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Moyamoya.com Forum › NON Moyamoya Related Topics › Daily Jibber Jabber › Las Vegas MM Summer Get-Together

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Las Vegas MM Summer Get-Together (Read 91938 times)

Seachelles

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God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #100 - Jul 30^th, 2005 at 10:46am

Great idea, Mar! And I know the perfect place. I've just got to figure out where it is. LMAO! How's that for conciseness?!?! I will find out from my friend because he will know where it is. I think it's either the Mirage or somewhere like that. There's a beautiful backdrop of water.....either waterfalls or geyser like water somewhere. Oh brother....maybe I better find out where it is. I'll get back to everyone. I think Saturday will probably be the optimal time to do it in the afternoon.

Michelle

Michelle

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Lore

MM.com Benefactor

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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #101 - Jul 30^th, 2005 at 11:14am

Mar, Michelle,

I am bringing my camera with different attachments which has the ability to take wide angle and close and long shots. I will be more than happy to take the group picture for you. Also, I would like to get a group picture of the MM children and also individual pictures of the families. If that is okay with the others.

Hugs,

Lore

"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson

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Seachelles

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God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #102 - Jul 30^th, 2005 at 11:33am

Is anyone coming to the Get-Together that lives in Las Vegas? I wasn't sure if the member map was updated or not which shows that there is no one in the Vegas area. But if there is someone that lives in Vegas or close by it would be great if I could use that person for a local angle to the press release that I am preparing. Let me know either here or PM if you live in Vegas or close by.

Thanks,
Michelle

Michelle

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beaumont, USA, usa, 312, 273, TX, Texas

Re: Las Vegas MM Summer Get-Together
Reply #103 - Jul 30^th, 2005 at 12:13pm

My mother (Brenda) has MM. My dad is Bobby (bhb).
We are looking forward to going to Las Vegas. My mom has had many strokes and has had a rough couple of years. She is disabled now and needs someone with her 24hrs/day. But so much better than she was. It has been a long haul. But our family has hung in there. Im sure everyone else with MM has had tough time, too. I think it makes the person and their families stronger and closer. I know it has mine. I have to say that my mom and dad are amazing. My mom is one touch lady. My dad takes care of my mom most of the time. And he is wonderful to her. He is the best dad and best husband in the world.
Is there anyone from the southeast texas area going to Las Vegas? We are from Port Neches, Texas close to Beaumont, Texas.
ak
But, I just have to say

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MichelleB New Poster Offline I love YaBB 1G - SP1! Posts: 27 Redlands, USA, usa, 51, 202, CA, California Gender:	Re: Las Vegas MM Summer Get-Together Reply #104 - Jul 30^th, 2005 at 2:02pm Just confirming that we will be there in Vegas also. We arrive on Thurs. and leave on Sat. It will be myself and my husband Eddie(moyamoya guy) coming. I can't wait to meet everyone. I've talked to a few of you on the phone so it will be great to meet you. We are staying at the Flamingo. Michelle B
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Seachelles

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God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Updated Attendees
Reply #105 - Jul 30^th, 2005 at 2:50pm

Just wanted to give an update to everyone of those that I have confirmed going to Vegas so far. They are:

Michelle (Seachelles)

Shari (STrantas)

DJ + 2 (Mom & Guest)

Rena

Mar + Guest

Paula (Jenanshanesmom) + Family (3)

Jaredsis2 + Family (2)

Hillary

Cotadad + Family (3)

Jack & Linda

Christy (Babyblue) + Mom

Carol (Carasmom) + Cara

Jill (Gotchlorine) + Family (Campbell, Tara, & Campbell's Family)

Elaine Calvert + 3 (daughter & 2 grandchildren)

Melina (maka4868 + sister)

Kathy (Katden) + 2 (Husband, Dennis & Son, Brian)

Kevin (Cubbie) + LDG1040 (Lore - his sister)

Irene (Itsme) + Husband

Jim + 3 (Christy, Daughter & Son-in-law)

Bobby (bhb) + 2 (Brenda- MM + Daughter)

Michelle B + 1 (Husband, Eddie)

Remember.....if you end up making your reservations, please let me know by either PM or on this forum that you will be coming and how many will be coming with you.

Thanks,
Michelle

« Last Edit: Jul 30^th, 2005 at 2:51pm by Seachelles »

Michelle

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CarasMOM

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My 11 year old Cara has
MM.

