Maybe I can be some in sight for you. The 5 months post opp is me. I for the past couple of months have had symptoms of seizures like shakeyness, exhausted, lack or loss of concentration and those things. I was on Dilantin but i was taken off and put on trileptol a diffrent sezure med and I to am on enteric aspirin @ 325 mg. I had an EEG done and no it does not hurt. The put this cap on your head it is a little tight, the attach these wires to it put this smelly liqiud on your head and flash some lights in your eyes to make shure your brain waves are active its no big deal. The most gruiling test to go threw is the angiogram. Seizures and stuff are generally normal from what i have been told and read. Unless you are like me and had none then started having some its not much to worry. Obviously if you are/had something you should notify your neurologist/surgeon and see what the say. I wouldnt stress to much on this and besides stress isnt good itll raise your blood presurre wich is bad for the blood flow in your head. Try to relax as moya moya is diffrent from person to person and what can and will happen will be difrrent too.....

My daughter's had many EEGs.  It doesn't hurt one bit.  All they do is stick electrodes to your head, and measure your brain waves.  It takes about an hour, and they may show you flashing lights, or ask you to hyperventilate.   The only problem may be getting the glue out of your hair! (nail polish remover works very well)

Also, if you don't have a history of seizures, I think staying on Dilantin for an extended period of time would not be a good idea.  Seizures can happen, but you shouldn't expect them to happen... the seizure medicine can actually cause more problems (it depresses your brain function).

I don't have any other advice on the meds.  My daughter is on aspirin, too.

Jenny

Cara was told not to hyperventilate with her EEG either.

Was painless...interesting...I was exhausted as I had to keep her awake til Midnight ..then put her to bed...and wake her up at 4am...keep her awake until we got to the hospital for the EEG.  After they put the wires on her head (glue each tip on).   The test showed abnormal brain waves...this was maybe few weeks after her second surgery......then they decided to do the 24 hour EEg...where she wore a wrap for 24 hours with electrodes glued on scalp then a wrap, and wore a monitor on her chest...and was suppose to press the button every time she had a "TIA"...her neurologist said the brain waves improved and said she didn't have seizures...but to continue on the anti seizure medication, Trileptal.    CarasMOM

Extreme,

This is what I found on Persantine..I believe it's because I was told that my blood is clotting too much/fast.  I'm taking 75 mg 3 times a day.  I



Persantine helps reduce the formation of blood clots in people who have had heart valve surgery. It is used in combination with blood thinners such as Coumadin.

Some doctors also prescribe Persantine in combination with other drugs, such as aspirin, to reduce the damage from a heart attack and prevent a recurrence, to treat angina, and to prevent complications during heart bypass surgery.

Most important fact about this drug
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Persantine is sometimes used with aspirin to provide better protection against the formation of blood clots. However, the risk of bleeding may also be increased. To reduce this risk, take only the amount of aspirin prescribed by the same doctor who directed you to take Persantine. If you need a medication for pain or a fever, do not take extra aspirin without first consulting your doctor.

http://www.healthsquare.com/newrx/per1331.htm

Cara's seizures...we have been calling TIA's....she is fully aware of them happening, able to walk to me.  There are variation kinds of seizures if you look up seizures/eplipsey...they list the variations and describe each kind/what happens...etc.  After Cara's EEG's ...the neurologist says that Cara's seizures are non-eplipitic ones...and the more I read...that the "spells" are common in the healing process during the aftermath of recovering from those MM surgeries.  But still when I look under "stroke-related" websites...they describe a TIA as "warnings" for a upcoming stroke...so I am always what those little "spells" should be called after one has had their MM surgeries...especially since my Cara has had ...to be honest...by now at least 250 of them....so common that we know the signs...of when its coming, and when it ends (she yawns)...so I can understand those of you who only have one or two every so often making it harder to catch the "signs".   

CarasMOM

I've actually heard of Niacin.  When I first started having my health problems, I was asked to start taking Niacin.  It turns out that I had an allergic reaction to it, or so I thought.  Apparently, it's an over-the-counter type of medicine (kind of like a Vitamin in a way) that has side effects that include a flush feeling (like you are getting real hot).  It made my whole body real blazing hot, made my pulse and blood pressure get high and made me start itching.  I don't care if that's normal or not, I was NOT going to take that again.  It wasn't worth it.  Plus it basically just helps to lower your cholesterol without taking a real medication, and I really don't have a problem with my cholesterol.  LOL!

I had the same reaction with Niacin...hot flushes, prickles and itchy.  I was told it was normal, but I said no way as well! ; I have my limits!

As for the seizures, I have been having a lot more TIAs lately, and I find it very interesting that the doctor said that dizziness, lightheadedness, followed by sleepiness can be related to a TIA.  I have localized seizures in my fingers (twitching), hand and arm.  These often happen when I have over-exerted myself, or even when I am eating!

Finally, as many people have already written, the EEG is no big deal.  They strap a bunch of electrodes to your scalp and flash a bunch of lights in your face.  It kind of made me nervous that I would have a seizure, but I didn't.  The 'glue'isn't that bad, it just made my hair pretty greasy.  The only two tests they did on me that I hope to never have done again (although my hopes are in vain) are a spinal tap or an arteriogram.
Hugs to all,
Stephanie