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Dewski

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He is 17.

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OK, here we go!!!
Aug 10^th, 2005 at 4:41pm

PLEASE, give us lots and lots of advice, questions that we should ask, and don't forget to ask us questions too! ; Grin

Dr. Scott called my wife today in Syracuse, NY and he said that he definately wants to do the surgery. Since he wants to do the arteriogram <sp> and then the surgery - like on a Friday/Monday sort of schedule, that their first opening is ***tentatively*** the third week in September. They are going to call us back in the next few days with more specifics.

He viewed all of Michael's tests (MRA, MRI, shunt series, and radiology reports) and even emailed us the same .DOC and .PDF files that DJ all ready has setup here for download. Cheesy

If I am understanding things correctly (third person), Dr. Scott will make a determination during the actual operation if he will operate on both sides at the same time.

We have loads of things to plan for, tons of things to pray for, and many thanks to all of you who have let us ask the many questions that have gotten us to this point so far!

Does anyone have reccomendations of a good place to stay in or around Boston? (I am so not looking forward to the five hour drive, especially on the Mass. Turnpike! Shocked

) I know people have come to Dr. Scott from all over the world though, so a five hour drive is considered a walk in the park by some standards! Hehehe

Another positive way to look at it is that we will get to miss all the cruddy New England snow that we could be traveling in, if we had to wait too much longer!!! (October-November)

Michael will miss a month of school, more than likely. YIKES! That should be fun in and of itself!!!!! HAHAHAHA

I'll update as often as there is news to update with. You all have my word.

-= Dewski =-, mshane, and Michael

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katden

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Re: OK, here we go!!!
Reply #1 - Aug 10^th, 2005 at 10:24pm

Congratulations on the surgery!! Our son had it at the same age as your son and that is 5 years ago this month. Steinberg did his. We would recommend that you look into Ronald McDonld House. They accept children up to the age of 18. Our son, Brian, really loved the people at RMc in Palo Alto. And they were so supportive of me and my husband. We still talk to them.

Take a deep breath, you are all in good hands.

.............Kathy

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mg12061

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Re: OK, here we go!!!
Reply #2 - Aug 11^th, 2005 at 10:24am

I'm so glad you have things moving forward for surgery.Especially with Dr. SCoottMy daughter had her surgeries at age 5, 3 yrs ago and has been doing great.They were unable to do both sides at the same time.AS I understand it Dr.Scott like to do both at the same time but when they aren't tolerating the surgery well he will stop and do the other side later.This was the case with Kahtleen her surgeries were a few days apart. You will love Dr. Scott and everyone at the children's hospital.
As for someplace to stay,unfortunatly the Ronald McDonal house there accepts just cancer patients families(at least as of 3 yrs ago when we were there).If you contact the Hospital they can set you up with a family that has been chosen by them to house families who are traveling to the hospital.They also have rooms in the hospital that you can sign up for ahead of time(there's sometimes a waiting list)There's also a nice Hotel right next door Called The Best Western Inn At Longwood Medical.We've stayed there a couple of times,they have free parking for patrons too.They do give a small discount to patients families. Mostly my husband and I stayed in Kathleen's room, when she was there for the actual surgeries.she was never really stable enought for us to feel comfortable leaving her.If I can help with any questions just let me know.By the way we live in New York,it's not too bad a ride if you don't hit the rush hour traffic going into Boston.Be sure you have good directions getting off the Turnpike and into Boston because we have soem family who got lost big time in the city just minutes aways from the hospital but couldn't find the way.We laugh about it now saying they could ahve driven to Buffalo in the time it took them to get to Boston(should be under 3 hours for us). Best wishes and many prayers you are in great hands!
Mary Grace

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Dewski

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Re: OK, here we go!!!
Reply #3 - Aug 11^th, 2005 at 10:43pm

katden wrote on Aug 10^th, 2005 at 10:24pm:

Congratulations on the surgery!! Our son had it at the same age as your son and that is 5 years ago this month. Steinberg did his.

