Nothing on a serious note, but I would like to know what your doctors have recommended about exercise.  My wife loves to swim, but it is possible that it could not be in her best interest to expose here head to different levels of pressure.  Anything you all have learned over the years from jogging, weights, aerobics, jump rope, hopscotch, etc.  My wife (neurologist says he can only think of treating here like stroke victims, but is unsure, because she is in perfect health and the lack of information about MM) wants to join a gym, but we do not want to join and become obligated under contract if she is very limited in what she can do.  Those gyms are like the mafia when it comes to getting out of a contract.

Thanks

Wayne

Hi Wayne.

Before Cara's first surgery...I expressed concern that any heavy exercise would bring on a "spell" or "TIA"...I asked her pediatric neurosurgeon repeatly over a 3 year period (at that time they "thought she might have MM" but not sure "yet")...he said "let her be"...you cannot keep a child still.  So watching her I am amazed because...if she feels weak...she stops and rests anyway...I make sure everyone knows she needs to be hydrated all the time (most important thing)...and just enjoy the exercise, sport or whatever as much as your body can take it but "stop" if something doesn't feel right.   I even read somewhere that a simple sneeze, cough can set off a "spell", too.   Not a bad idea to print out "what is MoyaMoya fact sheet"...ask the club you want to join, or explain to them your wife's condition and see what they say.  Because I got a break for something that was really for the "hearing"...(lot of listening devices)  I asked how am I going to benefit if I am deaf can't hear but still want to do it.   Maybe they have a limited membership...temporarily...until you know the further outcome of the MM impact on your wife..we never know...but exercise is ALWAYS a positive thing if done properly anyway.   Like on poster, I think it's Lisa who is a regular runner and her doctor said her running did help her (in fact probably saved her life).  I think swimming would be AWESOME exercise and treadmill - fast walking would be great...as long as not bobbing the head.  The weights (not to heavy though) would be great too...especially for women in later years...strengthen the bones.  She would have a lot of use for a club membership...I have seen people in wheelchairs get the most out of it, too.

Tight Hugs,  CarasMOM.

Thank you all for your advice.  Jill, water polo!!!!!!!!!  Wow.  My wife could not handle that sport without MM.   That is certainly good news and she is happy to hear that swimming is a possibility (doctors order first). You make good points also CarasMOM and Roselyn. I will tell my wife to watch those signs and let her enjoy life.  But now I can push my Neurologist to pursue this info.  Don’t get me wrong He is a good doctor and teaches neurology at UCLA, but he is not a Neurosurgeon, which are the people with the most MM experience.  It is hard to get time with Neurosurgeons, because they are always so busy.   

Thanks so much

Wayne