Posts: 525
Sedalia, Missouri
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #106 - Jul 30^th, 2005 at 3:07pm

;

;

Wow....what a group that'll be in Vegas... ; Grin

;

I realize there is so many of us...sure will be nice annual thing...even if theres one on the east and another on the west...and maybe eventually we'll find a spot in the middle of the country for all of us to meet.

It is true we all have our lives that have its own "ups and downs"...unexpectations happen. Cara and I do look forward to be with others who have had the rarest thing happen to them ...having being touched by "MM".

...and having a very special person...with the biggest, most caring heart and devoting so much of his time making a special place available for all of us from all walks of the country...meet online. The words "thank you" still isn't enough to express how much this website has meant to us !!! It is simply awesome.

; Grin

;

Thank you, DJ
; Grin

;

.

CarasMOM

Warm Hugs and Prayers, CarasMOM (Carol)

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Seachelles

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God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #107 - Jul 30^th, 2005 at 3:22pm

Cara,

I think this will become an annual thing now. I intend to at least plan one every year from now on with some help of course. Shari has done such a tremendous job in helping me with this with her ideas and other help. As have most everyone that is going with offering help and so forth! Let's not forget Jill who has been tons of help as well.....and then there's DJ who without him we would not be here today.

I think that it doesn't matter where it is held as long as people show up and can get together to start making awareness wherever we are. I'll even start taking suggestions now for the next one. That way there is plenty of time to plan and make it even more special next time. I've been given some ideas about planning for next time and think that while we are out there, we can try to come up with ideas on how we can plan it around a doctor's conference on neurology....don't you think? I've been looking into that very thing. Or something dealing with brain diseases. Also, I think it would be good to have it where someone (within our group) lives in that area....gives a local story angle to a BIG story on moyamoya.

Anyway.......just some food for thought....

« Last Edit: Jul 30^th, 2005 at 3:24pm by Seachelles »

Michelle

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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Las Vegas MM Summer Get-Together Reply #108 - Jul 31^st, 2005 at 8:57am Michelle - Thanks for the props, but I think that you deserve the most thanks! ; I did nothing more than give ideas!! -Shari
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Shan

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #109 - Jul 31^st, 2005 at 1:39pm

Michelle,

I really wish I could've made this year's get-together in Vegas; however, due to some challenges I'm facing with my recovery, it is impossible. Undecided

Nonetheless, your, Shari, Jill, DJ and everyone else's efforts in planning this event is very much appreciated, and I'm sure many like me are looking forward to joining all of you at next year's event! ; Grin

The idea to have it the same time/near a neurology conference is a superb idea!

I got so excited that I started to look online for any information.... I'm not sure if you already found these, but here is what I've found so far...

The American Academy for Neurologists are planning to hold their 58th annual meeting in San Diego, CA, April 1-8, 2006. http://am.aan.com/presenter/portal/ or http://am.aan.com/.

The American Association of Neurological Surgeons is holding their annual meeting next year in San Francisco, California on April 22-27, 2006.
http://www.aans.org/library/search.aspx?SearchTerm=2006+AANS+Annual+Meeting

http://www.aans.org/annual/2006/AN06ExhibitorPros.pdf

It also looks like their AANS/CNS (Cerebrovascular Section) is planning to hold its 2006 Joint Annual Meeting of the AANS/CNS Cerebrovascular Section and
The American Society of Interventional &
Therapeutic Neuroradiology on February 17 - 20, 2006, Caribe Royale All Suites Resort & Convention Center in Orlando, Florida.

http://www.neurosurgery.org/sections/Section.aspx?Section=CV&Page=meetings/2006.asp
"The purpose of the AANS/CNS Cerebrovascular Section is to advance education, research and patient care in the area of cerebrovascular disease. Through our activities and educational programs, we strive to promote awareness among all neurosurgeons of opportunities for clinical practice and research in the area of cerebrovascular surgery." Wow..maybe we can somehow get one of our cases in their newsletters...

The Congress of Neurological Surgeons will hold their 55th CNS Annual Meeting in Boston, Massachusetts on October 8-13, 2005 at the Hynes Convention Center.