Dr. Steinberg sounds like an amazing doctor as well. How is Brian doing now? Did he have bilateral surgeries?

Quote:

We would recommend that you look into Ronald McDonld House. They accept children up to the age of 18. Our son, Brian, really loved the people at RMc in Palo Alto. And they were so supportive of me and my husband. We still talk to them.

Well, so far, we have learned that the Ronald McDonald house in Boston is reserved for cancer patients and their families. We honestly haven't gotten any further than that. It's difficult to make more definate plans until after his secretary calls us back with a confirmation date.

Quote:

Take a deep breath, you are all in good hands.

.............Kathy

Thank you. There is so much to try to take in and absorb. This website has taught me so much more about Moyamoya and what can be done to help in it's treatment. I wish I had known of this site years ago. Now, we are trying to take it all in, in only a few weeks. It's such a great feeling to be able to talk with those that actually know what Michael is going through and that there are parents here as well that we can confide in and bounce ideas off of.

-= Dewski =-

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Dewski

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Re: OK, here we go!!!
Reply #4 - Aug 11^th, 2005 at 11:22pm

mg12061 wrote on Aug 11^th, 2005 at 10:24am:

I'm so glad you have things moving forward for surgery.Especially with Dr. SCoott

Thank you very much. ; Grin

We are happy to have the ball rolling in all of this too.
Quote:

My daughter had her surgeries at age 5, 3 yrs ago and has been doing great.They were unable to do both sides at the same time.AS I understand it Dr.Scott like to do both at the same time but when they aren't tolerating the surgery well he will stop and do the other side later.This was the case with Kahtleen her surgeries were a few days apart.

Wow, even that might be a bit easier than we have been anticipating. Undecided

We have been under the impression that if both surgeries aren't done at the same time, that there may be weeks or even months in between them, meaning an additional trip back to Boston.
Quote:

You will love Dr. Scott and everyone at the children's hospital.

We have heard nothing but fantastic things about Dr. Scott and his pictures remind me of a neurologist that we used to have here in Syracuse. (It's the boe tie!) Hehehe
Quote:

As for someplace to stay,unfortunatly the Ronald McDonal house there accepts just cancer patients families(at least as of 3 yrs ago when we were there).If you contact the Hospital they can set you up with a family that has been chosen by them to house families who are traveling to the hospital.They also have rooms in the hospital that you can sign up for ahead of time(there's sometimes a waiting list)There's also a nice Hotel right next door Called The Best Western Inn At Longwood Medical.We've stayed there a couple of times,they have free parking for patrons too.They do give a small discount to patients families. Mostly my husband and I stayed in Kathleen's room, when she was there for the actual surgeries.she was never really stable enought for us to feel comfortable leaving her.If I can help with any questions just let me know.

Thank you - more than you know. The information that you posted I read to my wife. I don't forsee there being a time that either my wife or myself won't be with Michael, as he is scared of the hospital. Even though he is 17 years old, his mentality is roughly that of a toddler. (6 or 7). I will contact the Best Western at some point this week, to get an idea on prices. It sounds like a "sponser" house would be allmost perfect!

Quote:

By the way we live in New York,it's not too bad a ride if you don't hit the rush hour traffic going into Boston.Be sure you have good directions getting off the Turnpike and into Boston because we have soem family who got lost big time in the city just minutes aways from the hospital but couldn't find the way.We laugh about it now saying they could ahve driven to Buffalo in the time it took them to get to Boston(should be under 3 hours for us). Best wishes and many prayers you are in great hands!
Mary Grace

Hehehe We are from Syracuse, right in the middle of NY state. We *think* it'll take about 5 hours. I have driven the turnpike before, but not to Boston. I just remember it being one of the more "challenging" highways I have driven on. LOL Smiley

Of course back then, there wasn't such a place as mapquest.com either, so who knows? Hehehe

Thanks for your reply!

