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meeting others that have moyamoya (Read 3766 times)
hillary
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My daughter Holly has
MM

Posts: 340
new braunfels, USA, usa, 279, 285, TX, Texas
Gender: female
meeting others that have moyamoya
Jun 6th, 2004 at 4:57pm
 
i was thinking over the past couple of weeks about when we met Linda and Jack and Connie and her friend how happy we were to meet them, even under the circumstances.  But i believe the comfort that we all got from each other was wonderful.

I know a few of you on here are headed to Stanford within the next month, and i would love to come and meet you all if i can, I am working for the next 2 weeks, but after that can travel that way just about any time. 

I think its important to meet others, to show them you care, and are there for them as well as any others....it makes a difference.  Linda and Jack came back when holly had her first surgery, and they were there when Dr. Steinberg came out to talk to us...and i am so happy they were, they got to hear the good news with us, and thats something wonderful to share with others. 

Hope to hear back from you all

Hillary
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hillary
Senior Poster
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My daughter Holly has
MM

Posts: 340
new braunfels, USA, usa, 279, 285, TX, Texas
Gender: female
Re: meeting others that have moyamoya
Reply #1 - Jun 10th, 2004 at 3:13pm
 
I know there are a few of you that will be at Stanford or arriving around the same time we will be.  Holly will have her check up on the 28th, I was hoping to meet more from this website before we move, any chance some of you want to get together???

let me know,
Hillary
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David
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Posts: 53
conover, USA, usa, 443, 188, NC, North_Carolina
Gender: male
Re: meeting others that have moyamoya
Reply #2 - Jun 10th, 2004 at 8:28pm
 
I am having my surgeries on the 22nd and the 29th.  I can let you know how it is.
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It's not how much time we have that matters. It's what we do with the time we have.
Farthings88  
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hillary
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My daughter Holly has
MM

Posts: 340
new braunfels, USA, usa, 279, 285, TX, Texas
Gender: female
Re: meeting others that have moyamoya
Reply #3 - Jun 10th, 2004 at 11:09pm
 
at Stanford?
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David
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Posts: 53
conover, USA, usa, 443, 188, NC, North_Carolina
Gender: male
Re: meeting others that have moyamoya
Reply #4 - Jun 11th, 2004 at 9:32am
 
Yes.  I am coming from NC  and my wife is more than a little worried about the surgeries and being by herself.  I am looking for people to keep her company while all this is going on.
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It's not how much time we have that matters. It's what we do with the time we have.
Farthings88  
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janicetedd
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Sister - Patty w mm

Posts: 221
Waterford, MI
Gender: female
Re: meeting others that have moyamoya
Reply #5 - Jun 11th, 2004 at 10:20am
 
David,

I believe there is a library with computers-- the Standord gang can verify this -- but have your wife keep us up to date on your surgeries.  Sending emails from Stanford may also help your wife.

Will keep you in our prayers

Janice
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