Kalise------I know that you are so anxious about Mitchell....Prayer can be a powerful resource for reframing your situation.........Prayer also enlarges your perspective by letting you open yourself to God's influence..........in this way, God's encompassing vision can enter........We will hold Mitchell close to our heart and prayer for him......is there any chance that they can do the neccesary tests sooner than August?  God Bless you and your beautiful little boy.........PatM

Hi Kalise!

Good to hear from you but not so good news. I think I know excactly how you feel, you probably want to tear this doctors office down completely if he doesn´t do something NOW!!!! Why MRI in August? Why not in June? Could Mitchell have his MRI somewhere else? Is it the same doctor who did surgery on him years ago and when was that?
In order to speed up things for Louise a couple of years ago I would keep calling and e-mailing both the hospital in Stockholm and Dr. Scott for an opinion. Also Louises doctor received an e-mail from Dr. Scott.  When I hear about you and Mitchell I realize we were very lucky.
How can they possibly send you home to wait for an MRI in two months?
I say, go get them again and show them you´re a red-file-parent!!!!
If the doctor knows anything about MM he also knows that waiting could make a horrible difference for Mitchell and thats not doing everything they can. Where did his "doctors-ethics (sp?) go?????
Sorry Kalise for going on like this but it just makes me so angry to hear how they treat you.
In Sweden the law says that if your condition cannot be treated in a satisfactory way within the country the patient has the right to, without any costs, be treated else where. Are there any such laws or insurances in Australia?
Go for it Kalise!
Good Luck and Take Care!!!!

Annica

Hi Kalise -

I am so sorry to hear about the struggles with Mitchell's neuros.  I agree with everyone - you must fight!!!  Does Mitchell take any meds?  The only advise I can give you is to make sure Mitchell is drinking plenty of fluids.  Keep hydrated!!  Please keep us posted and we are praying for Mitchell! 

-Shari

Kalise,

Several things...I was at the Mayo in Rochester, Minnesota for the SPECT testing (two days in a row)...Dr. Fredric Meyer wanted to do the cerebral angiogram and a MRI as her latest angiogram and MRI was almost 18 months old and the SPECT testing results didn't really match.  We were able to get both those scheduled the next day.  The MRI confirmed that the "spells" my daughter has had the past 18 months were TIA's...TIA happening on both sides of her brain.  When she had her first MRI when she was 2 1/2...no sign of a stroke but her movements on her left side was like a person that had a stroke (my dad has had many strokes and TIA's but not MM..so am familiar with what stroke does).  Today is my first day posting so when I read your post....waiting two months...I would be SO frustrated if my daughter had to wait that long...she is six now.
BUT...since you are from...England (right ??) as I see the flag on your post...I am not familiar with their healthcare...but I had a cochlear implant over a year ago and was on a website...many people from Canada had several months wait for the MRI, too...and several years wait for the implant operation (Yes I am deaf)..but that tells me maybe your country has a routine plan for healthcare of some kind if you have to wait that long.
Will keep Mitchell in our prayers.  Has he had any other tests yet...like MRA, Angiogram (doesn't sound like he has any yet)...his neurologist sounds like Cara's neurologist and neurosurgeon (has done 30 mm operations) but his comment looking at my Cara's MRA was...still doesn't have the classic signs of MM, normally when we see a MRA...the top arteries are gone (not exposed on the MRA.  They didn't bother to do the MRI which would tell if her recent "spells" were TIA's...this was in March 2004.  We had a mutual connection with someone at the Mayo in Rochester, Minn...so decided when school was out for Cara (kindergarten)...we'll take her and get her looked at which was last week....after 3 1/2 years of "not sure if she really has MM"..."still an early stage of MM"....the Mayo confirmed it after they ran the MRI and angiogram which showed 100% blockage of the right side arteries and the left side has been supplying the right side some blood which has prevented Cara from (so far) having a major stroke yet.  She hasn't had a spell since March...and no longer flinches her left arm....But after the report from the Mayo, and sending it to her neurologist at Phx Children's Hospital...he immediately called us to say...it is time to have the operation.  I would "continue to follow up", keep track of his "spells" and get second, third opinions if you can, too.

you have my prayer,

Carol