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  Moyamoya.com Forum › NON Moyamoya Related Topics › Daily Jibber Jabber › Las Vegas MM Summer Get-Together
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Las Vegas MM Summer Get-Together (Read 91918 times)
maka4868
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I am a survivor of Moyamoya

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Kahului, USA, usa, 412, 359, HI, Hawaii
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Re: Las Vegas MM Summer Get-Together
Reply #50 - Jun 28th, 2005 at 5:11pm  
Hello everybody, I am going to Las Vegas during that time and staying at the Stardust.  I am new to this and would like to meet people at this event.  Would I be able to get some more information about what this get together is all about?  THanks so much. 

I'm a MM survivor and would like to meet others that have gone through similar experiences as I have.

Mahalo from Hawaii,
Melina
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Aloha,&&Melly Smiley
 
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maka4868
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Kahului, USA, usa, 412, 359, HI, Hawaii
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Re: Las Vegas MM Summer Get-Together
Reply #51 - Jun 28th, 2005 at 5:13pm  
Hi . . . would my sister and I be able to attend some get togethers in Las Vegas with you all?  Please let me know.  Thank you so much. 

Melina
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Mar
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Re: Las Vegas MM Summer Get-Together
Reply #52 - Jun 28th, 2005 at 5:52pm  
Hi Melina!  Smiley Welcome to our MM family!

You certainly are welcome!! We would love to meet you and your sister. This "get together" is exactly what you said, getting together with MM survivors and their families and discussing similar experiences with this rare disease, and of course having some fun while doing it. Smiley

I would be willing to bet that never before were there this many MM survivors in one place. You'll meet some wonderful people that I'm proud to say are my MM family.

Our meeting place is at the "Flamingo." I'm not the one with all the details, that would be Michelle or Shari. I know they'd be more than happy to give you any info you'll need. I just wanted to welcome you and tell you that I'm looking forward to meeting you there. Smiley

Mar
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« Last Edit: Jun 28th, 2005 at 5:54pm by N/A »  
 
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Seachelles
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Re: Las Vegas MM Summer Get-Together
Reply #53 - Jun 29th, 2005 at 5:13pm  
Thanks Mar for the assist.  I've been really busy at work with my boss' new promotion to a VP and his boss being in the office this week.  I can't wait for our time off for the holiday on Friday and Monday. 

Of course Melina!  You are certainly invited to attend with as many people you would like to bring!  In fact all can attend and we hope to get as many people with MM out there!  This is going to be a great informative event as well as a fun one. 

Please feel free to send me or STrantas (Shari) a private message for any details that you may need.  All the details are posted throughout the this forum, but any questions you have we are here to answer.

Michelle
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Michelle
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Mar
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Re: Las Vegas MM Summer Get-Together
Reply #54 - Jul 3rd, 2005 at 1:22am  
Just a thought… Has anyone contacted the local media in and around Las Vegas, to see if we could get any possible coverage?? Like, TV, newspapers, or radio stations?

Mar
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Seachelles
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Re: Las Vegas MM Summer Get-Together
Reply #55 - Jul 3rd, 2005 at 9:24am  
I could do that, Mar, unless it's something that DJ should do or would rather do.  Of course, I haven't seen him around in awhile as I know he is working graveyard shifts.  I could at least get him editor names for him and news directors.  I have all that access with my work through a program called Vocus. 

Michelle
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Michelle
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Mar
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Re: Las Vegas MM Summer Get-Together
Reply #56 - Jul 3rd, 2005 at 11:46am  
I was just thinking, wow, what a great story... a rare disease, brings a close group of survivors, friends and supporters from all around the country all together from a website, "moyamoya.com" to Las Vegas. Someone just may be interested in a story like that.

Mar
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Seachelles
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Attendees
Reply #57 - Jul 5th, 2005 at 12:34pm  
Hi everyone!   Smiley

Just wanted to give an update to everyone of those that I have confirmed going to Vegas so far.  They are:
  • Michelle (Seachelles)
  • Shari (STrantas)
  • DJ
  • Rena
  • Mar
  • Paula (Jenanshanesmom) + Family (3)
  • Jaredsis2 + Family (2)
  • Hillary
  • Cotadad + Family (3)
  • Jack & Linda
  • Christy (Babyblue) + Mom
  • Carol (Carasmom) + Cara
  • Jill (Gotchlorine) + Family (Campbell & Tara)
  • Elaine Calvert + 3 (daughter & 2 grandchildren)
  • Melina (maka4868 + sister)
Remember.....if you end up making your reservations, please let me know by either PM or on this forum that you will be coming and how many will be coming with you.