And...last but not least, the World Federation of Neurological Society will be holding their annual conference next year in Mumbai, India on January 26-29! Wink

http://www.wfns.org/what.php

I'm sure there are many more out there...and starting to plan now for next year will definitely be an advantage; however, I know you're focusing on this year's event which I know will be a blast! ; Grin

Please let me know if I can be of any help to you for planning next years...I'm here for ya' Wink

Thanks again for everything!

Take care,
Shan

p.s. Please let me know if this sort of post should be PM'd to you instead of posting it here...I know it's kind of long....

« Last Edit: Jul 31^st, 2005 at 2:18pm by Shan »

"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Las Vegas MM Summer Get-Together Reply #110 - Jul 31^st, 2005 at 9:03pm I need email addresses from the following people that are going to Las Vegas. They are: Mar Itsme and Jenanshanesmom I need them in order to send out the itineraries in the next few days. Thanks so much! Michelle
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pattil647 Junior Poster Offline Mom of Moyamoya Survivor Posts: 70 Langhorne, USA, usa, 484, 119, PA, Pennsylvania Gender:	Re: Las Vegas MM Summer Get-Together Reply #111 - Aug 2^nd, 2005 at 11:01am Is it too late for me to try to attend with my family? If not, I'm looking for help with hotel/airline info. I live on the East coast. Where are the families with children staying? I would be bringing my 11-year old with MoyaMoya and my 5-year old. Thanks....
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Seachelles Old-Time Poster Offline God never gives us more than we can handle. Posts: 681 Fredericksburg, USA, usa, 474, 157, VA, Virginia Gender:	Re: Las Vegas MM Summer Get-Together Reply #112 - Aug 2^nd, 2005 at 11:11am It's not too late at all. I'd be glad to help you. I sent you a PM. Also, if you want to email me directly, just email me at Chelles4U@aol.com. Michelle
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Rena Senior Poster Offline Hi, My son Tyler was diagnosed with MM in 2003 Posts: 467 , Colorado, USA Gender:	Re: Las Vegas MM Summer Get-Together Reply #113 - Aug 2^nd, 2005 at 7:38pm I am heart broken. I had been looking forward to finally meet some of the wonderful people on here, but am now unable to attend. Maybe next year? Rena
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hillary Senior Poster Offline My daughter Holly has MM Posts: 340 new braunfels, USA, usa, 279, 285, TX, Texas Gender:	Re: Las Vegas MM Summer Get-Together Reply #114 - Aug 2^nd, 2005 at 11:34pm ohh Rena, I'm sorry that you can't go. I was looking forward to meeting you. I have enjoyed talking to you in the past. Hopefully we will meet soon. Hillary
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CarasMOM

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My 11 year old Cara has
MM.

Posts: 525
Sedalia, Missouri
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #115 - Aug 4^th, 2005 at 3:28am

Hi Guys...to all thats going to vegas...since Cara and I are driving up...thought we'd bring whole bunch liters of sodas, bottled teas, juices or punch....I was at the store today trying to figure among all the choices. It would be easier if I had an idea what your favorites are. Im a diet coke fan, love the diet lipton tea, too. Will bring several flats of water bottles, too.

Dr.Pepper, Mountain Dew, Pepsi (any flavor), Cokes (any flavor) , Lemonades, .....etc. I can bring little bit of each but would prefer to bring more of something if whole bunch of you drink the same thing. No big deal...just wanted to stock up the suite accurately in the "soda" department.

Looking forward to meeting you all !!!!

Carol (CarasMOM)
feel free to PM me or to my email ck.mcwilliams@cox.net

Warm Hugs and Prayers, CarasMOM (Carol)

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gotchlorine Old-Time Poster Offline Our daughter, Tara, lives with MM Posts: 776 San Jose, USA, usa, 24, 158, CA, California Gender:	Re: Las Vegas MM Summer Get-Together Reply #116 - Aug 4^th, 2005 at 11:09am Ummmmm . . . diet pepsi's my favorite! Great idea to throw it in the car, Carol - thanks!. I'd be happy to make a donation to help the cause. Jill
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Lore

MM.com Benefactor

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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #117 - Aug 4^th, 2005 at 12:41pm

Hi Carol,

How thoughtful of you. Since it is around 104-107 plus degrees in Vegas, bottled water sounds like a great idea. I heard a bottle of water sold on the streets of Vegas cost $3.00. Wow, I'm in the wrong business!
I too am a diet coke person. Kevin drinks water or sometimes 7up or something without caffeine. I too will be more than happy to assist with the cost.

