hi every one i just wanted to ask a few questions i really hope that some one eles has dealt with the same problems because i cant get any answers from any dr. you already know 3 of the kids have mm well jake had the surgery but he had several large strokes before his surgery, well he is mobile now but has a lot of weakness on his right side and he cant eat solid food and he cant talk well he has extremely volient out burst we have been to neuroligst they have tried meds that didnt work we went to psy and they said the only thing they could determine was he was fustrated because he could not put his point across and he is beeing taught sign language but he cant use his hands so we tried switch devices but to me he seems like his cognitive skills are poor because he doesnt respone to the right switch at all times. and this morning the teacher sent me a note and this is what it says. Jacob had a bad day he kept hitting people all day when it was time to go out side he hit another classmate in the face and spent play time in time out. nothing seems to work to make things any better.do you have any ideas. we go through this almost every other week, does any one have any suggestions? please help cause they are treating me telling me if i cant do any thing that he will need to be put in a home so that he doesnt hurt anyone, well i just cant see putting him in a home cause he is my baby, i agree he is hard to deal with but God gave him to me for a reason so there has to be a way.please give me some suggestions.  THANK YOU. and GOD BLESS

sara jake is 6 yrs old he had his first stroke when he was 2mths old and continued to have till he was 8mths when he was dignosed 10 mths when he had surgery and yes the surgery has helped he has not had another stroke since the surgery but he still has seziures real bad but thats because the dr. said a part of the brain was effected so bad that he will have to stay on anti sezuire meds. but he has really come a long way since the surgery. thanks for your support. God Bless

Sandy, What type of school is Jake in?Public or private.Legaly it's up to them to help you find out why this behavior is happening.Has the school had a full behavior analysis done by an expert? I will look through my books to find out what the procedures are for this.There is an e-mail group that I belong to I will get you the address.It is a Pediatric Stroke network.Many parents of children who have had strokes.I know many have dealt with this exact issue.Don't forget I'm just a phone call away if you want to talk.........
Mary Grace

Sandy,  Wow I know exactly how you feel.I have had to fight for Kahtleen every step of the way for proper programing.I spent all of last year fighting to get her out of the self contained room.She is now in Reg. Kindergarden and reading at grade level.She has a special ed teacher who comes to the room for her and a 1-1 aide. There are a lot of things you can do.First know that the law is on your side! You can have an independant evaluation done by a professional of your choice at the schools expense, you can ask for mediation, if your not happy with the school and they can't do what he needs you can have him placed in a private school at the public schools expense,or you can threaten the school with these things and maybe they will get off their buts and do something!I have found it to be a full time job keep my eye on what is going on in school.As I said I will check out the finer points in some of the books I have about the protocol for all of this but don't ever forget that the school is responsible for what ever your child needs!!! This means his physical mental and behaviorial needs, all of these things directly affect his learning.If you want to talk more about this give me a call.Don't appologise for sounding harsh,you have every right.It really makes me angry when i see someone struggling with the school system.Some can be so uncaring.I'll also try and get some web addresses on IDEA laws for you.Hang in there mom your doing an awesome job!!!!
Mary Grace