Lynne-
Out of the restrictions you listed, the only one I was given after my surgery in November was not to wear glasses that press against my temple area.  I actually had a bit of a tough time finding such a pair but I finally did.  I too am on an aspirin a day.  I am able to continue with my physical activities although I am not involved in a contact sport like Judo.  I think we are learning that each doctor is as different as each patient with the restrictions they suggest.
I'm glad to hear your son is taking it one day at a time!  I've finally convinced myself to do that also!!  I wish him improvement each day!
Chelsie

Hi, guys!  it's been a while since i've logged in & looked at posts.......my son, Kyle, (8yrs post-stroke/op 4 MM), has been having headaches - has always had them since 4 mo b4 the stroke when he was dx'd.  Usually they are 1st-thing-in-the-morning migraines, but lately and about 6 mo's ago he had run-of-the-mill type headaches for several days.  I chalked it up to sinus pressure (our weather changes/allergy triggers in the air are horrible here in S. Tx),...he wears a baseball cap a lot, but can't wear it to school so I reallly doubt that's the problem.  Neither his neurologist nor neurosurgeon ever gave us any do's/don'ts, although I would never consider allowing him to play football or other similarly brutal sport!  Early on, when I mentioned his headaches, the neurosurgeon just shrugged and said that's typical with MM!  His neurologist has him on cyproheptadine (generic for Periactin which is an antihitamine.  He says it has shown to be effective in treating migraines in young children, but Kyle would still have them from time-to-time.  It's hard to know what to do.  Since he is on aspirin, he can only take acetaminophin for the pain and he claims he gets no relief!    He, too describes the pain as in the front, behind his eyes or in the forehead area.
I would expect vascular expansion from the increased bloodflow right after surgery to cause discomfort, but I don't know how to explain the headaches years after ! 
Best of luck to you all!

sue

Yes, Mar's right - it is different for each individual.  When I left the hospital after my surgeries the only thing I was told was to keep hydrated.  (When I was diagnosed I was told no Birth Control pills either).  Later, when I went back for my 6 week checkup my doc (Dr. Scott) told me that I should get new glasses because the ones I had were pushing against my head too much (they were actually causing an indentation).  But that's it.  Dr. Scott didn't put me on any food restrictions, etc.  

Now, somethings I've imposed on myself!  I cut down on my caffeine intake - and if I'm eating especially salty food I make sure I drink extra fluids.  Just common sense things like that.

-Shari

Rena -

Well, I believe moderation is key!  I used to drink a lot more coffee - I mean - I could drink coffee all day long!  Now, I just have one cup in the morning and that's it....I try to drink caffeine free soda, etc. 

For alcoholic drinks - well, I was never a big drinker.  I'll have a drink once in a while - but I make sure I have a glass of water right next to my apple martini!!!!

-Shari

Hi all,
  I have become compelled to read this board as often as I can to either learn or share as much as I can just like everyone here.  For the people that are on this that have moyamoya I can only say I can't imagine what you have had to endure.  And from a parents perspective I can share with the other parents your hurt.  It's kind of ironic though to see how upset all of us are with the lack of knowledge that there is on this disease.  I know you all, just like my family are extremely nervous of what the future has to hold.  I'm happy that  my son was able to endure all the pain he has to help prolong his life and hopefully live it long and as normal as he can.
  As a group that grows everyday we can help spread the word and help others in the future.  DJ has started something that we have all taken to heart so we must continue to make people aware.  No matter how we do it.  If it's letting someone know about the disease who has a migraine or if you tell a doctor of your experience.  Remember this is rare and the medical field is not aware as they should be.  But for those out there like the Steinbergs, Scotts and Barrows.  Thank you.  Just my view.  But I'm still mad as $#@%^! that my son and the rest of you have to deal with this too.
                                Just my opinion,
                                       Ron