Again, thanks for your thoughtfullness. Can't wait to meet you and Cara.

Lore

"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson

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Mar Ex Member	Re: Las Vegas MM Summer Get-Together Reply #118 - Aug 4^th, 2005 at 1:06pm LOL... just kidding. I too want to thank you and let you know I'll chip in also. Mar
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Seachelles

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God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #119 - Aug 4^th, 2005 at 2:00pm

Cara,

I too am with Mar....I'll take beer. LOL! No really, I am a diet caffeine free Pepsi person, but will drink anything that is caffeine free. When will you be getting to Vegas? Shari and I will be going to the store on Thursday (I think we'll go to Costco) and getting bottled water, more sodas, and munchies. Also, I will be willing to contribute some money for your efforts.

Michelle

« Last Edit: Aug 4^th, 2005 at 8:04pm by Seachelles »

Michelle

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CarasMOM

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My 11 year old Cara has
MM.

Posts: 525
Sedalia, Missouri
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #120 - Aug 4^th, 2005 at 2:20pm

Michelle.

Cara and I will leave Phx - Thursday morning...about a five to six hour drive up to Vegas. I will input your phone number on my cell and text you when we get there.

I'll give you a list of what I got on Monday or Tuesday before you leave. I'll probably bring three or four coolers.

For those who drink beer, wine or mixed drinks...we can pick up your favorites in Vegas. I have three teenage boys....I've been keeping our house without any alcohol other than knowing what we have on hand. So will refrain from getting anything with liquer in it until in Vegas. ; Grin

;

...don't worry Mar...you'll enjoy your favorite brew, too.

; Grin

Carol

Warm Hugs and Prayers, CarasMOM (Carol)

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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: Las Vegas MM Summer Get-Together Reply #121 - Aug 4^th, 2005 at 6:37pm Carol - You are awesome! Thanks so much for doing this....I'm a fan of water, iced tea and Diet Coke. Of course, I'll also contribute to your expenses! -Shari
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katden Junior Poster Offline My son, Brian is a MM survivor!!!!! Posts: 58 Phoenix, USA, usa, 123, 219, AZ, Arizona Gender:	Re: Las Vegas MM Summer Get-Together Reply #122 - Aug 4^th, 2005 at 11:10pm Hi Carol: Brian, Dennis and I are driving up early Friday morning. Can we help in any way? We are so darn excited! We have to fly Brian home Saturday night as he has to work on Sunday. I hope everyone is prepared to deal with my emotional state We social workers can ber so darn weepy! ........Kathy
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pattil647

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Mom of Moyamoya Survivor

Posts: 70
Langhorne, USA, usa, 484, 119, PA, Pennsylvania
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #123 - Aug 7^th, 2005 at 2:34am

Okay, I admit that this is really late, but I just booked a Las Vegas trip for my son with MoyaMoya and my husband. I would have loved to come too with my little girl, but I'm staying home to watch the pets. We have 4 dogs and three cats and no animal sitter for next weekend. Oh well, it will be a nice bonding experience for my husband and my son.

I'm sure some of you organized people out there have more specific information about the trip than I do, so if you have anything you can send me, please do. My husband and son will be staying at the CircusCircus hotel. They'll arrive at the airport Friday night a little after 11:00 pm, and they'll be staying until Monday afternoon when they'll fly home.

My son, Michael, really needs to meet other people (especially children) with MoyaMoya so he knows he's not alone. He's 11 years old. I hope that he gets to meet some of you wonderful people.

Thank you for setting this up DJ and thank you to Michelle as well.

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gotchlorine

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Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender: female

Re: Las Vegas MM Summer Get-Together
Reply #124 - Aug 7^th, 2005 at 3:13am

Hi Patti,

So glad to hear at least part of your family will make it to LV! There are some scheduled activities (group pictures on Saturday and a breakfast on Sunday), and a hospitality suite at the Flamingo will be available for "drop-in" visits. Michelle (Seachelles) will need your email address to send the whole schedule to you.

There is at least one other family staying at Circus-Circus, and other kids for your son to get to know and see that he's not alone.

Looking forward to meeting your husband and son!

Jill

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