-= Dewski =-

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mg12061

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Re: OK, here we go!!!
Reply #5 - Aug 12^th, 2005 at 9:37am

I'm so glad I could help a little.You'll find once you get there you'll never feel alone.Everyone is so helpful. We really had no plan when we left about where we would stay,I couldn't imagine leaving Kathleen alone for even a minute.One of us was always with her.My husband joked that if they kicked him out he'd just sleep in the van.As it worked out Kathleen was so little I slept with her in her bed and my husband in the chair. Kathleen was five at the time but she also has Down Syndrome so her understanding wasn't that of a 5 yr old, She also had a very severe stroke and lost so much of what she had up till that point.They even let me go into the OR with her until she was put to sleep. They give you lots of updates about the surgery so you don't just sit around waiting and wondering for hours. Everything you might nees is roght there They ahve a cafe,cafeteria, right next door at the Hotel is a food court,It was nice to get a good cup of coffee at the Dunkin Donuts.Be careful because the map quest can be kinda tricky,we've gotten different versions of directions and so has some of our family and that's how they got lost.If you want my husband could definatly help you with that,we've driven it many times now. Or if you just want to talk,;et me know I'll PM you my #.By the way we live in Albany,not too far away.....
Mary Grace

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Dewski

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Married. Son has MM.
He is 17.

Posts: 70
Syracuse, USA, usa, 479, 86, NY, New_York
Gender: male

Re: OK, here we go!!!
Reply #6 - Aug 12^th, 2005 at 12:21pm

Hi Mary Grace, ty for your reply

mg12061 wrote on Aug 12^th, 2005 at 9:37am:

They give you lots of updates about the surgery so you don't just sit around waiting and wondering for hours. Everything you might nees is roght there They ahve a cafe,cafeteria, right next door at the Hotel is a food court,It was nice to get a good cup of coffee at the Dunkin Donuts.

I will, without a doubt, need to make some coffee runs for the Mrs., but I am a Mountain Dew man myself. LOL (Now you know where the name comes from.) She's on the phone with the hospital as I type getting some info of some sort sent here. I'm not sure who she is talking to at the moment.

We feel very much the same way, I can't honestly see either of us leaving Michael's side. We are looking at a place called The Devon Nicole (sp) House if we have to, that might still be an alternative. It is roughly 5 blocks from the hospital. The Best Western might be a bit out of our league, especially if Michael's visit is going to be longer than expected. We're still trying to find a place to board our dog, etc... Hehehe LOTS of stuff to "dew" yet.

Quote:

Be careful because the map quest can be kinda tricky,we've gotten different versions of directions and so has some of our family and that's how they got lost.If you want my husband could definatly help you with that,we've driven it many times now. Or if you just want to talk,;et me know I'll PM you my #.By the way we live in Albany,not too far away.....
Mary Grace

With that said, I think I will gladly take you up on your offer! ; Grin

The last thing we need is to get lost. We won't have any trouble getting to Albany at all, so directions from Albany to Boston would be very helpful.

Thanks again,

-= Dewski =-

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STrantas

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Philadelphia, USA, usa, 490, 122, PA, Pennsylvania
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Re: OK, here we go!!!
Reply #7 - Aug 15^th, 2005 at 5:00pm

Hi Dewski -

My parents stayed at the Longwood Best Western right across the street from the hospital. They give a discount - but it's still kind of expensive for an extended period of time. My parents really appreciated the location due to the fact that they had to come back to the hospital late at night for emergency MRI's and CAT scans after both my surgeries. They apprecited the convenience.

I think Dr. Scott's office staff can give you a list of alternative locations too.

-Shari

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Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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Dewski

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He is 17.

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Re: OK, here we go!!!
Reply #8 - Aug 15^th, 2005 at 9:49pm

STrantas wrote on Aug 15^th, 2005 at 5:00pm:

Hi Dewski -

My parents stayed at the Longwood Best Western right across the street from the hospital. They give a discount - but it's still kind of expensive for an extended period of time. My parents really appreciated the location due to the fact that they had to come back to the hospital late at night for emergency MRI's and CAT scans after both my surgeries. They apprecited the convenience.

