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How do you do?   I'm Japanese.   (Read 5876 times)
chii
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Posts: 4
saitama, Japan, asia, 447, 193
Gender: female
How do you do?   I'm Japanese.  
Jun 4th, 2005 at 10:14am
 
How do you do?

My name is chii. I'm Japanese.
I can't speak English well.
Cotadad&Cotamama are my friends.

My son is moyamoya desease.  He name is kakkii.
He was diagnosed moyamoya when he was 8 year's old.
He was abnormal involuntary movement on arms, hands and leg.

He was in the hospital for four months.
(He was hospitalized for operating and rehabilitation.

He is 12years old now.  He became fine.
He spends 35 minutes for walking and going to junior high school.


I have website.

It's "moyamoya disease-fight!"   http://park6.wakwak.com/~achk/

This website is  Japanese.
Please try passing through the translation sight.


If you like, please look it.
Thank you.   (^^Wink
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« Last Edit: Jun 4th, 2005 at 10:24am by chii »  
 
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gotchlorine
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Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender: female
Re: How do you do?   I'm Japanese.  
Reply #1 - Jun 4th, 2005 at 2:09pm
 
Dear chii,

Hello and welcome to our family!  I am so glad to hear your son is doing well following surgery.

You mentioned being friends with cotadad and cotamama.  Are you in the Bay Area, as well?  My family lives in San Jose.  Kota has the same neurologist as my daughter, Tara.  If you ever need assistance or another local Moyamoya family, please don't hesitate to contact us!

Warmly,
Jill

P.S.  Oops, just saw on your profile that you're in Japan.  We're not local to each other after all, but welcome to our family, anyway!
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« Last Edit: Jun 4th, 2005 at 2:12pm by gotchlorine »  
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kotipup
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My daughter, Daphne, has
Moyamoya

Posts: 247
Landenberg, USA, PA, Pennsylvania
Gender: female
Re: How do you do?   I'm Japanese.  
Reply #2 - Jun 4th, 2005 at 4:17pm
 
Hi, Chii.  Welcome to the group.   I am glad  that your son is doing well, now Smiley



Jenny
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chii
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I love YaBB 1G - SP1!

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saitama, Japan, asia, 447, 193
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Re: How do you do?   I'm Japanese.  
Reply #3 - Jun 4th, 2005 at 9:54pm
 
Dear  Jill & Jenny


Thak you !!  I'm happy.

I have translated hard now. Please wait for a reply a little longer.

  chii
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« Last Edit: Jun 4th, 2005 at 9:54pm by chii »  
 
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Cotadad
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My son, Kota, has MM

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Sunnyvale, USA, usa, 20, 159, CA, California
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Re: How do you do?   I'm Japanese.  
Reply #4 - Jun 5th, 2005 at 12:06am
 
Chii-san,

Welcome to this message board. 

For those who are interested in her web, please try free translation service:

http://babelfish.altavista.com/

She and her son (Kakkii) have experienced and overcome a lot of challenges, and she has put a lot of information on the web site.  Actually, the  translation of something like a message board is sort of funny ;Grin, but probably you could get a ball park understanding of what are written.

Because many MM patients and family members are joining in the message borad on her site, it would be great if some communication between the two communities could take place.

Cotadad
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chii
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saitama, Japan, asia, 447, 193
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Re: How do you do?   I'm Japanese.  
Reply #5 - Jun 5th, 2005 at 1:20am
 
Dear Cotadad,   Assisting, thank you for.

Dear Jill & Jenny

I'm using the dictionary and the translation software, have written composition.

I can't  write English composition skillfully.
But. I can understand English composition.

Our families have lived in Japan.
There are English-Japanese dictionaries in the Japanese each home.   Smiley

He writes, please use the translation service . You think that circumstances of my web site.

4000 or more persons of this sick patient are in Japan.
(Statistics in 1995)  Shocked
If there is no wall of language, it can say a lot as you.


I'm sorry. I can't write English well.


chii
   http://park6.wakwak.com/~achk/
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Lore
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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female
Re: How do you do?   I'm Japanese.  
Reply #6 - Jun 5th, 2005 at 6:46pm
 
Welcom Chii,

It is wonderful you found this moyamoya family in the United States. There are others who come to this site from other countries as well.  It's interesting to hear all the different stories from around the globe.  Also, I am very glad to hear your son is doing well and going to junior high school. 

I believe in numbers, regardless of where one lives, we can make a difference in learning more about moyamoya and getting the word out around the world. 

I will go to your website and am anxious to hear more about you and your son's moyamoya story.

Keep in touch as there are new and different topics everyday on this moyamoya site

Lore
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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson
 
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chii
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I love YaBB 1G - SP1!

Posts: 4
saitama, Japan, asia, 447, 193
Gender: female
Re: How do you do?   I'm Japanese.  
Reply #7 - Jun 6th, 2005 at 12:15am
 
Dear  Lore,

Thank you !!!

I have used whole sentence translation service.

Now, it is 6/6 13:15.

Since it is during a lunch break, this is written in a hurry.
( I have come home, in order to eat a lunch. )


Please  to my site by all means.
I wrote the account of a struggle against disease for a long time.
Is translation service well convertible for English?

chii
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