this board) and more research needs to be done about the causes of MM.  I would like information as well on who to contact.  I think the more people who know about MM the better!  Thanks!

-Shari