I think Dr. Scott's office staff can give you a list of alternative locations too.

-Shari

Thank you Shari,

We are still up in the air about most everything, other than the fact that we have exactly 30 days to get organized! LOL ; Grin

I know that my wife talked with Gail (Dr. Scott's receptionist?), and got a few alternative places that we have to look into yet. As much as it may be a bit pricy, I have to say that I would feel better being as close to Michael as I can be.

It's just one thing on a list 1/2 a mile long right now... We have to find a kennel for our dog, we are trying to sell our parrot before we go, just all sorts of stuff... LOL

Not to mention I think my wife and I will both need therapy after getting off the Mass. Turnpike! ROFL

-= Dewski =-

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Dewski

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Married. Son has MM.
He is 17.

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Syracuse, USA, usa, 479, 86, NY, New_York
Gender: male

Re: OK, here we go!!!
Reply #9 - Aug 18^th, 2005 at 9:44pm

Hi everyone!

Just a quick "update":

First, I want to thank EVERYONE for all the replies in all the different message boards. It's hard to keep up with all of them.

Please know how grateful we are for all your responses!

Michael is going to have his pre-testing done in Boston on September 16th, his angiogram on the 19th and his surgery is scheduled for the 20th. We have our reservations all ready made and things are ever so slowly starting to take shape.

There is so much to do and get ready for, not to mention that Michael doesn't even know what is going to happen or even that "we are going for a loooooooooooooong road trip". Smiley

I guess yesterday was the day that reality kinda hit me upside the head. We are driving my "buddy" five hours from home, a bit more than 300 miles away, for the most serious surgery I can think of. He has gotten so that he barely tolerates going to his GP's office, since he gets his fingers pricked and occasional shots. Hehehe

His last MRI/MRA he was petrafied. Sedation simply would not work, and unfortunately, they needed to put him under anestesia. <sp> What is this poor kid going to think of us now?

He has all ready been through more illness in the 17 years of his life than most people will in their lifetimes. And the kicker is, he seldom complains and for the most part feels that life is "good". I wish I could go through it for him instead of with him. Smiley

I truly hope that this surgery is everything that we have read it will be. I hope it will make Michael's days a little brighter and keep him a bit healthier. He has so much love to go around... Just my Smiley

.

-= Dewski =-

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mg12061

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Re: OK, here we go!!!
Reply #10 - Aug 19^th, 2005 at 5:01pm

Gosh, all that you wrote brings back so many memories of us 3 rys ago. I feel like Kathleen has been through more in her 8 yrs than anyone I know,and she's just so good about it.She works sooooo hard everyday of her life.She put up with so many Dr.'s and therapists and teachers.Like you I feel like she's been given more than her share.....Your son sounds like an amazing young man.It's hard to explain all that's happening,We couldn't really prepare Kathleen too much because she was only five and didn't realy have the understanding of even a five yr old.She just "rolled with the punches", and we were there to hug cuddle and reasure her every single moment.Our presence was enough to keep her pretty clam most of the time and happy.She HATED the IV needles though.She was blowing at least 1 IV everyday.This meant a very prolonged(they had a difficult time finding good veins) poking with needles.Finaly under anasthesia for the second surgery they put a couple extra IV's in for later use.(we knew they'de just keep "blowing".Even with all the complications she had she is doing amazing now.She is learning quicker than ever,her memory gets stronger everyday,and she's had no more strokes or TIA's.It's been a long road but without this surgery she would not be here with us today.This has been a journey I would never have chosen, but it has strengthened our family and given us a real respect for Life, and for any child who is given the added struggle that comes along with any dissability.
I remember how hard the waiting was.Some days I thought it was unbearable.We had a 3 month wait.We watched her like a hawk for any signs of a stroke.We became fanatics about hand washing(we were afraid she would get sick before surgery) and keeping her hydrated. Our life totally revolved around MM.Once the surgery is behind you though it does get easier.I don't worry every single day anymore LOL. It's hard not to think, like your son, that she's been given more than her share but then I see her laughing,or she gives me a big hug and I know everythings OK. It doesn't get her "down" it just makes her more determined.
It sounds like things are moving steadily forward. The MRI's are a very scary thing Kathleen is always sedated,(so far just sedation has worked for her)I can't forsee a time when she would ever tolerate the MRI.Keep us posted......
mary Grace

