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Dr. Steinberg/Stanford (Read 3206 times)
itsme
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aliso viejo, USA, CA, California
Dr. Steinberg/Stanford
Jul 25th, 2005 at 1:49am
 
Dear friends,

I read about the ( The best Hospitals etc.) well, I only know what I went through and what I am going through.
I just had my surgery one month ago with Dr. Steinberg and although Stanford might be rated #16th.....I felt I made the right choice for choosing Stanford for my MM.

Yes, I went to Dr. Fukushima's web site and I know he may be as good as Dr. Steinberg but I know for a fact that Dr. Steinberg's hands and skills are nothing but a miracle.

I would not let numbers confuse what is IMPORTANT.  The important thing is WHO IS NUMBER ONE when it comes to MM?   

It's only been a month but "OH WHAT A DIFFERENCE!"

My friend Melissa who had surgery one day after me was
paralyzed on the left side ( stroke at age 7 ) and after 27 years she wiggled her toes and fingers on her left side, after surgery with Dr. Steinberg. She was also celebrating after one month WIGGLING HER TOES AND FINGERS!

So my conclusion is, although Dr. Steinberg might have ran into some obstacles along the way,  I am sure  Dr.Fukushima had his share.  The more patients you have I'm sure the more different situations you run into  so it's no surprise.

All I can say is I lived through his operation and for those thinking of having a by-pass or think you have MM, please go see Dr. Steinberg. You may be writing
just like me on this web site.  You came to the right place.

He will save your life and have no doubt you have seen the BEST but the choice is yours.

H & K.
itsme


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katden
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My son, Brian is a MM
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Posts: 58
Phoenix, USA, usa, 123, 219, AZ, Arizona
Gender: female
Re: Dr. Steinberg/Stanford
Reply #1 - Jul 25th, 2005 at 2:29pm
 
Our family has no doubt that Dr. Steinberg saved our son's life. August marks the 5th anniversary of Brian's surgeries. He finished high school with honors, attends college, works full time, and has the most beautiful 13 month old daughter! We are truly blessed. We pray each day that the baby does not inherit this disease. I'm so glad that you and your friend are doing so well!

................Kathy
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KathyVM
 
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kotipup
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My daughter, Daphne, has
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Landenberg, USA, PA, Pennsylvania
Gender: female
Re: Dr. Steinberg/Stanford
Reply #2 - Jul 25th, 2005 at 2:52pm
 
Dr. Steinberg is my hero, too Smiley

Daphne was sent home from Children's Hospital of Philadelphia to die.  Dr. Steinberg and Teresa gave us hope at a time when things seemed so hopeless.  Daphne has done so well since her surgery - despite a recent breakthrough of her seizures (which - so far - have not seemed to impact her development *knock on wood*)

On Friday, we took Daphne to the CHOP ER to get a CT Scan - per Dr. Steinberg's instruction - to make sure her previous epidural hematoma looked OK, and was not a possible cause of seizures (BTW - the scan looked good).

While we were there, we were talking to the Neurology fellow, who said that there was a teenage MM patient in the ICU.  She said that the girl's films looked a lot like Daphne's studies, and that she'd had her surgeries done at CHOP.  The grafts had not taken, and now she was in very "bad shape".

I have thought so much about that poor girl and her family since then.  I feel so saddened about the situation they are in; but, at the same time, feel so very lucky that we still have Daphne with us.

This is not to say anything bad about CHOP neurosurgery - at all.  Every patient is different, and I obviously don't know much about the teenage girl at CHOP.

I just feel blessed that we were able to find Dr. Steinberg and his wonderful team, and that they were able give our daughter another chance at life.

Jenny
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amraprobasi
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Re: Dr. Steinberg/Stanford
Reply #3 - Jul 31st, 2005 at 1:40am
 
I agree. I have been lucky to find Dr. Steinberg close to our home after I was diagnosed with MM. He is an angel. He takes time to answer your queries and concerns and makes you feel at home in his clinic. He has wonderful assistants in Joli and Theresa.

I have my surgery coming up in August first week and I feel I am very fortunate to have him at my side.
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Shan
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2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
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Re: Dr. Steinberg/Stanford
Reply #4 - Jul 31st, 2005 at 2:03am
 
Amraprobasi,

Good to hear that all is going well with you, and you're on the right track.  You'll do just fine with your surgery... Although he wasn't my neurosurgeon, many members here are a testimony of Dr. Steingberg's miraculous talent.  One of his patient's story (Daphne) really touched my heart....(http://www.daphnestory.com).

You'll be in our thoughts and prayers... Please let us know how you're doing when you feel up to it.... We'll be here.... Wink

Take care,
Shan
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« Last Edit: Jul 31st, 2005 at 2:14am by Shan »  

"Love, Accept And Respect All Things And All Situations In Life … They Are Especially&&Designed For Your Personal Learning" ~Howard Willis
 
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emmas mom
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Re: Dr. Steinberg/Stanford
Reply #5 - Mar 5th, 2006 at 12:06am
 
Dr Steinberg was the only doc who said my daughter could have 'his' procedure back in 2000.... she is doing well and we owe her life to him.... he is a savior. Smiley Wink
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cubbie
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Stanford MM Survivor,May
2005

Posts: 168
Delaware, USA, usa, 418, 133, OH, Ohio
Gender: male
Re: Dr. Steinberg/Stanford
Reply #6 - Mar 6th, 2006 at 2:57pm
 
Hi Irene

You are right!

Stanford is the home of the Miracle Workers!


My Smiley
Kevin
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Kevin Allen- I was so much older than,I am younger than that now,The Byrds,My Back Pages
 
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