I have posted before about me having lab work too see if i have a viral infection or something like that. I have what is called a Chlamydia anti-body i believe is what i was told. Im not exactly shure what that is if im correct it some kind of bacteria infection or something like that? I am on zithromax for it and have to have blood work done again next week to test for it. Has anyone heard of that or anything like it? Below is the definiton of chlamydial that aol gives you if it helps or if anyone is confused.

Main Entry: chla·myd·ia
Pronunciation: kl&-'mi-dE-&
Function: noun
Inflected Form(s):  plural chla·myd·i·ae /-dE-"E/
Etymology: New Latin, from Greek chlamyd-, chlamys
Date: 1966
1 : any of a genus (Chlamydia, family Chlamydiaceae) of spherical gram-negative intracellular bacteria; especially : one (C. trachomatis) that causes or is associated with various diseases of the eye and urogenital tract including trachoma, lymphogranuloma venereum, cervicitis, and some forms of urethritis
2 : a disease or infection caused by chlamydiae

Dj,

I know what your thinking i dont have the sexually transmitted one I have a diffrent form that has to do with anti-bodys or something like that. Yea i know i dont really understand the test that well but if i can i will have my mom get on and see if she can explain it better. But to help clear it up a little but it isnt the sexually transmitted one.

Hi Brad,

Okay, this is what I *think* people are trying to tell you.  It doesn't matter WHAT is bringing on your symptoms of MM (whether it be an infection, running, blowing out candles, you get my drift), the fact is if you are having symptoms, something is still not right in your brain concerning the blood flow.   

IMO, your doctor should really be looking at what's going on in your brain at this point and not focusing on infections.  Have you had an angio lately?  How about a SPECT?  Could be, since you had the indirect bypass which takes time to work, that you still don't have enough blood flow.  Could be that the MM has progressed to your other side.  Could be that the surgery didn't work.  I am just hypothesizing here but they could all be reasons why you are not feeling well.  Then you get something, like an infection, or do something physical and it brings on your MM symptoms.  The fact is that you wouldn't be having symptoms if you had good blood flow, no matter if you have an infection or not.   

I had direct bypass surgery on my left side two years ago.  When I started getting symptoms again, from various activities (even when I had the common cold), I KNEW something was not right again in my brain.   I sent my films to Dr. Steinberg and he knew my first surgery was a bust.  He DID not dwell on the various things that brought on my symptoms, such as infections or running, but focused on what was going on in my brain. 

Your case is a bit frustrating to me as I would love to see your doctor focusing more on what's going on in your brain at this point and not infections.  I would highly suggest you contact either Dr. Scott or Dr. Steinberg with all your symptoms and any tests/films you may have had done recently.

Lisa

Brad,

You must be so frustrated.... I've been reading your posts, and have hesitated to respond, because I just didn't know what advice I could give you.

I think LisaH wrote a great post to you.  It also seems that your neurologist is saying that the viral infection you have is not just causing symptoms, but actually causing, or worsening, your moyamoya disease.  Unfortunately, there doesn't seem to be much proof that a bacterial/viral infection would really affect the Moyamoya pathology itself.

It also occured to me, though, that you would likely be better off talking to someone who has more experience dealing with infectious diseases.   There is a type of doctor called an Infectious Disease specialist. 

Once I thought of this, I began wondering why your neurologist didn't refer you to one, in the first place, when he suspected that you were fighting a virus.   When Daphne tested positive for CMV, even though the virus can cause neurological complications, Daphne's neurologist told us to see a Infectious Disease specialist.  This specialist knew the right blood work to run, knew how to interpret it, and knew how to explain the results of the testing to us.

If you have a general practice doctor, I would contact him/her and tell him that you want a referral to an infectious disease doctor.   I really feel that you need this type of doctor to interpret your lab results and set the record straight.

Please feel free to PM me or email me (moyer305@comcast.net) if I can answer any questions.

Jenny (Daphne's Mom)

Jenny,

You are right part of me agrees about seeing one but I dont know much about what i have or anything. As far as I know it is some kind of bacterial infeciton that i have but even with that I suppose I could see a infectious disease doctor. Yes I could send them to one of those doctors and im shure it will be keep in mind. My mom reads alot of my post and ill see what she says and if she agrees it will probably happen. Yes I know there are some airlines that if it is going to happen are willing to cut deals with people about reduced are fairs. Thank you for your help so far you have been dead on with alot if not everything

   My doctors said that viral, bacterial infection do not cause moyamoya, but they can add to the misery you already experience.  I have probable TMJ, I also have chronic sinusitis & deep inner ear infections, having problems with them right now, but was told these are symptoms having nothing to do with moyamoya, but aggrivators of an already progressive disease.

  So when you have any kind of upper resperatory funk going on, please take your meds so you do not have to suffer needlessly & add to the misery of your moyamoya condition.

   Blessings
~ 808 annie

Brad,

I am glad you and your mom are continuing to fight through this.  Unfortunately, as I'm sure you've learned, you really have to take your health in your own hands -- especially with Moyamoya.

Please keep us updated on how things are going.

Jenny

Brad,

I can totally understand the difficulty in getting back to Boston etc. because of insurance issues.  I'm wondering though if you couldn't convince the neurosurgeon there in Florida to at least order you an MRI/MRA , a SPECT or an angio.  At least you all would have some inkling of what's going on in your brain.   It kind of seems the norm (from reading people's experiences on this board) to have a follow-up angio (or at least one of the above tests)  3-6 months after surgery.  I would think that you are about due for some tests along those lines. Especially since you continue to experience symptoms!  Do you think you could convince him to do that?  That way, you could perhaps send those films to Dr. Scott or Dr. Steinberg for their opinion and go on from there. 

Just a thought,
Lisa

Update on all my infections and stuff. I dont have an infection or anything at one point i did but i dont have one and probably havent had one in a while. My doctor put me on zithromax and was probably being way too careful. My primary care said i didnt need to be on zithromax and isnt going to bother order anymore test. I still am having small symptoms like a week ago or two I had 2 really small seizures that didnt do much but i had 2 like 30 seconds apart that only lasted about 20 secs maybe less.. I am going to go see my nuero and probably update my meds. Thanks for reading.