Just over 3 years ago my oldest son came down with a strange mystery illness when he was 15. His symptoms were horrible pains in his legs and feet. The pains became so bad that he actually said that he wanted to die. We took him to about 8 of the best hospitals in the country including NY Presbyterian, HUP ( hospital of the University of Pennsylvania, and various hospitals around NJ. After every test known to man, No 2 doctors could agree on what he had as his condition worsened. The pain was neuro pathic pain which is almost impossible to relieve. He eventually became addicted to the super strong pain killers he was on and had to withdraw on a methadone program.
My son is 6ft 2 in. and his weight went from 175 down to 120. We didn't know if he was going to make it or not.
There was never a diagnosis and was told that we would probably never know what it was. In all he was sick for 18 months and missed a whole year of highschool
Oh yeah, in the middle of this horror, I got my visit from mr. Moyamoya and suffered a major stroke. I dont know how my wife did it.
For the first week we were in the same hospital, Folling that we were in hospitals in different states, NJ & NY.
I left the hospital after 4-5 months of rehab. and using a cane went to visit my son who was still hospitalized. Eventualy I could make the visit walking without a cane.
Little by little my son got better without ever knowing what he had.
Now 2years later being in an Italian family of great cooks, he looks great weighs 175-180 and is working out at a Gym
What prompted me to write this? Well after a period of time when neither of us knew if we would survive, Last night I took pictures of my son and his date going to his senior prom. 8) For this I truly thank God
Next month he will graduate and then go to Kutztown state university in Pa.
Sorry to be so long winded Tom G
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Something to really be thankful for (Read 2996 times)