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Dewski

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Re: OK, here we go!!!
Reply #11 - Aug 23^rd, 2005 at 5:10pm

mg12061 wrote on Aug 19^th, 2005 at 5:01pm:

Gosh, all that you wrote brings back so many memories of us 3 rys ago. I feel like Kathleen has been through more in her 8 yrs than anyone I know,and she's just so good about it.She works sooooo hard everyday of her life.She put up with so many Dr.'s and therapists and teachers.Like you I feel like she's been given more than her share.....Your son sounds like an amazing young man.

Your daughter sounds like an amazing little girl too.

The problems that ALL MM patients seem to face are hard enough as they are, but then our children are faced with the additional burdens and tasks of not having a "norm" to compare themselves to. They don't necessarily know if something is wrong, or worse, they can't seem to tell us exactly what it is that is going on. Sad

Quote:

It's hard to explain all that's happening,We couldn't really prepare Kathleen too much because she was only five and didn't realy have the understanding of even a five yr old.She just "rolled with the punches", and we were there to hug cuddle and reasure her every single moment.Our presence was enough to keep her pretty clam most of the time and happy.She HATED the IV needles though.She was blowing at least 1 IV everyday.This meant a very prolonged(they had a difficult time finding good veins) poking with needles.Finaly under anasthesia for the second surgery they put a couple extra IV's in for later use.(we knew they'de just keep "blowing".

I just passed that information to my wife, as my memory isn't always up to snuff and I am likely to forget it. While not the most pleasant thing to have done, I know that we have gome through IV "teams" at our local hospital trying to get a "good stick", only to either have it blow or for Michael to eventually figure out a way to get to it and pull it out. Hehehe

He gets the most terrified at the "mask" coming at him for anestesia. Mom can't hang around for that one. It crushes her. It does me too, but I know that it is for his own good and that there is noone there that is going to hurt him. Now he's starting to get wise to even the different outfits and the type of "bed" he is asked to lay down on. Smiley

That makes it a little harder sometimes... hahaha
Quote:

Even with all the complications she had she is doing amazing now.She is learning quicker than ever,her memory gets stronger everyday,and she's had no more strokes or TIA's.It's been a long road but without this surgery she would not be here with us today.This has been a journey I would never have chosen, but it has strengthened our family and given us a real respect for Life, and for any child who is given the added struggle that comes along with any dissability.

I would really like to talk to you about this. If I am understanding it right, the the surgery is to prevent the patient from having more strokes, but do most patients go into TIA and seizure remission as well? I am extremely happy to hear that your daughter no longer has TIAs at all - God Bless her! ; Grin

Do you know offhand if that is "the norm" for this surgery?
Quote:

I remember how hard the waiting was.Some days I thought it was unbearable.We had a 3 month wait.

I can't imagine! WOW! This is going to be just a bit over a month and I feel like I have aged 5 years all ready. LOL I have tried to research throughout this site, as well as any links that this site has available. I feel like I am Dr. Scott's younger brother I have been over his bio so many times. HAHA (His credentials blow my mind!)
Quote:

We watched her like a hawk for any signs of a stroke.We became fanatics about hand washing(we were afraid she would get sick before surgery) and keeping her hydrated.