Thanks,
Michelle
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« Last Edit: Jul 12th, 2005 at 7:53pm by Seachelles »  
Michelle
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gotchlorine
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Re: Las Vegas MM Summer Get-Together
Reply #58 - Jul 6th, 2005 at 2:56pm  
Hey Michelle,

I spoke with DJ yesterday, and he loves the idea of notifying the media about our gathering.  He was fine with you moving forward with it.  If you do, and if you'd like any help, please let me know.  You'll just need to steer me in the right direction, as this is definitely not my area of knowledge!

Thanks for all the work you've done on the Vegas trip . . . can't wait to meet those I've not yet met!

Big hugs,
Jill
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hillary
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Re: Las Vegas MM Summer Get-Together
Reply #59 - Jul 6th, 2005 at 6:37pm  
i'll help in any way i can as well.

Hillary
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katden
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Re: Las Vegas MM Summer Get-Together
Reply #60 - Jul 7th, 2005 at 1:47am  
Hello All:

I am absolutely terrible at all the smiley stuff.   Shocked   My husband and I are so excited about meeting moyamoyans. We spoke with DJ years ago before his first surgery. Our son, Brian, is a 5 year survivor - 3 STA-MCA's with Steinberg (God Bless Him)' Thank you so much for putting this together!!!!!

xoxo  Dennis and Kathy
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DJ
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Re: Las Vegas MM Summer Get-Together
Reply #61 - Jul 7th, 2005 at 6:31pm  
Hi Kathy!!   Smiley

Soooooooo glad to see your post!  Are you, Dennis, and Brian going to be able to make it to Vegas for the get together??  That would be SO awesome!!

Let me know,
DJ
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Adversity does not build character... it reveals it...  I help my neighbor and my neighbor helps someone else. Life is a wonderful circle!
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katden
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Re: Las Vegas MM Summer Get-Together
Reply #62 - Jul 9th, 2005 at 12:19am  
Hey DJ:

We wouldn't miss this for the world!!!!!!!! Takes us less than 5 hrs. to get there from Phoenix. My, how thgis site has grown. I hope you're very proud of yourself.
Can hardly wait to see you and some other old friends.

Later..............Kathy
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Seachelles
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Attendees Update
Reply #63 - Jul 12th, 2005 at 7:58pm  
Just wanted to give an update to everyone of those that I have confirmed going to Vegas so far.  They are:
  • Michelle (Seachelles)
  • Shari (STrantas)
  • DJ
  • Rena
  • Mar
  • Paula (Jenanshanesmom) + Family (3)
  • Jaredsis2 + Family (2)
  • Hillary
  • Cotadad + Family (3)
  • Jack & Linda
  • Christy (Babyblue) + Mom
  • Carol (Carasmom) + Cara
  • Jill (Gotchlorine) + Family (Campbell & Tara)
  • Elaine Calvert + 3 (daughter & 2 grandchildren)
  • Melina (maka4868 + sister)
  • Kathy (Katden) + 2 (Husband, Dennis & Son, Brian)
Remember.....if you end up making your reservations, please let me know by either PM or on this forum that you will be coming and how many will be coming with you.

Thanks,
Michelle
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Michelle
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Seachelles
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Request
Reply #64 - Jul 12th, 2005 at 8:03pm  
For those of you that are going to Las Vegas, can you please send me your email addresses either via PM or to my aol account at Chelles4U@aol.com?  We are a month away from the trip and I would like to have it to email final itineraries and other pertinent information.  I need to have these as soon as possible.  Even if you are thinking about going, please send me your email addresses as well.  I'm looking forward to meeting as many of you as I can. 

Also, if you have any ideas, questions or concerns, please let me know.  This is a perfect time to start wrapping up things for the trip. 

Thanks,
Michelle
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Michelle
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katden
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Re: Las Vegas MM Summer Get-Together
Reply #65 - Jul 13th, 2005 at 12:34am  
Hi Michelle;

Sounds like you've done a wonderful job of organizing this "Moyapalooza"  !!!! You can reach me at

kathyvanmeter@cox.net

We are so looking forward to seeing everyone.

