Lore
MM.com Benefactor
Offline
My brother Kevin (Cubbie) has Moyamoya
Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender:
|
Hi Moira
My brother Kevin had a significant stroke at the age of 43. About 6 months prior to the stroke he had TIA's. Even after his stroke he wasn't diagnosed with moyamoya. His doctors, at that time, thought he had FMD but he was later diagnosed with a dissected right upper internal carotid artery. It wasn't until a year ago (4 years later) that he was actually diagnosed with moyamoya after an angiogram. Keep in mind, he had several previous angiograms that did not indicate moyamoya vessels. As you have read from others, it is different for everyone. Statistically, from present data, which I believe is changing rapidly, the majority of MM cases show up in the first and fourth decade of life. Additionally, there are always those cases wherein MM may be present but simply not diagnosed because its rare and therefore, unknown to some doctors. MM continues to be mysterious in many ways. Perhaps someday soon we will know more as the word of MM travels.
Lore
|