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"normal life" ... and a bit of a whinge. (Read 15163 times)
Janko
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Take baby steps...one
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Posts: 209
Kekaha, USA, usa, 326, 333, HI, Hawaii
Gender: female
Re: "normal life" ... and a bit of a whi
Reply #25 - Nov 3rd, 2005 at 6:35pm
 
Hi Emily,

I can relate to what you were saying...I've been lucky, I haven't suffered any  strokes or TIA's since being released from the hospital.  I can assure you my life is anything but "normal".  I am constantly tired...like I never have enough sleep.  I can't stay in places where there is a lot of noise....everything is too damn loud (feels like my head is going to explode Smiley).  I have done other things that I enjoyed doing prior to being diagnosed.  I have started Japanese dancing again.  And started walking  2-1/2 miles approx 4 - 5 days a week.  Unfortunately when I'm finished I take a shower and go straight to bed...I'm just too damned tired to stay awake.  I've returned to work but I fall asleep after a couple of hours... (I have a good boss...he lets me doze for a few minutes.Smiley I don't think my life will ever be back to "Normal".  I just appreciate I have my life back!!

Jan

P.S.  I really appreciate having this great support network.  It helps with my sanity!! Smiley
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Emily
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Diagnosed Oct 2005. Direct
bypasses: Nov 05 Apr
06

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Brisbane, Australia
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Re: "normal life" ... and a bit of a whi
Reply #26 - Nov 3rd, 2005 at 9:26pm
 
hey Jan, have you had any surgery yet?
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cjonesy
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Cairns, Australia, QLD, Queensland
Re: "normal life" ... and a bit of a whi
Reply #27 - Nov 4th, 2005 at 5:30pm
 
Darling Emily,
You are an amazing young woman. Your positive attitude to everything you say and do is an inspiration to me. Everyone here is so supportive and encouraging, take heart from that. This week rest, relax, do things you can and love to do, and smile your beautiful smile. I'll see you in a week. You are and always will be a bundle of joy. Smiley Cheesy
luv Mummee
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pomem
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Re: "normal life" ... and a bit of a whi
Reply #28 - Nov 7th, 2005 at 1:15am
 
SECONDED!

Your mum is right: your attitude to this and your positive outlook is an absolute inspiration to see.  You're only human.. that's why we're going to be around to help you out as you get closer to your surgery date.  All you need to do is concentrate on looking forward and beyond the surgery, and you'll find yourself there before even realise it.  Don't stress over other things in your life: you have us here to take care of those things for you.

When it gets a bit much, just go lie on your bed with your cushions behind you and try out one of those meditations.  Even just to put on some soothing music and clear your mind out would be beneficial to you.  Don't try to push yourself to do the things you're finding difficult at the moment: you know why they are difficult, and you know it's something you're taking care of by having the surgery.  Your main concerns at the moment are preparing yourself mentally and physically for your surgery.  Beyond that, just chill out and get some sleep Smiley

We know you're brilliant and smart and have an absolutely radiant outlook on life, so just relax now and allow us to take some of the pressure off you.  Personally I think you're doing a terrific job Smiley and much as it pains me to admit it, I'm looking forward to coming down to Melbourne!

Sometimes life just turns it all around and you don't know why... but trust me, you'll find something in this which will help you later on.  Just look forward to what we'll do with the house and that nice little garden you're going to work on!

Smiley thinking of you all the time, look forward to seeing you in a few days

12th - Mum
13th - em
15th - Holliepop

Smiley
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Janko
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Take baby steps...one
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Posts: 209
Kekaha, USA, usa, 326, 333, HI, Hawaii
Gender: female
Re: "normal life" ... and a bit of a whi
Reply #29 - Nov 12th, 2005 at 6:19pm
 
Normal life???  What's that!?   Smiley  After being diagnosed with MM, life has been anything but normal.  Don't think it's ever going be normal again.  I have been on an emotional roller coaster.  Don't know whether it's good or bad.  I've tried to go back to my old routine, but there are times that I don't know whether I'm coming or going, whether I'm here or there. Like you,
"I look perfectly healthy, but feel like crap"  I'm a litttle crazy, I try to do more than I am actually capable of doing.

Do you feel like a broken record, always repeating your story over and over?  I do.  There's really not much I can do.  I don't have any one to talk to here (on the island).   I just make Alan (my boyfriend) crazy with all my different emotions  Smiley Smiley Smiley Smiley Smiley Smiley Cheesy.  He never know what kind of mood I'll be in.  It's driving me absolutely batty....I'm not sure if I'm in some sort of depression.  I'm happy, but I'm not happy.  Do you know what I mean???? Tongue

Most of all...there are days when I just need great big hug to let me know everything is going to be okay.  And that I'll make it through. Smiley

Aloha,
Jan
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Janko
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Take baby steps...one
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Kekaha, USA, usa, 326, 333, HI, Hawaii
Gender: female
Re: "normal life" ... and a bit of a whi
Reply #30 - Nov 13th, 2005 at 3:40am
 
Hi Em,

To answer your question, no I have not had any surgery yet.  I getting my print ready for a second / third opinion.  My life is pretty topsy-turvy at this point.  I have been going through some terrible depression.  I honestly don't know what to do at this time.  I think at times that I am definitely going crazy Smiley .  I'm so happy every one here is so supportive.  This website really helps my sanity.

Aloha,
Jan
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moyamoi
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Re: "normal life" ... and a bit of a whi
Reply #31 - Nov 13th, 2005 at 5:43pm
 
Hi Jan
I am so sorry to hear that you are going through such a hard time. Depression can be such a debilitating disease especially when you are having to deal with MM as well. I faintly recall that you also were suffering from headaches? If you are, (and I don't advocate for taking unnecessary medication) talk to your doctor about putting you on amytriptilene. My neuro actually suggested this for my headaches, and it is also the basis for antidepressants, so this may help you. I would also try meditation tapes to help with your stress levels at this time and I turned to taking Pulsatilla which is a homeopathic remedy that is totally harmless and actually helped me with my bouts of depression in the past.
You know we are all here for you so that you can vent at any time!
Try to keep your chin up - there is a light at the end of the tunnel and it is not necessarily an oncoming train!

Moira   Smiley
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Janko
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Take baby steps...one
step in front of the
other!!

Posts: 209
Kekaha, USA, usa, 326, 333, HI, Hawaii
Gender: female
Re: "normal life" ... and a bit of a whi
Reply #32 - Nov 14th, 2005 at 6:20pm
 
Hi Moira,

Well, I have an appointment for a consult with my pcp.  I have been trying this chinese form of exercise and meditation called qi gong.  I have to do breathing exercises and do some meditation before going to bed at night.  It also helps if I don't have a stressful day.
Yes, I do know first hand that depression can be very bad (my uncle and cousin's husband took the wrong way out).  I don't want to get to that point so I want to get help as soon as possible.

Thank you for thinking of me and giving me suggestions.  I do appreciate it!!
Smiley

Aloha,
Jan
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