........................Kathy

P.S. We have already booked our rooms at a different hotel.
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KathyVM
 
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babyblue
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Re: Las Vegas MM Summer Get-Together
Reply #66 - Jul 13th, 2005 at 12:24pm  
Michelle-

I sent you my email address to your aol email. Let me know if you have any problems getting it.

christy
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Nancy_N.
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Re: Las Vegas MM Summer Get-Together
Reply #67 - Jul 13th, 2005 at 2:13pm  
Katden,
        That was pretty good Moyapalooza...I like it! Smiley
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katden
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Re: Las Vegas MM Summer Get-Together
Reply #68 - Jul 13th, 2005 at 2:29pm  
Thanks, Nancy. I'll take all the positive strokes (no pun intended) I can get. We are soooo excited about this trip!! Our son had a massive stroke 5 years ago in June, 3 STA-MCA's 8 weeks later in August. He just celebrated his 22nd birthday, a day our local docs said he'd never see. God is good. Our family is known for its slightly "off" sense of humor, gets us through a lot. Is your child doing well? I hope so.  Cheesy

................Kathy
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KathyVM
 
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Nancy_N.
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Re: Las Vegas MM Summer Get-Together
Reply #69 - Jul 18th, 2005 at 10:55am  
Katden,
           Mandy is doing pretty well. Our family has that same kind of sense of humor even Mandy but your right it keeps you going...whatever it takes. I was wondering why 3 sta-mcas.
                     Nancy
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Seachelles
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Attendees Update
Reply #70 - Jul 18th, 2005 at 11:16am  
Just wanted to give an update to everyone of those that I have confirmed going to Vegas so far.  They are:
  • Michelle (Seachelles)
  • Shari (STrantas)
  • DJ
  • Rena
  • Mar
  • Paula (Jenanshanesmom) + Family (3)
  • Jaredsis2 + Family (2)
  • Hillary
  • Cotadad + Family (3)
  • Jack & Linda
  • Christy (Babyblue) + Mom
  • Carol (Carasmom) + Cara
  • Jill (Gotchlorine) + Family (Campbell & Tara)
  • Elaine Calvert + 3 (daughter & 2 grandchildren)
  • Melina (maka4868 + sister)
  • Kathy (Katden) + 2 (Husband, Dennis & Son, Brian)
  • Brenda Kelly + 2 (Husband, Robert & Daughter, Amy
Remember.....if you end up making your reservations, please let me know by either PM or on this forum that you will be coming and how many will be coming with you.

Thanks,
Michelle
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Michelle
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MichelleB
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Re: Las Vegas MM Summer Get-Together
Reply #71 - Jul 18th, 2005 at 8:20pm  
Looks like we will be coming up to Vegas too.  I am not sure if it will be Thurs. or Fri. but anyhow I will make our own reservations.  Are most everyone staying thurs. thru Sunday?  Just want to make sure we get to meet as many as possible.  Michelle B
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gotchlorine
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Re: Las Vegas MM Summer Get-Together
Reply #72 - Jul 18th, 2005 at 10:00pm  
Hi Michelle,

I'm not able to speak for everyone else, but my family is flying in on Friday and out on Monday.  Last I heard, DJ's flight schedule is similar to ours. 

Can't wait to meet y'all!

Jill
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katden
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Re: Las Vegas MM Summer Get-Together
Reply #73 - Jul 18th, 2005 at 11:50pm  
Hi Nancy:

Glad we have similar senses of humor.  Roll Eyes Brian had the incredible honor of being the first person Steinberg had a problem with. The first STA-MCA failed, clotted off and he almost died. Thank God he had another really good temporal artery and the next surgery was successful. Steinberg felt so bad. We just thank God that Brian has such a big head  Smiley. He has always demonstrated such courage. I want so much to be like him when I grow up.

Thanks for asking..............Kathy
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KathyVM
 
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Seachelles
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Updated Attendees
Reply #74 - Jul 20th, 2005 at 11:15am  
Just wanted to give an update to everyone of those that I have confirmed going to Vegas so far.  They are:
  • Michelle (Seachelles)
  • Shari (STrantas)
  • DJ
  • Rena
  • Mar
  • Paula (Jenanshanesmom) + Family (3)
  • Jaredsis2 + Family (2)
  • Hillary
  • Cotadad + Family (3)
  • Jack & Linda
  • Christy (Babyblue) + Mom
  • Carol (Carasmom) + Cara
  • Jill (Gotchlorine) + Family (Campbell & Tara)
  • Elaine Calvert + 3 (daughter & 2 grandchildren)
  • Melina (maka4868 + sister)
  • Kathy (Katden) + 2 (Husband, Dennis & Son, Brian)
  • Kevin (Cubbie) + LDG1040 (Lore - his sister)
Remember.....if you end up making your reservations, please let me know by either PM or on this forum that you will be coming and how many will be coming with you.

Thanks,
Michelle
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« Last Edit: Jul 25th, 2005 at 2:48pm by Seachelles »  
Michelle
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