We have monitors all over the house so that we can see him no matter where he is, even if we are in the basement. He had a brief seizure this morning and luckily my wife was in the room with him when it happened.

We make sure he has something to drink at all times too. LOL. That includes a drink on his headboard every night.

Quote:

Our life totally revolved around MM.Once the surgery is behind you though it does get easier.I don't worry every single day anymore LOL. It's hard not to think, like your son, that she's been given more than her share but then I see her laughing,or she gives me a big hug and I know everythings OK. It doesn't get her "down" it just makes her more determined.

Sounds like Michael to a tea! Hehe He may have to go to sleep sometimes (most times) after a TIA, but he wakes up and dives into his toys again like nothing ever happened. 99.9% of the time, Michael doesn't react to his situation at all, unless someone around him starts crying. He is much more concerned that something is wrong with someone else, than he is with himself.
Quote:

It sounds like things are moving steadily forward. The MRI's are a very scary thing Kathleen is always sedated,(so far just sedation has worked for her)I can't forsee a time when she would ever tolerate the MRI.Keep us posted......
mary Grace

Three more weeks... Three more weeks... Three more weeks... My God - this has only been scheduled for a week! ROFL!

-= Dewski =-

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STrantas

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Re: OK, here we go!!!
Reply #12 - Aug 23^rd, 2005 at 6:45pm

Dewski wrote on Aug 23^rd, 2005 at 5:10pm:

He gets the most terrified at the "mask" coming at him for anestesia. Mom can't hang around for that one. It crushes her. It does me too, but I know that it is for his own good and that there is noone there that is going to hurt him. Now he's starting to get wise to even the different outfits and the type of "bed" he is asked to lay down on. Smiley

That makes it a little harder sometimes... hahaha

Well, maybe I can put your mind at SOME ease (I know that's difficult when your child is facing major surgery). Anyway, Dr. Scott uses IV injections to make you very sleepy, and then other IV injections to put you to sleep. I remember it fondly (
Smiley

) as I remarked on more than one occasion - "Wow, this stuff works really fast!!!" Smiley

[smiley=crackup.gif] Smiley

. The docs got a good chuckle out of my reactions!

-Shari

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Dr. Scott did my surgeries - 12/29/03 and 1/5/04

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STrantas

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Re: OK, here we go!!!
Reply #13 - Aug 23^rd, 2005 at 6:50pm

Dewski wrote on Aug 23^rd, 2005 at 5:10pm:

If I am understanding it right, the the surgery is to prevent the patient from having more strokes, but do most patients go into TIA and seizure remission as well?

Of course, everyone's experiences are different. I experienced total stopping of my TIAs. I think I had just one 2 weeks after I came home from the hospital.....and then one when I went for my one year angio (but that was due to an extremely high fever). Before sugery I was having at lease 2 a day.

Other people contine to have TIAs but on a less frequent basis. This truly is an individualized experience. (Wow, my grammer really stinks today!)

Please know that we will be thinking of you and your family and praying for a speedy recovery for Michael!

-Shari

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Dewski

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Re: OK, here we go!!!
Reply #14 - Aug 24^th, 2005 at 6:10pm

STrantas wrote on Aug 23^rd, 2005 at 6:45pm:

Well, maybe I can put your mind at SOME ease (I know that's difficult when your child is facing major surgery). Anyway, Dr. Scott uses IV injections to make you very sleepy, and then other IV injections to put you to sleep. I remember it fondly ( Smiley

) as I remarked on more than one occasion - "Wow, this stuff works really fast!!!" Smiley

[smiley=crackup.gif] Smiley

. The docs got a good chuckle out of my reactions!

-Shari

Thank you! That is something that we were not aware of (as of yet). I have made similar remarks at the dentist's office. Hehe

-= Dewski =-

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Dewski

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Re: OK, here we go!!!
Reply #15 - Aug 24^th, 2005 at 6:21pm

STrantas wrote on Aug 23^rd, 2005 at 6:50pm:

Of course, everyone's experiences are different. I experienced total stopping of my TIAs. I think I had just one 2 weeks after I came home from the hospital.....and then one when I went for my one year angio (but that was due to an extremely high fever). Before sugery I was having at lease 2 a day.

