My daughter has the surgery at Stanford in 2000 (when she was 5) and has downs.... she is now complaining of dizzy spells and tingling in arms and legs.  Anyone else out there with downs... how about the symptoms.  This website is amazing!  When we searched after her stroke in 1999 it was so hard to find any info on the internet!!!!

 My daughter had her surgery at Boston exactly 4 yrs ago she too was 5. Kathleen ahd some pretty severe strokes before her suregeries so she has a lot of things going on that I don't know are realted to the strokes or the MM.she ash good days and not so good days.She really doens't ahve the language to tell me if she's dizzy or has tingling.Waht I can tell you is she gets VERY tired very easily, she seems to ned 12 hours of sleep.She has days that she seems "out of it" and her concentration is poor.She may even have trouble with school owrk that she previously knew how to do.She has times something will "set ehr off" and she'll cry like something hurts but when I ask her she won't even respond.I have no clue what she's feeling through any of these days so I just work with it and hope that someday she'll be able to tell me. If I can answer any more specific questions let me know. Our girls arent too far apart in age.Kathleen, previouse to the strokes did just about everything right on time,she walked at 18 months,and was talking pretty good, but she lost it all when she had her strokes.She's making her way back slowly.She's reading writting and doing math in school she's in a reg classroom with and aid and special ed teacher.She get PT OT and speech.I owuld love to hear more about your daughter and how she's doing...
Mary Grace   mgrace5@nycap.rr.com
PS does your daughter get follow up MRI's still,if not how long has it been since ehr last?