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David Junior Poster Offline Posts: 53 conover, USA, usa, 443, 188, NC, North_Carolina Gender:	Looking to hookup with fellow MMers in Stanford Jun 10^th, 2004 at 11:50pm I will be in Stanford from the 15th of June to approx the 8th of July. My surgeries are scheduled for the 22nd and the 29th. I was wondering if anyone else was going to be out there during that time. David
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hillary Senior Poster Offline My daughter Holly has MM Posts: 340 new braunfels, USA, usa, 279, 285, TX, Texas Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #1 - Jun 11^th, 2004 at 9:10am yep, holly and I will be on the 28th
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David

Junior Poster

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Posts: 53
conover, USA, usa, 443, 188, NC, North_Carolina
Gender: male

Re: Looking to hookup with fellow MMers in Stanfor
Reply #2 - Jun 11^th, 2004 at 9:30am

Great. I have read some of your post and am glad Holly did well in her surgeries. It makes you feel better when you read about so many people who have had the surgery and had no problems. I take it that this is a follow up. My wife is a little apprehinsive about the whole thing and not really looking forward to being out there (we are in NC) by herself and I am trying to find people for her to talk with. My second surgery is scheduled on the 29th. How long will you be there?

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It's not how much time we have that matters. It's what we do with the time we have.

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hillary Senior Poster Offline My daughter Holly has MM Posts: 340 new braunfels, USA, usa, 279, 285, TX, Texas Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #3 - Jun 11^th, 2004 at 12:21pm we are just there on the 28th for a follow up appointment, how bout lunch?
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gotchlorine Old-Time Poster Offline Our daughter, Tara, lives with MM Posts: 776 San Jose, USA, usa, 24, 158, CA, California Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #4 - Jun 12^th, 2004 at 2:41pm My daughter Tara is (as I type) upstairs recovering from her second MM surgery. We live w/in 20 miles of Stanford and will make every effort to come visit. Please let me know if you have any questions. Campbell MacInnes
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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #5 - Jun 12^th, 2004 at 4:14pm Thats so awesome of you Campbell thats what its all about support. Thumbs up to you and your family. Nancy
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gilberttl Junior Poster Offline I love YaBB 1G - SP1! Posts: 75 Lewisville, USA, usa, 285, 247, TX, Texas Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #6 - Jun 12^th, 2004 at 4:22pm Hey! I am heading out to Stanford tomorrow morning. We will be out there from the 13th -17th for my follow-up. I have tests scheduled for Mon,Tues, and Wed. Send me a message if you'd like to meet up! I'd like to meet others! Tricia (gilberttl)
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Mar Ex Member	Re: Looking to hookup with fellow MMers in Stanfor Reply #7 - Jun 12^th, 2004 at 4:35pm Have a safe trip Tricia and good luck with your follow up. That would be so cool if you could meet and comfort one another while you're there. I'm so touched by seeing all this support. This is really what it's all about. Thanks "all" for making me feel so proud to be apart of this mm family!
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CmolikB New Poster Offline I love YaBB 1G - SP1! Posts: 14 Coquitlam, Canada, canada, 68, 368, BC, British_Columbia Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #8 - Jun 12^th, 2004 at 7:04pm David I will be having my surgery done on the 23rd of June and if you like I would like to meet. I will be staying there from june 21st to perhaps july 1st if everything goes to plan. Brent
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David Junior Poster Offline Posts: 53 conover, USA, usa, 443, 188, NC, North_Carolina Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #9 - Jun 12^th, 2004 at 10:24pm That would be great. My first surgery isn't until the 22nd. I don't have anything scheduled (yet) on the 17th and 18th so may do a little site seeing.
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Nancy_N.

