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Becky

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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
Gender: female

Re: Hereditary in Caucasians?
Reply #25 - Oct 11^th, 2005 at 12:58pm

I just found out that some of my older family members have died from strokes but they were too old to realy check for something. Did that artical said that the probability of MM goes down with every generation? If so then how about the sivarity of the MM?

I guess my question is of all of you who have MM and have children with MM are they Better or Worse then you? Did they find out about it sooner? How bad was the inital stroke? Do they have more lasting problems than you?

I want to have kids but I Do Not want to pass this on.
Becky

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« Last Edit: Oct 11^th, 2005 at 12:58pm by Becky »

What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

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Shan

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
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Re: Hereditary in Caucasians?
Reply #26 - Oct 12^th, 2005 at 12:38am

I am not caucasian, but hereditary issues is also a concern for me. My mother just had an MRI done and we got the results today. It was negative for Moyamoya, but it did show many...(like over 10) strokes and 2 anureysms! I didn't notice the use of the word "TIA" though, like I noticed in my MRI/MRA reports. I need to do some research...I take it that there are different kinds of strokes? "TIAs" are just mini-strokes, right?

Anybody knows? Smiley

Hmmmm....

Shan

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"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

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shgr Experienced Poster Offline Diagnosed December 2003 Posts: 144 raleigh, USA, usa, 469, 184, NC, North_Carolina Gender:	Re: Hereditary in Caucasians? Reply #27 - Oct 12^th, 2005 at 1:09pm Shan, My understanding is that TIAs are transient ischemic attacks while strokes tend to not be transient, meaning they can leave permenant damage. Here is a very helpful website about both TIAs and strokes!: http://www.stroke-tia.com/stroke-tia/prevention2.html Hope this helps, Shan! Stephanie
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Shan

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Hereditary in Caucasians?
Reply #28 - Oct 12^th, 2005 at 2:24pm

Hi Stephanie,

Thanks so much! I'm on the site now waiting for the video to play. I was just too overwhelmed to do any more research on the internet last night. I'm hoping that my bout with MM will encourage her and keep her spirits up and she deals with this devastating news. Luckily her aneurysms are small, so no surgery is currently needed.

I was just curious to find out more about TIA's because my MRI/MRA clearly stated "TIA's" but my mom's mentioned "ischemic attacks."

Sorry for straying off the subject Nancy... Tongue

Thanks again, Steph! You're always so helpful!

Take care,
Shan

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« Last Edit: Oct 12^th, 2005 at 2:25pm by Shan »

"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

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Becky

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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
Gender: female

Re: Hereditary in Caucasians?
Reply #29 - Oct 17^th, 2005 at 9:13am

Please everyone!
My husband and I are debating on wether to have a baby or not, and if it does seem to get worse with every generation then we may deside to cut the chain. I don't want to put a child through all of this. He has some hereditary cancers to bring in the mix and if MM is a worsing genetic mutation then I don't know? I also have some heritary cancers to bring in to the mix as well that differ from his. But we were thinking about a baby (in the future) before my stroke and MM discovery, but now we are not so sure.
Becky Smiley

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What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

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Shan

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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female

Re: Hereditary in Caucasians?
Reply #30 - Oct 17^th, 2005 at 3:24pm

Becky,

I'm sure many with MM have/are considering the same thing as you. I have a girlfriend here with MM, and since having 2 surgeries (one on each side), she has gotten married and has a healthy 5 year old son! ; Grin

Have you discussed this with your doctors? Neuro? OB? Internist? It would be good to hear what they have to say. I'm thinking if other health issues are present, then those will also be a deciding factor.

Take care,
Shan

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"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis

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Becky Old-Time Poster Offline Stroke10/03, Diagnosed6/04, Unilateral Surgery9/04 Posts: 532 Minneapolis, USA, usa, 303, 84, MN, Minnesota Gender:	Re: Hereditary in Caucasians? Reply #31 - Oct 19^th, 2005 at 8:55am Shan, Wow that is great for her! My nero is looking into it and my OB is will see if it healthy for me ie natural vs c-section if thing look good. But no word yet. I am in school and want to finish with that before baby. I am still young enought where the clock is just started to tick. Becky
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Runity

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I was diagnosed with MM
since May 26, 2005

Posts: 40
Brentwood, USA, usa, 392, 195, TN, Tennessee
Gender: female

Re: Hereditary in Caucasians?
Reply #32 - Dec 7^th, 2005 at 10:08pm

I am just curious, what are all the other nationalities of the people that are on this list. The reason I ask is because I am not caucasian and I am not Asian. I am Middle Eastern from Iran. This has come as a shock to my family and to my doctors. So can anybody shed some light on this topic for me? Just food for thought!!

yassi

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I am grateful to God for my life!

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moyamoi

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Re: Hereditary in Caucasians?
Reply #33 - Dec 8^th, 2005 at 5:51pm

Becky,
I had a baby after my MM surgeries - I have two kids (one is now 10 and the "baby" is now 2.5) I was concerned about this too and my neurosurgeon said that the incidence of familial heredity is about 9 - 10% and that I could get kids tested at a later stage, and just keep a very close eye for any warning signs. I was under strict orders though when I was pregnant from my Neurologist, Neurosurgeon and Ob NOT to have a natural birth, so I had an elective caesarean which suited me fine, as there was no way I wanted to go through a natural birth again!

In answer to Yassi's question - I was originally born in South Africa and I quess you can say my heritage is Anglo saxon as my mum was South African but had Scottish heritage and my dad is English.

Moira

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Becky

Old-Time Poster

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Stroke10/03, Diagnosed6/04,
Unilateral Surgery9/04

Posts: 532
Minneapolis, USA, usa, 303, 84, MN, Minnesota
Gender: female

Re: Hereditary in Caucasians?
Reply #34 - Dec 9^th, 2005 at 6:15pm

Thanks moyamoi. I am in school right now and want to finish that up before thinking about kids.

As far as my Haritage: I am 1/4 Netherlander (Dutch), 1/4 English, 1/4 Irish/Scottish, and to make up the rest of the 1/4: (Welsh, Sweedish, Checklizvakin (sp?), German, French Canadan Indian, Norwegan)

I am a good old Mutt!
Hope this helps.
Becky

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What doesn't kill us, makes us stronger. And sometimes leaves a cool looking scar. STA-MCA bypass and EMS Surgeries done at same time at the Mayo clinic

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