You're very welcome Louise. We're family, and we're always here if ya need us. We've all traveled this road one way or another, so we know what you're going through, and you'll never meet a nicer group of people.

I think I’m safe in saying that with all the feedback given, we all were asssuming Lydia's tests were unchanged at the moment if surgery wasn’t advised. We see that very often here, and never meant that our knowledge or opinions were better than that of any neurologist/neurosurgeon. We strictly speak from experience here. We’ve seen all too often, many members who have showed good blood flow to the brain on their SPECT scans, with little or no symptoms even, and were also told to wait, but sadly have had devastating strokes. So our opinion and advice is always, if MM is a progressive disease, why wait for the next stroke to be catastrophic, get a second opinion from a MM specialist, one who works with mm patients on a daily basis and has the experience to know if it's safe to wait and also knows from experience that waiting can be so very dangerous and life changing. My niece was told to wait. She had 4 sudden strokes and was in a coma, paralyzed completely on the left side, incontinent and on a feeding tube and will never be the same. That’s a lived experience that we wouldn’t want anyone else to go through. The MM specialists’ here in the USA have great credentials and an excellent tract record of saving lives with mm, so that’s the road we always advise all to travel.

My prayers are with you and Lydia.

Mar