Hi again to whoever may read this question;;I noticed some messages re being tired all the time.
Lydia is always tired and can sometimes put herself to bed during the day and sleep for hours.

As her medication has put on weight, i try to encourage her to be active, but if she runs or walks average distances, she goes very hot and flushed,and her legs go wobbly and she loses all energy.

do I have to limit how much excercise she does?
i also notice she cannot cope with hot weather and has a low tolerance to noise, so I am always trying to keep her enviroment calm, is this also common to MM or just lydia being Lydia?

I know that when I experience any type of over-exhertion, I become somewhat dizzy and my legs feel like they are going to give out.  It can even happen if I run up the stairs really quickly.  I am only 28 and very healthy and in average shape.  I hope this gives you a bit of insight. 
Stephanie

I've noticed that the "do's and don't's" are different for each person. I guess each individual has to listen to their own body accordingly and go with the signals, but most importantly it's imperative that anyone with moyamoya keep hydrated.

 

Mar

It is interesting to read how active one person is - my MM, though it was caught before any major strokes occured, is quite "advanced" according to my neurologist.  She has told me to AVOID intense aerobic activity, since it would increase carbon dioxide in my brain and interfere with the blood flow to my brain, which is severely compromised anyway.  Not sure if that explanation is right or not, I just know she told me to really watch my heart rate and slow  my activity way down if I start to feel like I'm breathing too hard.  I usually attend a swim class for older adults with arthritis or walk on the track at the Y for 1-2 miles 3-5 times a week, though I'm down with a foot injury right now.  I'm also type 2 diabetic, not on medication or insulin, and it's getting to be hard to manage it without aerobic activty to get the heart pumping.  I also want to try to work in some strength training.  That's important, especially the older I get (soon to be 41...)

I too am very noise sensitve.  I cannot talk in the car with the radio on; or have the TV on and talk to my husband.  He drives me crazy because he will be playing a game on his computer (with all the fighting noises going on) and listening to an old radio show at the same time!     To give him credit, he does turn it off when I come into the room to talk to him.

I suffer even more from the heat than I used to, too!  It's supposed to hit the upper 90s today in Minneapolis / St. Paul, with high humidity YUCK!!



Anyway, just my thoughts,

ginabean in mn

Ginabean (in MN!),

That is so funny that you are noise sensitive as I have been like that for many years.  After my surgeries, I made everyone in our hotel room watch TV with the captions on and the sound off! (It didn't help that my dad is hard of hearing and would be blasting it!!).  I never understood/understand why but loud noise makes it very hard for me to concentrate. 

Trina (in NY!)

My son, Kota (10 yrs), was diagnosed as MM last Oct and had surgery on both sides last Nov.  He was sort of noise sensitive, too.  Especially flushing the toilet.   But seems like he became less sensitive after the surgery.  The frequency of TIAs is much less than before the surgery. 

He was able to play little league baseball moderately this spring with some care, such as no long distance running, more rest than other boys, be well hydrated, and so on.  But he could even pitch occasionally.

Cotadad