Other people contine to have TIAs but on a less frequent basis. This truly is an individualized experience. (Wow, my grammer really stinks today!)

Please know that we will be thinking of you and your family and praying for a speedy recovery for Michael!

-Shari

Thank you for your reply...

The way that you have worded it is exactly what I am picturing in my mind's eye, so your grammar is fine from where I am sitting. LOL

I guess the best "absolute" that I can have is to be hopeful.

To see Michael without TIAs anymore would be so amazing...

I appreciate your prayers and continued support. TY!

-= Dewski =-

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mg12061

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Re: OK, here we go!!!
Reply #16 - Aug 24^th, 2005 at 6:37pm

Dewski, As far as having more Tia's,seizures or strokes after surgery I can only really give you my experience and I'd be glad to answer any questions you have about our experience.To give just an idea, Kathleen was is extremely unstable condition for her surgeries but Dr. SCott decided that the risk of waiting was not an option.kathleen had at least 2 strokes before her surgery was scheduled, the day before surgery Kathleen had a stroke in the car on the way to Boston,I didn't even tell my husband I knew this was happening becasue eh was driving.I jsut moved to the back seat with her and prayed we got there quick.The morning of surgery she had something going on we really never knew but she was unresponsive and just crying for over an hour until they came to bring us to the OR.I was petrified.Then they had to stop surgery after the first side because her eeg went extremely low.4 days after her first surgery she had possible seizures(she was on meds for a few months then never ahd another).and she had a "showering of strokes" on the left side of ehr brain and a large stroek on the right side of her brain. I thought we were losing her that night.they did the second side 2 days later.We left Boston 4 days after that and went to a local rehab hospital.She has never had another seizure, stroke or TIA since.It truely saved her life I believe had she not had this when she did she really didn't have a lot of time. Soooo even in such unstable condition the outcome was a miracle for us. I hope this helps. I laughed when you talked about reading Dr.Scott's BIO so much.My husband could have rewritten it he read it so many times at work.I don't know how he got anything else done while he was at work.I guess it put his mind at ease.He used to joke that he read so much about all this he could assist in the OR. Keep us posted.
Mary Grace

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Dewski

Junior Poster

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Married. Son has MM.
He is 17.

Posts: 70
Syracuse, USA, usa, 479, 86, NY, New_York
Gender: male

Re: OK, here we go!!!
Reply #17 - Aug 31^st, 2005 at 8:31pm

Tomorrow will be Sept. 1st... 15 days until we leave for Boston.

My wife has gotten so many thingd ironed out and ready to go - she's amazing. ; Grin

Michael is BORED out of his mind and wants to go back to school. Undecided

He'll go back just in time to leave again...

Since his medications were changed, I have to say that his TIA's have gotten much better and far less often. Thank God!!

Just trying to keep the gang here updated. We will be bringing a laptop with us to the hospital, so I am sure that we will keep everyone posted as to how things are going.

-= Dewski =-

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katden Junior Poster Offline My son, Brian is a MM survivor!!!!! Posts: 58 Phoenix, USA, usa, 123, 219, AZ, Arizona Gender:	Re: OK, here we go!!! Reply #18 - Aug 31^st, 2005 at 9:48pm Brian and Dennis and I are so happy that TIA's have lessened. We know everything will be ok. You are in our prayers each day. Keep the faith! Kathy
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mg12061 Old-Time Poster Offline Posts: 946 Albany, USA, usa, 492, 84, NY, New_York Gender:	Re: OK, here we go!!! Reply #19 - Sep 2^nd, 2005 at 6:10pm Glad to hear that things are falling into place. You'll be in great hands and will LOVE Dr. Scott and his staff.They'll take good care of your family. Mary Grace
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