Old-Time Poster

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My daughter Mandy Has
Moyamoya

Posts: 664
Jasper, USA, usa, 436, 230, GA, Georgia
Gender: female

Re: Looking to hookup with fellow MMers in Stanfor
Reply #10 - Jun 12^th, 2004 at 10:32pm

David,
If you have time go to San Fransisco to Fishermans warf its less than an hour about 45 mins. Its neat if you never been there, there is all kinds of shops and resturants and tons of seals that are neat to watch climbing all over each other on big wooden pallets floating in the water. Lombard street the crookedest street in the world or country or something. Ride the trollies or some say cable cars. Just some ideas.
Nancy

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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #11 - Jun 12^th, 2004 at 10:34pm Sorry Deej I thought I was in jibber jabber... my bad. Nancy
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David Junior Poster Offline Posts: 53 conover, USA, usa, 443, 188, NC, North_Carolina Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #12 - Jun 12^th, 2004 at 10:35pm Thanks for the advise.
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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #13 - Jun 12^th, 2004 at 10:45pm SURE
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LA

Senior Poster

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Moyamoya survivor since
1999!

Posts: 334
Kneeland, USA, 15, 113, C
Gender: female

Re: Looking to hookup with fellow MMers in Stanfor
Reply #14 - Jun 13^th, 2004 at 1:26pm

Hi~
This is so heartwarming.
I never realized how important it is to meet other mmers until my husband Jack and I went to Stanford recently for a follow up. I had a stroke in 00, surgery in 01 with Steinberg, then another stroke in 01. Now I'm more or less ok (funny how the standards change!).
We arranged to meet with Hillary, Holly and Linda while we were there. Also Connie and Jarred. There's a photo of us all on the photo page. Until then I hadn't realized how solitary and alone Jack and I were as we went along this strange mm path. Hillary was wonderful about sharing her family with us, and her knowledge about mm, life in general and her love. I think we immediatly bonded as an mm family. Connie joined us at Stanford for a heartfelt meeting, and has added her spirit and love. Imagine, three mmers in one place!!! I am thankful for that meeting, for these wonderful people, and for the oppertunity to receive and give support.
Being with eachother is the greatest gift we can give.

LA (Linda)

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Linda (LA)

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connie1

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Posts: 45
Union City, USA, usa, 24, 155, CA, California
Gender: female

Re: Looking to hookup with fellow MMers in Stanfor
Reply #15 - Jun 16^th, 2004 at 1:09pm

David, Tricia and Brent,

I'm in the bay area-20 minutes from Stanford. I am available almost every day-so if you can please send me a personal message with your contact information and maybe we can coordinate something?

Best,
Connie

P.S. Hillary-when you are in town-can you give me a call so that I can possibly come by for a visit?

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hillary

Senior Poster

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My daughter Holly has
MM

Posts: 340
new braunfels, USA, usa, 279, 285, TX, Texas
Gender: female

Re: Looking to hookup with fellow MMers in Stanfor
Reply #16 - Jun 16^th, 2004 at 1:46pm

Campbell, David, Connie, and Brent

Do you think you will all be able to meet on the 28th like around 1:30-2:00pm at the cafeteria. Holly's appointment is at 11:15, and its a work in so we might be there awhile.

Would love to meet you all, and anyone else as well...just let me know, i'll send you our phone numbers

Hillary

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Kristina New Poster Offline I have moyamoya Posts: 31 San Antonio, USA, usa, 258, 275, TX, Texas Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #17 - Jun 16^th, 2004 at 11:03pm I too will try to meet up with all of you during that time. I have my first SPECT tests on that day after my angio but will make every effort to meet with all of you. Sincerely, Kristina
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David Junior Poster Offline Posts: 53 conover, USA, usa, 443, 188, NC, North_Carolina Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #18 - Jun 18^th, 2004 at 12:02am That should be good. That is the day before my second surgery and right now I dont have anything scheduled.
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Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: Looking to hookup with fellow MMers in Stanfor Reply #19 - Jun 18^th, 2004 at 12:13am That is just so awesome that you guys are all getting together and there are some MMer's getting together as I type it really is amazing, this is truly is a new family we have formed..........absolutely amazing! Nancy
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