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Moyamoya.com Forum › Moyamoya Related Topics › Moyamoya Related Information and Support › Thank You, Rena and Mar

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Thank You, Rena and Mar (Read 5506 times)

hillary

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My daughter Holly has
MM

Posts: 340
new braunfels, USA, usa, 279, 285, TX, Texas
Gender: female

Thank You, Rena and Mar
Jun 15^th, 2004 at 3:18pm

Rena and Mar

Thank you both very much for your help today, I really appreciate it. Jolie from Stanford called while I was talking to you both so I had to leave real quick. Anyway, she is getting ahold of the oncall Neurosurgeon to see what he says. The concern was because it was much worse then all the others except for one that happened in feb. She has only had to TIA's since surgery, the first was very mild.

For everyone else that doesn't know whats going on....Holly called my mom from school today and said she was tingling in her fingers, hand, and up to the elbow, then around her shoulder (all on the right side-the better side) then all around her mouth and up the side of her nose, her right fingers were curling on their own, she was very pale, and is now tired from all of that. Needless to say, I got to school very quickly and picked her up, she is now home with my mom waiting on the doctors to call. It gave me a scare, because her hand has never curled before, and this is only the second time around her mouth, and second time on her right side.

Anyone else have info on this?

Hillary

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LA Senior Poster Offline Moyamoya survivor since 1999! Posts: 334 Kneeland, USA, 15, 113, C Gender:	Re: Thank You, Rena and Mar Reply #1 - Jun 15^th, 2004 at 3:50pm Hillary~ Sending love to Holly, you and Linda. In our hearts and minds we are holding you close. Love, Linda and Jack
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PatM Experienced Poster Offline Posts: 229 Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey Gender:	Re: Thank You, Rena and Mar Reply #2 - Jun 15^th, 2004 at 5:19pm praying for Holly.........she is in our thoughts and prayers.....She will be okay........I pray without ceasing......God Bless...PatM
Back to top	"A life is not important except in the impact it has on other lives."...Jackie Robinson&&Worry looks around....Faith looks up...... IP Logged

DJ YaBB Administrator Offline Been there, done that... Posts: 721 Wichita, KS Gender:	Re: Thank You, Rena and Mar Reply #3 - Jun 15^th, 2004 at 5:30pm Hillary, I also had several small TIA's up to several months after each of my surgeries. Still have the occasional one or two... nothing too serious and nothing permanent, but I definately keep track of them! Hope Holly is doing better........
Back to top	Adversity does not build character... it reveals it... I help my neighbor and my neighbor helps someone else. Life is a wonderful circle! IP Logged

Nancy_N. Old-Time Poster Offline My daughter Mandy Has Moyamoya Posts: 664 Jasper, USA, usa, 436, 230, GA, Georgia Gender:	Re: Thank You, Rena and Mar Reply #4 - Jun 16^th, 2004 at 4:45pm Hillary, Mandys hand is curled up but because she had so many severe strokes before diagnosis but is getting better. Nancy
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Rena Senior Poster Offline Hi, My son Tyler was diagnosed with MM in 2003 Posts: 467 , Colorado, USA Gender:	Re: Thank You, Rena and Mar Reply #5 - Jun 17^th, 2004 at 9:20am I am glad I was able to help. I know just how scary it can be, watching your child go through this and feeling helpless. Your whole family is in my prayers. Rena
Back to top	I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&& IP Logged

STrantas

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MoyaMoya Survivor Since
2003

Posts: 1154
Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
Gender: female

Re: Thank You, Rena and Mar
Reply #6 - Jun 17^th, 2004 at 9:34am

Hi Hillary -

Sounds like Holly and I had similar experiences. My hand never curled, but I had the same TIAs in the same places as her. Yes, it was scarry - especially due to the fact that I couldn't speak at the time - aphasia again. This was pre-surgery though. I actually keep a journal of my TIAs...kind of strange, but it helps to notice patterns if there are any. I write down the time it happened, what I was doing, and how long the TIA lasted. My thoughts and prayers are with you and Holly.

-Shari

A smile is contagious...start an epidemic!
Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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David

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Posts: 53
conover, USA, usa, 443, 188, NC, North_Carolina
Gender: male

Re: Thank You, Rena and Mar
Reply #7 - Jun 17^th, 2004 at 8:19pm

I hope Holly has recovered from her TIA by now and is doing better. This is a scary thing we are all dealing with. All we can do is put it in God's capable hands. You had mentioned possibly doing lunch on the 28th. My second surgery isnt until the 29th so everything should be good. I will look for you in the cafateria around 1:30. Let me know if anything changes. I'll be the bald guy with the big scare on his head.

« Last Edit: Jun 18^th, 2004 at 12:09am by David »

It's not how much time we have that matters. It's what we do with the time we have.

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connie1 New Poster Offline Posts: 45 Union City, USA, usa, 24, 155, CA, California Gender:	Re: Thank You, Rena and Mar Reply #8 - Jun 19^th, 2004 at 2:08pm Hi Hillary, I hope that Holly is doing much better. As others, I also send warm thoughts and hugs to her and your family. Love, Connie
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